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» Ship of Fools   » Ship's Locker   » Limbo   » Purgatory: Who knows best - the state or the parents? (Page 4)

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Source: (consider it) Thread: Purgatory: Who knows best - the state or the parents?
orfeo

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# 13878

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quote:
Originally posted by Justinian:
quote:
Originally posted by orfeo:
quote:
Originally posted by Justinian:
Why do you expect the hospital to be telepathic?

I don't. I also don't expect them to ignore the fact that the parents had the presence of mind to take a feeding tube with them.
Feeding the patient is not a cancer treatment.
Agreed. And?

Here's the disconnect I'm feeling right now with this 'child endangerment' argument that is currently running: where's the urgency? Where's the need to have court orders and arrest warrants within a single day?

That kind of action is consistent with imminent danger. Even if the hospital genuinely believed that the intention of the parents was to refuse any kind of treatment for cancer, how does that justify the actions taken in the timeframe in which they were taken?

The very reason for talking about the battery of the feeding machine is that that is framing the problem as a short-term, immediate risk in a way that the cancer treatment issue simply isn't. A belief that the parents would withhold cancer treatment may well justify action, but it does not justify we-have-to-find-him-right-now emergency-order action.

[ 04. September 2014, 11:56: Message edited by: orfeo ]

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North East Quine

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Originally posted by orfeo:

quote:
I don't suppose you have any references to legislation handy?
This is a Scottish government publication. See the box on page 10.

I assume the position in the rest of the UK is the same or broadly similar.

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Gee D
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NEQ, it has been a breach of traffic laws here for 30 odd years or more for an infant not to be carried in a safe "seat" - the particular style required varies with the age and weight of the child; the of course an ordinary seatbelt is required of all passengers over the age (I think) of 10. But while in practice hospitals enforce that la when a newborn is going home, I doubt very much if they have either a legal obligation to do more than advise, or that they have power to enforce the relevent Act.

And I'd agree with Orfeo's post that the termination of a doctor/patient relationship requires the doctor's consent and the same applies between patients and hospitals- with the obvious exception of a patient being detained under the Mental Health Act, or the patient is unable properly to make a decision and there is no responsible guardian to make the decision.

And surely rights of guardianship of a child only leave the parents if there is a court order to that effect. The proper course for the hospital to take would have been to make an application to the relevant court for an order declaring the child a ward of the court or of the state. Courts here regularly consider applications for such an order when a child of JW parents is said to need a blood transfusion. A court will only make an order if it is satisfied that the treatment is necessary. Now Ashya is out of the UK, that may very well not be possible for such an application to be made. In the absence of an order it's hard to see that the parents her have committed any offence.

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itsarumdo
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quote:
Originally posted by Matt Black:
The healthcare service here has an ongoing responsibility to children and other legally vulnerable individuals, whether or not in hospital, hence the visits given as examples by North East Quine above. That relationship does not automatically terminate on discharge from hospital.

Unfortunately anyone under 40 yo has grown up in the UK under the umbrella of the Health and Safety at Work Act. This states that there has to be an identifiable chain of responsibility, and if one is not in place, anyone who should or could have put one in place or acted has some legal culpability. The purpose of this is so that any case of neglect or manslaughter etc brought before courts has a can identify chains of responsibility and thus make the court proceedings easier and less labyrinthine. However, the principle remains a LEGAL construct, not a social one. My personal opinion is that this has created some rather skewed ways of looking at the world - and as has been said previously, there is a lot of ass covering and need to be seen to be doing something. Even if a "seen to be doing something" act is completely OTT or useless, it reduces or removes legal liability. Reducing legal liability is NOT a basis for moral decisions. It is a basis for not having to think about consequences, and a way to not have to engage the brain in making moral decisions.

[ 04. September 2014, 12:09: Message edited by: itsarumdo ]

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Gwai
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# 11076

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quote:
Originally posted by North East Quine:
Originally posted by orfeo:

quote:
Does the local hospital my nephew was born in have an obligation to be certain my nephew is being looked after? Is there some sort of roving duty of care in relation to all children in the area?
Pretty much. The hospital check that, for example, if the parents are taking their newborn baby home by car, they are doing so in a properly fitted car seat. You can't just waltz out of hospital and put a baby in an unsecured carrycot on the back seat. Not here, anyway.
You can't walk out of a hospital with a newborn unless you have a car seat here either. Two thoughts about that. One, I'm not sure this example disagrees with Orfeo because the hospital has duty of care for the child until it does approve the baby to go home. Secondly, note that I said you can't walk out of the hospital. That was meant literally. My first two children only went home from the hospital in cars because they had to have a damn car seat anyway. My third child went home in a car seat I carried down to the bus stop despite the fact that a week after surgery I was not supposed to be carrying weights like a car seat. But he had to have a car seat because the law is stupid. And that's exactly the kind of reason some of us have trouble trusting the government to know better, honestly.

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orfeo

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# 13878

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quote:
Originally posted by North East Quine:
Originally posted by orfeo:

quote:
I don't suppose you have any references to legislation handy?
This is a Scottish government publication. See the box on page 10.

I assume the position in the rest of the UK is the same or broadly similar.

Thank you, much appreciated.

It looks like a bit of a labyrinth, and has words likes 'guideline' and 'framework' that make me cringe. Homework! Not for tonight, though. I'm declaring myself done for the evening.

[ 04. September 2014, 12:14: Message edited by: orfeo ]

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orfeo

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Egads. And in one of the Appendices there's a "resilience matrix". Oh how I love management-speak.

*really closes document*

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JoannaP
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quote:
Originally posted by orfeo:

Obligations arise from relationships. A hospital has an obligation to its patients. The patient relationship can be terminated.

It seems fairly clear to me that the parents, by their actions, were terminating the patient relationship. I would fully accept that the hospital had obligations towards the boy while they were treating him, but there seems to be this unstated assumption that they were still treating him. I don't think that assumption stands up very well to proper examination.

Surely a doctor-patient relationship can only be terminated by one of the participants? The parents are not the patient and so do not have the right to terminate the relationship unilaterally.

Also, they did not terminate the relationship; they just removed Ashya from the hospital without providing any notice. Had they tried to discharge him or asked for him to be transferred to another hospital it would be different and the hospital would know that its duty of care had ended (assuming this was allowed to happen and Ashya was not made a ward of court).

According to your logic, when my grandmother, who was suffering from Alzheimer's, wandered out of the hospital after the hip replacement op and somehow managed to find her way home, she should have been allowed to stay home, having left her clothes, medication, etc. etc. in the hospital. At least she left the hospital under her own steam, which was more than Ashya did.

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Justinian
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quote:
Originally posted by orfeo:
Agreed. And?

Here's the disconnect I'm feeling right now with this 'child endangerment' argument that is currently running: where's the urgency? Where's the need to have court orders and arrest warrants within a single day?

What's the intermediate process? Especially when the patient has about four months. Using the police is about the only tool available if there's clear reason to think (as there was) that the kid wouldn't turn up again.

The choice was either using existing tools (the police) or custom crafting a one of a kind tool.

quote:
A belief that the parents would withhold cancer treatment may well justify action, but it does not justify we-have-to-find-him-right-now emergency-order action.
That's a shake-them-out-of-the-woodwork action. And it is completely clear that the parents do not have medical knowledge or they wouldn't have interrupted the treatment then.

Also the deadline for the child's death without treatment might be about 100 days away - but treatment takes time. Each day the parents play silly buggers that cancer gets larger.

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orfeo

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# 13878

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quote:
Originally posted by JoannaP:
quote:
Originally posted by orfeo:

Obligations arise from relationships. A hospital has an obligation to its patients. The patient relationship can be terminated.

It seems fairly clear to me that the parents, by their actions, were terminating the patient relationship. I would fully accept that the hospital had obligations towards the boy while they were treating him, but there seems to be this unstated assumption that they were still treating him. I don't think that assumption stands up very well to proper examination.

Surely a doctor-patient relationship can only be terminated by one of the participants? The parents are not the patient and so do not have the right to terminate the relationship unilaterally.

Also, they did not terminate the relationship; they just removed Ashya from the hospital without providing any notice. Had they tried to discharge him or asked for him to be transferred to another hospital it would be different and the hospital would know that its duty of care had ended (assuming this was allowed to happen and Ashya was not made a ward of court).

According to your logic, when my grandmother, who was suffering from Alzheimer's, wandered out of the hospital after the hip replacement op and somehow managed to find her way home, she should have been allowed to stay home, having left her clothes, medication, etc. etc. in the hospital. At least she left the hospital under her own steam, which was more than Ashya did.

Your argument is lacking in logic. How did the doctor/patient relationship arise in the first place? Did Ashya create it?

No. Children of that age have no capacity to enter into a doctor/patient relationship, and so they also lack the capacity to end it. Their parents make those decisions.

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Moo

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# 107

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quote:
Originally posted by JoannaP:
Surely a doctor-patient relationship can only be terminated by one of the participants? The parents are not the patient and so do not have the right to terminate the relationship unilaterally.

Did they have the right to initiate the relationship unilaterally?

Moo

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JoannaP
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# 4493

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quote:
Originally posted by Gee D:
And surely rights of guardianship of a child only leave the parents if there is a court order to that effect. The proper course for the hospital to take would have been to make an application to the relevant court for an order declaring the child a ward of the court or of the state. Courts here regularly consider applications for such an order when a child of JW parents is said to need a blood transfusion. A court will only make an order if it is satisfied that the treatment is necessary. Now Ashya is out of the UK, that may very well not be possible for such an application to be made. In the absence of an order it's hard to see that the parents her have committed any offence.

Gee D,
Ashya is now a ward of court and his parents cannot remove him from the hospital in Malaga without the judge's consent, which will be withheld until the judge and Portsmouth council are happy with the alternative arrangements made. Despite what Mr King told the media, however, the court order does not prevent him from seeing his son in hospital.

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"Those who would give up essential Liberty, to purchase a little temporary Safety, deserve neither Liberty nor Safety." Benjamin Franklin

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L'organist
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Bottom line is one must seriously question the gumption of 'the authorities' if the result of your concerns - however much you may feel them to be justified - is that a small child ends up in a foreign hospital without Mum or Dad, denied visits from siblings, unable to speak and being cared for by staff unable to communicate with him.

Do tell me which part of that makes any kind of sense.

Even if one accepts that the various actions taken by Hampshire Constabulary, Southampton General Hospital and Portsmouth City Council were justified, why on earth didn't people from these three bodies talk to each other, if only to ensure that poor little Ashya had SOMEONE from his home country in the hospital with him.

And afer it became apparent that he had just been cast adrift in this nightmare scenario, why didn't HMG and the Foreign Office organise getting someone in there?

This all brings us back to the original point about the parents' fitness or otherwise to care for their child.

I think we can all see from this just how effective, caring, compassionate and intelligent a parent the state makes - but that is a better bet?

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JoannaP
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# 4493

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quote:
Originally posted by Moo:
quote:
Originally posted by JoannaP:
Surely a doctor-patient relationship can only be terminated by one of the participants? The parents are not the patient and so do not have the right to terminate the relationship unilaterally.

Did they have the right to initiate the relationship unilaterally?

Moo

How can anyone unilaterally initiate a relationship?? [Ultra confused]

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"Freedom for the pike is death for the minnow." R. H. Tawney (quoted by Isaiah Berlin)

"Those who would give up essential Liberty, to purchase a little temporary Safety, deserve neither Liberty nor Safety." Benjamin Franklin

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la vie en rouge
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quote:
Originally posted by orfeo:
Children of that age have no capacity to enter into a doctor/patient relationship, and so they also lack the capacity to end it. Their parents make those decisions.

And this is precisely what this thread was about back on page 1. If parents make decisions which place their children in danger, at what point should or must the state intervene to protect the child?

ISTM there are two questions here: (a) how much (immediate) danger Ashya was in as a result of his treatment being interrupted and (b) whether the state has the right to override the parents’ decisions if they are perceived to be acting in a way which is not in the best interests of the child.

Personally, I suspect more incompetence than malice in the particular case in question. Like NEQ, it looks to me like a catastrophic breakdown in communication between the parents and the hospital.

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Justinian
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# 5357

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quote:
Originally posted by orfeo:
Your argument is lacking in logic. How did the doctor/patient relationship arise in the first place? Did Ashya create it?

No. Children of that age have no capacity to enter into a doctor/patient relationship, and so they also lack the capacity to end it. Their parents make those decisions.

No. Their parents do not have the complete right to decide whatever they like. Children are not slaves, the absolute property of their parents - as they appear to be in your model.

If the parents had had Ashya transferred to another hospital then that would have been fine.

But the parents do not have the right to kill their own children by neglect, and if they believe that the parents are abusing the children (including killing them by neglect) the hospital has a duty of care to escalate this.

According to Mr. King himself, the last thing he spoke with the hospital about with respect to treatment was taking Ashya off all cancer treatment. His subsequent actions that the hospital saw are entirely in line with the idea that he was doing this.

Do you believe that Mr. King should have been allowed to completely take Ashya off all cancer treatment? Just because he is the father?

And if not what should the hospital do? Shrug and say "That poor kid is dead. There's nothing we can do about it. It's the father's right to kill his own son by neglect."

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Figbash

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# 9048

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quote:
Originally posted by orfeo:
Your argument is lacking in logic. How did the doctor/patient relationship arise in the first place? Did Ashya create it?

No. Children of that age have no capacity to enter into a doctor/patient relationship, and so they also lack the capacity to end it. Their parents make those decisions.

Your argument is lacking in reference to certain important facts. Southampton is a part of the United Kingdom, and not the United States of America.

It may be the case that US law recognises the parents of a child as the ultimate authority when it comes to making decisions on behalf of the child. UK law does not. In the UK it is acknowledged that parents do not always represent the best interests of their children and, when it is determined that such is that case, the state undertakes to represent the child's best interests.

In other words: in the US the child may be regarded as lying solely within the parents' dominion, and the rights of the parents to exercise said dominion are considered paramount, but in the UK the child is regarded as an individual, with rights which are considered more significant than those of the parents in those cases where the parents do not appear to have the child's best interests in mind. You may consider that illogical, but then, from a UK perspective the US position appears to be an abusers' charter.

Interestingly, this confusion is suffered also by Jehovah's Witnesses: their website explicitly states that parents do have absolute dominion over children, quoting the US Supreme Court as legal evidence to back this up. It does not seem to occur to them the the US Supreme Court does not hold sway outside of the US. As Jehovah's Witnesses emphasise the belief that parents do hold absolute sway, it is perhaps not surprising that they would, inevitably see the (child favouring) UK position as an affront to their sensibilities.

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quetzalcoatl
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It depends on whether the child is dying. If he is, then it would be legitimate to refuse further treatment, so he could die in peace. But this doesn't seem to fit here, as they wanted other treatment.

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justlooking
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# 12079

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quote:
Originally posted by Moo:
quote:
Originally posted by JoannaP:
Surely a doctor-patient relationship can only be terminated by one of the participants? The parents are not the patient and so do not have the right to terminate the relationship unilaterally.

Did they have the right to initiate the relationship unilaterally?

Moo

Where children are concerned parents and other adults have duties and responsibilities and a general right to discharge those duties and responsibilities. The right to initiate a doctor-patient relationship on behalf of their child comes from their duty to promote their child's health.

If a parent wants to discharge a child from hospital against medical advice the medical staff follow hospital procedures. e.g. Discharge Contrary to Medical Advice

quote:
11. If a parent / legal representative requests to discharge a child from hospital contrary to medical advice, the Hospital Team should consider whether such an action is potentially harmful to a child’s welfare and of
immediacy as to require the initiation of statutory intervention to preclude such a course of action. Where immediate statutory intervention is considered to be necessary, Child Protection Procedures should be initiated and hospital staff should refer the child to Social Services with a view to the initiation of Emergency Protection Procedures.

12. Where medical and nursing staff conclude that there are no concerns identified, the request for discharge will be honoured and the parent / legal representative will be asked to sign the CTMA form. In these situations, hospital staff should consider whether a referral of the child to Social Services for assessment as a Child in Need is warranted.

In this case the parent removed a very sick child without any discharge arrangements and the hospital would have been failing in its duty of care if it took no action.
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itsarumdo
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# 18174

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quote:
Originally posted by justlooking:
...In this case the parent removed a very sick child without any discharge arrangements and the hospital would have been failing in its duty of care if it took no action.

As I said previously, "Duty of Care" is a legal term.

This is one of the obfuscations around this case - what is legal as opposed to what is "right". The legalities of relationship and responsibility may affect how some one is allowed to act (or expected to act), but they do not define right action.

You're not alone in using legal terms in an essentially moral argument, because the legal principles have deeply infiltrated societal ways of thinking about this.

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North East Quine

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# 13049

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Originally posted by Justinian:

quote:
According to Mr. King himself, the last thing he spoke with the hospital about with respect to treatment was taking Ashya off all cancer treatment. His subsequent actions that the hospital saw are entirely in line with the idea that he was doing this.

Do you believe that Mr. King should have been allowed to completely take Ashya off all cancer treatment? Just because he is the father?

But this is where the massive breakdown in communication came about. Mr King stopped talking to the hospital because he feared being banned from his very sick son's bedside. He wasn't trying to take Ashya off all cancer treatment - the Prague hospital confirms that he was in contact with them, discussing radiotherapy in the form of Proton therapy. Indeed, he was trying to sell a property in order to pay for this treatment.

If Mr King hadn't been afraid of legal repercussions, he'd have been able to tell the hospital exactly what he hoped to do - and possibly Ashya could have been transferred straight from Southampton to Prague.

The big question to me is - how did a situation arise in which loving parents feared being banned from their child's hospital bedside because they were seeking alternative treatments? Had they misunderstood? Had someone at the hospital expressed themselves badly? How did this happen?

It seems to me that everything that happened thereafter flows from that.

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Justinian
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# 5357

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quote:
Originally posted by L'organist:
Bottom line is one must seriously question the gumption of 'the authorities' if the result of your concerns - however much you may feel them to be justified - is that a small child ends up in a foreign hospital without Mum or Dad, denied visits from siblings, unable to speak and being cared for by staff unable to communicate with him.

Do tell me which part of that makes any kind of sense.

The part where in this situation the child is more likely to survive than they would have been had the hospital not acted. It's not a good situation. But are you saying that it's a worse situation than letting the parents kill their child by neglect? Which is what in his own account Mr. King communicated to the hospital he was going to do.

His current story makes little sense from a practical standpoint. He was found over 1000 miles from the hospital he claims Ashya is going to be treated in. The child was not being given the chaemotherapy that is necessary before Ashya starts Proton Beam Radiotherapy. He was not under the care of any medical professional who would know the symptoms of things getting worse. And with four months for Ashya to live, Mr. King needs to sell a house before he can fund treatment. If he really is going for Proton Beam Radiotherapy then he has delayed it happening - and would have delayed it further had the state not stepped in. With such things the longer you wait the worse the prognosis.

quote:
I think we can all see from this just how effective, caring, compassionate and intelligent a parent the state makes - but that is a better bet?
So the problem you have with the authorities is that they did not talk to each other - when Mr. King was actively not talking to the hospital. And that Ashya was away from his parents for about a day?

I'm not sure which side is worse. But I do know that the initial major fuckup that triggered this came from Mr. King. Based on his own words. So yes, I'd have to say that if he, as he says, asked the hospital about cessation of any treatment, stopped talking to them after the response, and then took Ashya away just before treatment (chaemotherapy) that was a necessary precondition for his favoured treatment was about to start, then he has done even worse on all counts than the state has.

The state shouldn't and doesn't (normally) step in when parents behave sensibly. In this situation, with the State fucking up by the numbers, they are still doing more to help Ashya than if they hadn't stepped in.

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Figbash

The Doubtful Guest
# 9048

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quote:
Originally posted by itsarumdo:

This is one of the obfuscations around this case - what is legal as opposed to what is "right". The legalities of relationship and responsibility may affect how some one is allowed to act (or expected to act), but they do not define right action.

You're not alone in using legal terms in an essentially moral argument, because the legal principles have deeply infiltrated societal ways of thinking about this.

I thought it was a legal argument myself. Apart from anything else, as there is no such thing as intrinsic or absolute morality, asking whether the actions of the authorities or the parents were 'right' is a pointless exercise, as you will get as many answers as you ask people. As law, on the other hand, is well-defined and agreed on, at least debating lawfulness can lead to a meaningful argument.

The basic issue underpinning any moral discussion (if you believe one even possible) is that I commented on above as regards the relative priority of the parents' right of 'ownership' of the child, and the child's own inalienable human rights. As I noted, in the UK, the parents' 'ownership' is not recognised, while the child is recognised as having inalienable rights. In other legal systems (and in certain fringe religions) the parents win out.

Once we have concluded that the child's rights are pre-eminent, then we must consider whether the parents will always act in their best interest. The answer, obviously, must be no. Therefore mechanisms are required to deal with cases where the parents' desires are clearly not in accordance with the child's inalienable rights. Now, you may believe that when parents make demands about medical treatment, and discuss same in such a way as to make it clear that they have no real understanding of the subject and are, essentially, risking their child's health for the sake of a fantasy, that is in accord with the child's needs; I do not. And that judgement is all that is needed. Right and wrong do not (and should not) enter into it.

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Justinian
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quote:
Originally posted by North East Quine:
Originally posted by Justinian:

quote:
According to Mr. King himself, the last thing he spoke with the hospital about with respect to treatment was taking Ashya off all cancer treatment. His subsequent actions that the hospital saw are entirely in line with the idea that he was doing this.

Do you believe that Mr. King should have been allowed to completely take Ashya off all cancer treatment? Just because he is the father?

But this is where the massive breakdown in communication came about. Mr King stopped talking to the hospital because he feared being banned from his very sick son's bedside. He wasn't trying to take Ashya off all cancer treatment - the Prague hospital confirms that he was in contact with them, discussing radiotherapy in the form of Proton therapy. Indeed, he was trying to sell a property in order to pay for this treatment.

If Mr King hadn't been afraid of legal repercussions, he'd have been able to tell the hospital exactly what he hoped to do - and possibly Ashya could have been transferred straight from Southampton to Prague.

The big question to me is - how did a situation arise in which loving parents feared being banned from their child's hospital bedside because they were seeking alternative treatments? Had they misunderstood? Had someone at the hospital expressed themselves badly? How did this happen?

It seems to me that everything that happened thereafter flows from that.

At that point we can go by Mr. King's words. He asked what would happen if he stopped any treatment. The hospital understood stopping any treatment to mean leaving the patient with no treatment - which would mean letting the kid die. At that point he got told that denying the kid treatment would be treated as life threatening neglect - as indeed it would be.

There is a possibility that he meant stopping any one treatment and the hospital took it differently and that's where the miscommunication happened.

At this point he himself says he became uncommunicative. If he was misunderstood he made no attempt to clean it up and got in the way of any attempts by the hospital to clean it up.

We don't have the hospital's side of the story because of Data Protection issues.

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justlooking
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# 12079

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quote:
Originally posted by itsarumdo:
quote:
Originally posted by justlooking:
...In this case the parent removed a very sick child without any discharge arrangements and the hospital would have been failing in its duty of care if it took no action.

As I said previously, "Duty of Care" is a legal term.

This is one of the obfuscations around this case - what is legal as opposed to what is "right". The legalities of relationship and responsibility may affect how some one is allowed to act (or expected to act), but they do not define right action.

You're not alone in using legal terms in an essentially moral argument, because the legal principles have deeply infiltrated societal ways of thinking about this.

Googling 'Duty of Care in English Law' produces a useful summary in wikipedia Including these snippets:

quote:
In English tort law, an individual may owe a duty of care to another, to ensure that they do not suffer any unreasonable harm or loss. If such a duty is found to be breached, a legal liability is imposed upon the tortfeasor to compensate the victim for any losses they incur. The idea of individuals owing strangers a duty of care – where beforehand such duties were only found from contractual arrangements – developed at common law, throughout the 20th century.
quote:
There are a number of distinct and recognisable situations in which the courts recognise the existence of a duty of care.

Examples include

one road-user to another
employer to employee
manufacturer to consumer
doctor to patient
solicitor to client
teacher to student

In this case the primary duty of the hospital is to the child who is its patient.
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North East Quine

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Originally posted by Justinian:

quote:
At this point he himself says he became uncommunicative.
I think most parents would become uncommunicative if they feared being banned from their sick child's hospital bedside. It would certainly shut me up.

As you say, Data Protection means that we don't know what the hospital say they told Mr King. But whatever it was, and however they meant him to interpret it, this seems to be the point at which everything went to hell in a handbasket.

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Matt Black

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Orfeo, if you really find yourself unable to sleep, knock yourself out on these; you're welcome!

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orfeo

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# 13878

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quote:
Originally posted by Figbash:
quote:
Originally posted by orfeo:
Your argument is lacking in logic. How did the doctor/patient relationship arise in the first place? Did Ashya create it?

No. Children of that age have no capacity to enter into a doctor/patient relationship, and so they also lack the capacity to end it. Their parents make those decisions.

Your argument is lacking in reference to certain important facts. Southampton is a part of the United Kingdom, and not the United States of America.

It may be the case that US law recognises the parents of a child as the ultimate authority when it comes to making decisions on behalf of the child. UK law does not. In the UK it is acknowledged that parents do not always represent the best interests of their children and, when it is determined that such is that case, the state undertakes to represent the child's best interests.

In other words: in the US the child may be regarded as lying solely within the parents' dominion, and the rights of the parents to exercise said dominion are considered paramount, but in the UK the child is regarded as an individual, with rights which are considered more significant than those of the parents in those cases where the parents do not appear to have the child's best interests in mind. You may consider that illogical, but then, from a UK perspective the US position appears to be an abusers' charter.

Interestingly, this confusion is suffered also by Jehovah's Witnesses: their website explicitly states that parents do have absolute dominion over children, quoting the US Supreme Court as legal evidence to back this up. It does not seem to occur to them the the US Supreme Court does not hold sway outside of the US. As Jehovah's Witnesses emphasise the belief that parents do hold absolute sway, it is perhaps not surprising that they would, inevitably see the (child favouring) UK position as an affront to their sensibilities.

1. My point was that the child lacks decision-making capacity, given the assertion that the child is the patient. I'm fairly sure that the UK doesn't allow children aged 5 to enter contracts or do anything else that requires legal capacity.

2. I'm not American.

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orfeo

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# 13878

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quote:
Originally posted by Matt Black:
Orfeo, if you really find yourself unable to sleep, knock yourself out on these; you're welcome!

Thankfully, I'm feeling tired. [Biased]

But, you never know, if I feel the need for a bit of light reading in a break tomorrow from wrestling with my own horribly knotty legal problems (this week being knottier than usual)...

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Technology has brought us all closer together. Turns out a lot of the people you meet as a result are complete idiots.

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itsarumdo
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# 18174

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quote:
Originally posted by justlooking:
...

There are a number of distinct and recognisable situations in which the courts recognise the existence of a duty of care.
...

In this case the primary duty of the hospital is to the child who is its patient.

quote:
Originally posted by Figbash:
... dah de hah de dah...

Once we have concluded that the child's rights are pre-eminent, then we must consider whether the parents will always act in their best interest. The answer, obviously, must be no. Therefore mechanisms are required to deal with cases where the parents' desires are clearly not in accordance with the child's inalienable rights. Now, you may believe that when parents make demands about medical treatment, and discuss same in such a way as to make it clear that they have no real understanding of the subject and are, essentially, risking their child's health for the sake of a fantasy, that is in accord with the child's needs; I do not. And that judgement is all that is needed. Right and wrong do not (and should not) enter into it.

There are far too many legalisms here.

Although duty of care developed as common law, it is a direct genetic descendant of the health and safety at work act - see my post further up. Duty of care is a jobs worth far more than a real duty. It's a legal contrivance that has entered the popular culture and stopped anyone having to think hard about their actions. With it has come blatant disregard for people's self-determination, because it all comes down to what can and cannot be enforced by the law, not what is reasonable behaviour of one human being to another.

And making the law the final arbiter of morality is utterly nonsensical - anyone who opposed Stalin's psychiatric wards for political prisoners would be anti-morality (to give just one example). They would be by definition immoral. Take a holiday in Saudi Arabia and enjoy the morality of the religious police. Realise that if you go to Singapore with long hair, you are not only illegal, but are committing an immoral act. Just because someone can squirrel away money in Grand Cayman under their laws in a way that is illegal in most other parts of the world does't make that act moral just as long as you live on Grand Cayman.

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BroJames
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# 9636

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quote:
Originally posted by itsarumdo:
Although duty of care developed as common law, it is a direct genetic descendant of the health and safety at work act - see my post further up.

This is an exact reversal of the actual historical reality.

The Health and safety at Work Act 1974 follows over 40 years after the basic establishment of the neighbour principle in Donoghue v Stevenson in 1932.

The general duty upon individuals to take reasonable care in their actions or omissions, so as not to cause harm to others proximate to them, was multiply established in case law before the Health and Safety at Work Act.

The Act is essentially a statutory formalisation of that pre-existing principle in the workplace setting, and makes its enforcement not merely a chance of which victims can afford to sue, but of the criminal law.

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justlooking
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# 12079

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itsarumdo - whatever you think about the legal concept of duty of care it has been applied in the case under discussion by making the child a ward of court. Self-determination works for competent adults but a young child, especially a very sick child, cannot determine much for himself. In this case the wardship is to protect his rights and interests which doesn't mean making decisions according to what any particular adult may think is right. It means assessing the views of all interested parties and looking at the situation from the child's point of view before determining what is in his best interests.
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Matt Black

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Bro James is correct, hence the old tort lawyers' joke about health and safety legislation developing at a snail's pace after the snail's case.

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JoannaP
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# 4493

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quote:
Originally posted by orfeo:
My point was that the child lacks decision-making capacity, given the assertion that the child is the patient. I'm fairly sure that the UK doesn't allow children aged 5 to enter contracts or do anything else that requires legal capacity.

Can you provide any evidence for the claim that to be a patient requires legal capacity rather than just to be in receipt of medical care?

What is the correct term used to designate a person in a coma in an Intensive Care Unit?

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"Freedom for the pike is death for the minnow." R. H. Tawney (quoted by Isaiah Berlin)

"Those who would give up essential Liberty, to purchase a little temporary Safety, deserve neither Liberty nor Safety." Benjamin Franklin

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L'organist
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# 17338

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The fact remains that at no time during Ashya's time in Southampton General show any signs of mistreating the boy. Sure, they questioned the medical staff and asked about possible treatments - but wouldn't you?

They decided to explore other avenues towards treatment for their son having been told that what seemed to be the course that would have the fewest side effects was not an option when all the information on the WWW is that PBT is ideal for the treatment of medulloblastoma.

And they questioned also starting him on chemotherapy because it is frequently the case that chemotherapy is given AFTER radiotherapy for the simple reason that chemo leaves a patient so debillitated that they aren't up to the rigours of radiotherapy. This certainly holds good for the treatment of brain tumours at the Chelsea & Westminster to my certain knowledge.

The doctors at Southampton are now saying they were happy to send scans, etc, to the hospital in Prague; but I know from personal experience that if you question treatment plans and seek a second opinion some doctors take this as a personal affront and don't hand over information.

As for the Kings being found 1000 miles away from the hospital in Prague, Mr King has stated from the beginning that they had gone to Spain to put property on the market, the sale of which will fund Ashya's treatment. Yes, we've now heard that the NHS will pay the cost of all or some of it but do you really think that offer would have been forthcoming if there hadn't been all this publicity?

I can't help feeling that fairly near to the surface of the UK medics minds was the fact that the Kings are JWs: when you couple that with them not mutely following the course outlined for their son unquestioningly you can see how this dreadful situation arose.

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St. Stephen the Stoned
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# 9841

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quote:
Originally posted by L'organist:

I can't help feeling that fairly near to the surface of the UK medics minds was the fact that the Kings are JWs: when you couple that with them not mutely following the course outlined for their son unquestioningly you can see how this dreadful situation arose.

That and the fact that the mother and children are somewhat brown of skin.

Early reports made a point of saying that the parents' religion would not be mentioned. At some time this policy was changed, and we were allowed to know that they are Jehovah's Witnesses, perhaps to let us know that they are not (whisper) Muslims.

Someone hit the panic button anyway. Do you think we'll ever find out who?

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itsarumdo
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quote:
Originally posted by BroJames:
quote:
Originally posted by itsarumdo:
Although duty of care developed as common law, it is a direct genetic descendant of the health and safety at work act - see my post further up.

This is an exact reversal of the actual historical reality.

The Health and safety at Work Act 1974 follows over 40 years after the basic establishment of the neighbour principle in Donoghue v Stevenson in 1932.

The general duty upon individuals to take reasonable care in their actions or omissions, so as not to cause harm to others proximate to them, was multiply established in case law before the Health and Safety at Work Act.

The Act is essentially a statutory formalisation of that pre-existing principle in the workplace setting, and makes its enforcement not merely a chance of which victims can afford to sue, but of the criminal law.

Thankyou, Bro - I can't quite understand why this specific issue stirs me up quite so much, though the theme of being powerless against authority I guess does ring a lot of bells

I wan't so much referring to the Act itself, as the absorption into popular culture of the principles, and the gradual expansion of the Act or its general gesture into almost every crevice of activity. We've been legalised. Which I guess might not seem so bad if you're a lawyer [Smile]

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Zacchaeus
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# 14454

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The hospital have said all along that the Kings were offered a second opinion, which they never took up
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Justinian
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quote:
Originally posted by L'organist:
The fact remains that at no time during Ashya's time in Southampton General show any signs of mistreating the boy. Sure, they questioned the medical staff and asked about possible treatments - but wouldn't you?

No active abuse. But according to Mr. King's own account he was talking about stopping his son having any treatment. And then took the son away just ahead of treatment. Characterising this as as standard case of "asking about possible treatments" is a misrepresentation. The two combine into a fairly obvious sign. It's incorrect.

But there are two readings.
The Hospital's reading. Mr King is basically going to kill his son through refusing treatment. If they don't act fast and hard Ashya will die.

What was actually going on. Mr King was merely fucking up his son's treatment, dragging him thousands of miles away and delaying treatment that was a necessary precondition of what is, for children, an experimental procedure.

quote:
when all the information on the WWW is that PBT is ideal for the treatment of medulloblastoma.
Really? Macmillan doesn't list it. The NIH calls it under investigation. And those are my top two hits when I google "Medulloblastoma treatment".

quote:
And they questioned also starting him on chemotherapy because it is frequently the case that chemotherapy is given AFTER radiotherapy for the simple reason that chemo leaves a patient so debillitated that they aren't up to the rigours of radiotherapy.
And yet the hospital in Prague said otherwise. "The centre said Dr Nicolin had confirmed that Ashya must first undergo two cycles of chemotherapy, which are expected to take several weeks."

So it's your medical opinion vs the medical opinion of the hospital offering the Proton Beam Therapy. Right.

quote:
As for the Kings being found 1000 miles away from the hospital in Prague, Mr King has stated from the beginning that they had gone to Spain to put property on the market, the sale of which will fund Ashya's treatment.
In short Mr. King added "Dealing with estate agents" to an already tight timescale. As well as adding "Disrupted the chaemotherapy the hospital in Prague thinks is necessary" to the tight timescale.

There was no clinical need at all to do this. Mr. King could have gone to Spain on his own rather than completely messing up his son's medical care, delaying any possibility of his favoured medical treatment, and dragging his son literally thousands of miles.

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Gracie
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quote:
Originally posted by Justinian:

In short Mr. King added "Dealing with estate agents" to an already tight timescale. As well as adding "Disrupted the chaemotherapy the hospital in Prague thinks is necessary" to the tight timescale.

Can you point to any evidence to prove that any assurance was given to Mr King before he left the hospital with his son that the chemotherapy was in preparation for the proton bean treatment or indeed that the hospital in Southampton had taken at all seriously his request for his son's medical inforamtin to be passed on to the centre in Prague?

I believe that it is just as plausible to believe that there has subsequently been decision between Prague and Southampton hospitals and that they have agreed on preparatory chemotherapy to save face for the hospital in Southampton.

Also from further up the thread - I have listened a number of time to what Mr King has been saying and it was clear that the question was, what would happen if they refused any specific treatment (i.e. radiotherapy with devastating side effects) and most definitely not all treatment.

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Doublethink.
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quote:
Originally posted by North East Quine:
Originally posted by orfeo:

quote:
Does the local hospital my nephew was born in have an obligation to be certain my nephew is being looked after? Is there some sort of roving duty of care in relation to all children in the area?
Pretty much. The hospital check that, for example, if the parents are taking their newborn baby home by car, they are doing so in a properly fitted car seat. You can't just waltz out of hospital and put a baby in an unsecured carrycot on the back seat. Not here, anyway.

Once you're home, there are follow-up visits by a midwife, and then by a health visitor. Plus you're expected to show up regularly to have your baby weighed at a clinic. I'm not sure at what point alarm bells would start ringing if you kept your baby away from all health professionals, but it would happen at some point.

Also (voice of bitter experience) if your child hasn't been fully vaccinated (because your child had an adverse reaction to the first vaccination and your GP refused to give the second, and this is fully documented on your child's medical records) there are reassessments every few years of your child's not-fully-vaccinated status.

Voice of depressing experience, if you don't register the baby with a gp - healthcare professionals get very worried. In that case despite strenuous efforts to keep in touch with mum, she eventually left the child with her unsafe alcoholic mother - lost custody of child at 6 weeks, fortunately birth father was willing to raise the child with his new partner & safe to do so.

Essentially, NHS / social care have to have a reason to be worried to start following things up very assertively. But are also all under a legal and professional duty to prioritise the safety of the child. If you believe a child to be in danger, not reporting it is not an option. Likewise in the case of a vulnerable adult.

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All political thinking for years past has been vitiated in the same way. People can foresee the future only when it coincides with their own wishes, and the most grossly obvious facts can be ignored when they are unwelcome. George Orwell

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JoannaP
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# 4493

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quote:
Originally posted by Gracie:
Also from further up the thread - I have listened a number of time to what Mr King has been saying and it was clear that the question was, what would happen if they refused any specific treatment (i.e. radiotherapy with devastating side effects) and most definitely not all treatment.

So why would the chief paediatrician lie? Do you believe that Mr King is also accurate when he says that the staff at Southampton hospital were going to kill Ashya or turn him into a vegetable?

A couple of people have suggested that the hospital staff were prejudiced against the Kings because they are Jehovah's Witnesses; I am wondering if the boot is on the other foot and the Kings were predisposed not to trust the hospital staff.

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"Those who would give up essential Liberty, to purchase a little temporary Safety, deserve neither Liberty nor Safety." Benjamin Franklin

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Justinian
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quote:
Originally posted by Gracie:
quote:
Originally posted by Justinian:

In short Mr. King added "Dealing with estate agents" to an already tight timescale. As well as adding "Disrupted the chaemotherapy the hospital in Prague thinks is necessary" to the tight timescale.

Can you point to any evidence to prove that any assurance was given to Mr King before he left the hospital with his son that the chemotherapy was in preparation for the proton bean treatment or indeed that the hospital in Southampton had taken at all seriously his request for his son's medical inforamtin to be passed on to the centre in Prague?
Can you point to any evidence to prove with any assurance that Mr. King had even told the hospital he was talking to the centre in Prague, let alone asked Southampton to transfer the notes? He himself said of his own actions "So from that moment on I had to keep everything quiet." He also seems to have even turned down the standard offer of a second opinion.

I agree that it is very unlikely he intended to take his son off all treatment. On the other hand he seems to have conveyed that impression to the hospital and what he said in at least one of the interviews would have given me that impression. Especially given his self-admitted subsequent secrecy followed by taking his son away from treatment.

quote:
Also from further up the thread - I have listened a number of time to what Mr King has been saying and it was clear that the question was, what would happen if they refused any specific treatment (i.e. radiotherapy with devastating side effects) and most definitely not all treatment.
He's phrased it in multiple ways. And it is clear that from the proceedures that is where the communication screw-up happened. The hospital's representative reacted with horror to the idea of the kid not having any treatment at all - and understandably so. What he intended to ask was what would happen if he refused any single treatment - rather than any treatment at all.

Once the communication reached the point of believing the father was thinking seriously of refusing any treatment at all the hospital's hands were tied. There is very little else they could have done. There are two questions - the first is what was actually said, and the second is whether the communication could have been recovered. The chance of recovering the communication is, to me, answered by Mr King's statement that "So from that moment on I had to keep everything quiet."

Referring patients to private treatment is almost SOP. Especially in cases like cancer where there is little evidence that the treatment is better - but people want to try everything.

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orfeo

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# 13878

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quote:
Originally posted by JoannaP:
quote:
Originally posted by orfeo:
My point was that the child lacks decision-making capacity, given the assertion that the child is the patient. I'm fairly sure that the UK doesn't allow children aged 5 to enter contracts or do anything else that requires legal capacity.

Can you provide any evidence for the claim that to be a patient requires legal capacity rather than just to be in receipt of medical care?

What is the correct term used to designate a person in a coma in an Intensive Care Unit?

You're now paraphrasing what I said as "a child isn't a patient". What I actually said was about the beginning and ending of a doctor/patient relationship. You can claim all you like that only the actual patient has power over the doctor/patient relationship, but it's clearly not true because newborn infants do not choose their doctors.

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orfeo

Ship's Musical Counterpoint
# 13878

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quote:
Originally posted by JoannaP:
quote:
Originally posted by orfeo:
My point was that the child lacks decision-making capacity, given the assertion that the child is the patient. I'm fairly sure that the UK doesn't allow children aged 5 to enter contracts or do anything else that requires legal capacity.

Can you provide any evidence for the claim that to be a patient requires legal capacity rather than just to be in receipt of medical care?

What is the correct term used to designate a person in a coma in an Intensive Care Unit?

You're now paraphrasing what I said as "a child isn't a patient". What I actually said was about the beginning and ending of a doctor/patient relationship. You can claim all you like that only the actual patient has power over the doctor/patient relationship, but it's clearly not true because newborn infants do not choose their doctors.

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Technology has brought us all closer together. Turns out a lot of the people you meet as a result are complete idiots.

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Gracie
Shipmate
# 3870

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quote:
Originally posted by JoannaP:
quote:
Originally posted by Gracie:
Also from further up the thread - I have listened a number of time to what Mr King has been saying and it was clear that the question was, what would happen if they refused any specific treatment (i.e. radiotherapy with devastating side effects) and most definitely not all treatment.

So why would the chief paediatrician lie? Do you believe that Mr King is also accurate when he says that the staff at Southampton hospital were going to kill Ashya or turn him into a vegetable?

A couple of people have suggested that the hospital staff were prejudiced against the Kings because they are Jehovah's Witnesses; I am wondering if the boot is on the other foot and the Kings were predisposed not to trust the hospital staff.

I can think of very obvious reasons why he would lie - or put a particular gloss - on what happened, not least to protect himself. It happens all the time.

As I have already suggested a few pages back, what seems likely to me is that the doctor threatened getting a protection order thinking this would bring Mr and Mrs King "in line" - scare them into cooperating. Whereas in fact the plan backfired and had the opposite effect. A lot of doctors expect people to trust them completely and do not like to have their authority questioned.

quote:
Originally posted by Justinian:

The chance of recovering the communication is, to me, answered by Mr King's statement that "So from that moment on I had to keep everything quiet."

Which was several days after Mr King gave the doctor the email from the hospital in Prague requesting the child's detailed information, with absolutely no response from the doctor.

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justlooking
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# 12079

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quote:
Originally posted by orfeo:

You can claim all you like that only the actual patient has power over the doctor/patient relationship, but it's clearly not true because newborn infants do not choose their doctors.

Has anybody claimed that?

As far as I can see the argument is that the doctor's duty of care is to the patient, however young that patient may be. Parents may choose a doctor for a child but they cannot control the doctor/patient relationship.

[ 04. September 2014, 21:54: Message edited by: justlooking ]

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North East Quine

Curious beastie
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Originally posted by Joanna P:

quote:
Do you believe that Mr King is also accurate when he says that the staff at Southampton hospital were going to kill Ashya or turn him into a vegetable?
In the first YouTube video Mr King says that one doctor spoke of following "the Milan protocol." That's been in the news because of the case of Claudia Burkill

Claudia has survived a cancer previously considered unsurvivable. However, the treatment has left her blind, with brain damage, limited ability to communicate, tube fed and with limited mobility.

If I were Mr King, and the Milan protocol was being proposed for my child, with Claudia Burkill held out as a beacon of hope, I'd be terrified. I'd probably be looking for alternatives, too.

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orfeo

Ship's Musical Counterpoint
# 13878

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quote:
Originally posted by justlooking:
quote:
Originally posted by orfeo:

You can claim all you like that only the actual patient has power over the doctor/patient relationship, but it's clearly not true because newborn infants do not choose their doctors.

Has anybody claimed that?

As far as I can see the argument is that the doctor's duty of care is to the patient, however young that patient may be. Parents may choose a doctor for a child but they cannot control the doctor/patient relationship.

When I suggested that the parents had ended the doctor/patient relationship, JoannaP responded by saying the child was the patient rather than the parents. Draw your own conclusion as to what claim that entails.

Honestly, parts of this conversation feel to me like they ignore the reality that parents make decisions for their children every second of the day without needing court papers to empower them to do so. Parents making decisions for their children IS the default position. There may well be areas where the law says that parents don't have sole control, but nowhere was I asserting children were property. Children are one of the classes of people not making decisions (as are coma patients), and the law does NOT leave some kind of limbo where no one can make decisions. It is not the case that family members of coma patients are told they can't act and that everyone has to wait until the coma patient wakes up.

Admitting that the parent chooses the doctor MEANS the parent controls the doctor/patient relationship. What's the alternative? That you can never switch doctors? That once my mother took me to a GP, I was legally bonded to that GP until I was a teenager?

[ 04. September 2014, 22:23: Message edited by: orfeo ]

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Technology has brought us all closer together. Turns out a lot of the people you meet as a result are complete idiots.

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orfeo

Ship's Musical Counterpoint
# 13878

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Let me put the point another way, lest I get another round of people talking to me as if I'd said that it was fine if a child didn't get treated by anyone at all.

I'm talking about the relationship between a specific doctor and a specific patient. That's what a doctor/patient relationship is.

As North East Quine and Gracie have set out quite well, there may well have been a miscommunication between the parents and the hospital about whether the father meant "I don't want my son treated" or "I don't want my son treated HERE, BY YOU".

They are 2 different questions. I accept that the parents have an obligation to ensure that their son is treated. I've accepted that from the very beginning. I've said from the beginning that not getting your child any kind of treatment is a form of neglect.

What I've also been trying to point out, from very early on, is that it's the parents that decide which medical treatment is delivered from the range of options and who by.

When people tell me the child isn't the property of the parents, I really should have responded "neither is he the property of Southampton Hospital". It is highly questionable that the parents had any obligation to have their son treated at Southampton Hospital. Neither is it likely they had any obligation to tell Southampton Hospital where their son would be taken or treated.

[ 04. September 2014, 22:40: Message edited by: orfeo ]

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Technology has brought us all closer together. Turns out a lot of the people you meet as a result are complete idiots.

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