homepage
  roll on christmas  
click here to find out more about ship of fools click here to sign up for the ship of fools newsletter click here to support ship of fools
community the mystery worshipper gadgets for god caption competition foolishness features ship stuff
discussion boards live chat cafe avatars frequently-asked questions the ten commandments gallery private boards register for the boards
 
Ship of Fools


Post new thread  Post a reply
My profile login | Register | Directory | Search | FAQs | Board home
   - Printer-friendly view Next oldest thread   Next newest thread
» Ship of Fools   » Community discussion   » Hell   » Cancer SUCKS (Page 13)

 - Email this page to a friend or enemy.  
Pages in this thread: 1  2  3  ...  10  11  12  13 
 
Source: (consider it) Thread: Cancer SUCKS
Stercus Tauri
Shipmate
# 16668

 - Posted      Profile for Stercus Tauri   Email Stercus Tauri   Send new private message       Edit/delete post   Reply with quote 
quote:
Originally posted by mr cheesy:
From the link I posted above:

The 5-year Disease-Free Survival (DFS) rates were 84% for letrozole and 81.4% for tamoxifen.

There is some other information, but that seems to be the overall message.

What can you actually do with those numbers? After 5 years, will you be 84% alive? If 16 people out of 100 will be dead, how do you know which group you are in? You don't know, and I find this approach really unhelpful. The statistics are mainly useful to the medics for assessing the effectiveness of the drugs over a large population of cancer patients, but they are no damn use whatsoever to the individual other than in providing a very rough indication of risk. It can't be stated too often that each patient is an individual data point, and nobody can say, especially at an early stage, where we will make our final mark on the survival graph. I am sure the best advice is to live according to how you feel. If you feel well, live life to the full. If not feeling so well, proceed carefully but enjoy it anyway.

--------------------
Thay haif said. Quhat say thay, Lat thame say (George Keith, 5th Earl Marischal)

Posts: 862 | From: On the traditional lands of the Six Nations. | Registered: Sep 2011  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

 - Posted      Profile for Rossweisse     Send new private message       Edit/delete post   Reply with quote 
I still like knowing the odds.

--------------------
I'm not dead yet.

Posts: 14636 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Lamb Chopped
Ship's kebab
# 5528

 - Posted      Profile for Lamb Chopped   Email Lamb Chopped   Send new private message       Edit/delete post   Reply with quote 
Some of us are just like that. In my case, it's how I manage my anxiety about my sister. Though her odds are worse than those quoted.

I want to know as much as I can.

--------------------
Er, this is what I've been up to (book).
Oh, that you would rend the heavens and come down!

Posts: 19961 | From: off in left field somewhere | Registered: Feb 2004  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

 - Posted      Profile for Rossweisse     Send new private message       Edit/delete post   Reply with quote 
quote:
Originally posted by Lamb Chopped:
...I want to know as much as I can.

So do I. Some of the women in my cancer support group would rather not; each to her own taste.

--------------------
I'm not dead yet.

Posts: 14636 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Lamb Chopped
Ship's kebab
# 5528

 - Posted      Profile for Lamb Chopped   Email Lamb Chopped   Send new private message       Edit/delete post   Reply with quote 
My sister prefers not to. She delegated her research duties to me, trusting that I would let her know whatever was necessary (say, a specially targeted useful treatment for her variety of ovarian c). I also undertake not to talk odds and etc. with her.

--------------------
Er, this is what I've been up to (book).
Oh, that you would rend the heavens and come down!

Posts: 19961 | From: off in left field somewhere | Registered: Feb 2004  |  IP: Logged
Lothlorien
Ship's Grandma
# 4927

 - Posted      Profile for Lothlorien   Email Lothlorien   Send new private message       Edit/delete post   Reply with quote 
quote:
Originally posted by Rossweisse:
I'm sorry to hear that, Moo. (It affected a friend of mine so badly that she gave up on it after just a couple of months.) I'm hoping my Ibrance pills keep working for me, since tamoxifen is one of the possibilities my oncologist has mentioned if/when it stops.

My sister took tamoxifen for five years, the standard length down here, after the first mastectomy. Then it returned. More tamoxifen. Various newer drugs are bad for the heart condition she has and it has been discovered that that the breast cancer for her is a rare mutation which repsonds only to tamoxifen. Any time she has stopped the tamoxifen, there has been a return. Twenty years down the track she still takes it and will for the rest of her life.

--------------------
Buy a bale. Help our Aussie rural communities and farmers. Another great cause needing support The High Country Patrol.

Posts: 9340 | From: girt by sea | Registered: Aug 2003  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

 - Posted      Profile for Rossweisse     Send new private message       Edit/delete post   Reply with quote 
quote:
Originally posted by Lamb Chopped:
My sister prefers not to. She delegated her research duties to me...

She's lucky to have you.

Lothlorien, I'm sorry to hear it, but relieved that she does have the tamoxifen.

I have been amazed by some of the things I would have said, pre-cancer, that I could never handle - but which I just deal with now, almost seven years into my new normal. One's perspective does change.

--------------------
I'm not dead yet.

Posts: 14636 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Lothlorien
Ship's Grandma
# 4927

 - Posted      Profile for Lothlorien   Email Lothlorien   Send new private message       Edit/delete post   Reply with quote 
She gets bad hot flushes from it. One particularly bad time is around 9:00 pm every night without fail. Better that than the alternative.

[ 05. October 2017, 21:33: Message edited by: Lothlorien ]

--------------------
Buy a bale. Help our Aussie rural communities and farmers. Another great cause needing support The High Country Patrol.

Posts: 9340 | From: girt by sea | Registered: Aug 2003  |  IP: Logged
Stercus Tauri
Shipmate
# 16668

 - Posted      Profile for Stercus Tauri   Email Stercus Tauri   Send new private message       Edit/delete post   Reply with quote 
quote:
Originally posted by Rossweisse:
quote:
Originally posted by Lamb Chopped:
...I want to know as much as I can.

So do I. Some of the women in my cancer support group would rather not; each to her own taste.
I'm not dead yet either, but the early odds were against me making it this far. Now what? I think I'll just carry on not being dead for a while longer, as I still have a couple of projects to finish.

--------------------
Thay haif said. Quhat say thay, Lat thame say (George Keith, 5th Earl Marischal)

Posts: 862 | From: On the traditional lands of the Six Nations. | Registered: Sep 2011  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

 - Posted      Profile for Rossweisse     Send new private message       Edit/delete post   Reply with quote 
quote:
Originally posted by Stercus Tauri:
I'm not dead yet either, but the early odds were against me making it this far. Now what? I think I'll just carry on not being dead for a while longer, as I still have a couple of projects to finish.

I prayed to be allowed to live long enough to achieve certain things, chiefly seeing my Pater through, and watching my younger daughter get her B.A. - and now those are done.

So I booked a cruise on the Nile for early 2019. Something more to achieve!

--------------------
I'm not dead yet.

Posts: 14636 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Martin60
Shipmate
# 368

 - Posted      Profile for Martin60   Email Martin60   Send new private message       Edit/delete post   Reply with quote 
God speed. What are you doing next year?

--------------------
Love wins

Posts: 16643 | From: Never Dobunni after all. Corieltauvi after all. Just moved to the capital. | Registered: Jun 2001  |  IP: Logged
Leorning Cniht
Shipmate
# 17564

 - Posted      Profile for Leorning Cniht   Email Leorning Cniht   Send new private message       Edit/delete post   Reply with quote 
quote:
Originally posted by Stercus Tauri:
What can you actually do with those numbers? After 5 years, will you be 84% alive? If 16 people out of 100 will be dead, how do you know which group you are in? You don't know, and I find this approach really unhelpful.

This approach is what we know. It is the only honest thing to say.

We know that of patients who look like this, and receive this treatment, about 5/6 will be alive after five years, and 1/6 will be dead. We don't know how to predict which group a particular person is in. (Although this is probably knowable with science that we don't know yet.)

If it was me in that position, I'd be reading medical journals to be sure I understood all the details of the state of our knowledge (actually, first I'd go talk to a colleague who did exactly that a couple of years ago when his wife was diagnosed with breast cancer, and learn what he knows).

But in the big picture, it means someone in that position has a 1/6 chance of being dead in five years. The same odds as Russian roulette.

Posts: 4767 | From: USA | Registered: Feb 2013  |  IP: Logged
SusanDoris

Incurable Optimist
# 12618

 - Posted      Profile for SusanDoris   Author's homepage   Email SusanDoris   Send new private message       Edit/delete post   Reply with quote 
mr cheesy

Thank you for your two further posts. Apologies for delay in responding - I have only just seen them. Even when I had breast cancer 30 years ago, the odds were improving and I was lucky enough to be on the good side that time!I hope I'll be lucky this time too!

--------------------
I know that you believe that you understood what you think I said, but I am not sure you realize that what you heard is not what I meant.

Posts: 2919 | From: UK | Registered: May 2007  |  IP: Logged
SusanDoris

Incurable Optimist
# 12618

 - Posted      Profile for SusanDoris   Author's homepage   Email SusanDoris   Send new private message       Edit/delete post   Reply with quote 
quote:
Originally posted by Stercus Tauri:
I'm not dead yet either, but the early odds were against me making it this far. Now what? I think I'll just carry on not being dead for a while longer, as I still have a couple of projects to finish.

A very sensible philosophy! [Smile]

--------------------
I know that you believe that you understood what you think I said, but I am not sure you realize that what you heard is not what I meant.

Posts: 2919 | From: UK | Registered: May 2007  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

 - Posted      Profile for Rossweisse     Send new private message       Edit/delete post   Reply with quote 
quote:
Originally posted by Martin60:
God speed. What are you doing next year?

So far, I'm going on a parish pilgrimage to Greece and Rome. I'm hoping to get back to London, too.

--------------------
I'm not dead yet.

Posts: 14636 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Uncle Pete

Loyaute me lie
# 10422

 - Posted      Profile for Uncle Pete     Send new private message       Edit/delete post   Reply with quote 
quote:
Originally posted by Uncle Pete:
My cousin, Bill, one of the few close to me in age: diagnosed with myeloma.

How often can you say FUCK?

FUCK to the power of 100 is not enough

This post was in 2015. Bill is still here and has just celebrated his 70th birthday. He has, however, been diagnosed with bowel cancer

He is a loving, gentle man, so like his father who died aged 90, many years back.

Happy Birthday, Bill, said Cancer. By the way, We're back. Did you miss us?

Like fuck.

--------------------
Even more so than I was before

Posts: 20397 | From: No longer where I was | Registered: Sep 2005  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

 - Posted      Profile for Rossweisse     Send new private message       Edit/delete post   Reply with quote 
Oh, hell. I hope Bill kicks its ass again.

--------------------
I'm not dead yet.

Posts: 14636 | From: Valhalla | Registered: Feb 2002  |  IP: Logged



Pages in this thread: 1  2  3  ...  10  11  12  13 
 
Post new thread  Post a reply Close thread   Feature thread   Move thread   Delete thread Next oldest thread   Next newest thread
 - Printer-friendly view
Go to:

Contact us | Ship of Fools | Privacy statement

© Ship of Fools 2016

Powered by Infopop Corporation
UBB.classicTM 6.5.0

 
Check out Reform magazine
sip of fools mugs from your favourite nautical website
 
  ship of fools