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Source: (consider it) Thread: Cancer SUCKS
Lothlorien
Ship's Grandma
# 4927

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[Votive] [Votive]

Having been through several years of ALL with granddaughter, i send sympathy and prayers for all.

Mili, I hope her mother does not feel she has failed. This can happen to any child, regardless of care etc.

[ 21. December 2017, 21:47: Message edited by: Lothlorien ]

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Buy a bale. Help our Aussie rural communities and farmers. Another great cause needing support The High Country Patrol.

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Mili

Shipmate
# 3254

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I hope so too. She has suffered from depression in the past and is a great mother, but almost overcareful with her children's care (not bad, just worries a lot over doing the right thing). I'm praying she can stay strong, but no one would blame her for not coping well given the circumstances.
Posts: 1011 | From: Melbourne, Australia | Registered: Aug 2002  |  IP: Logged
Huia
Shipmate
# 3473

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Mili- [Votive] .

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Charity gives food from the table, Justice gives a place at the table.

Posts: 10258 | From: Te Wai Pounamu | Registered: Oct 2002  |  IP: Logged
Landlubber
Shipmate
# 11055

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Mili, cousin and baby [Votive]

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They that go down to the sea in ships … reel to and fro, and stagger like a drunken man

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Landlubber
Shipmate
# 11055

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Cancer and its recurrences suck. My beloved husband died after Christmas. All of you here living with this taught me to try to help him live, not wait to die. Thank you.

Those of you who ask for prayer, here or elsewhere on the boards, be assured I do pray. Others I do read and please know that I do so while you weep or curse or carry on living.

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They that go down to the sea in ships … reel to and fro, and stagger like a drunken man

Posts: 379 | From: On dry land | Registered: Feb 2006  |  IP: Logged
Moo

Ship's tough old bird
# 107

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[Votive] Landlubber [Votive]

Moo

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Kerygmania host
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See you later, alligator.

Posts: 20341 | From: Alleghany Mountains of Virginia | Registered: May 2001  |  IP: Logged
Uncle Pete

Loyaute me lie
# 10422

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So sorry Landlubber [Votive]

Of your mercy please pray for Claude-Yves, beloved uncle and Parrain of my very dear niece. His body, which fought off cancer three years ago, is now riddled with cancer nodes everywhere, and on nearly every available organ. He is in palliative care.

[Votive]

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Even more so than I was before

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SusanDoris

Incurable Optimist
# 12618

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Landlubber

Much sympathy and condolences. I hope you have all the practical help you need to get you through all that needs to be done, and thereafter the warmth of family and friends.

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I know that you believe that you understood what you think I said, but I am not sure you realize that what you heard is not what I meant.

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Bishops Finger
Shipmate
# 5430

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[Votive] Landlubber.

[Votive] Claude-Yves. May he at least be free from pain.

IJ

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Our words are giants when they do us an injury, and dwarfs when they do us a service. (Wilkie Collins)

Posts: 9794 | From: Behind The Wheel Again! | Registered: Jan 2004  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

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[Votive] For Landlubber.

[Votive] For Claude-Yves.

[Votive] For all in this unpleasant boat.

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Patdys
Iron Wannabe
RooK-Annoyer
# 9397

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my prayers also.

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Marathon run. Next Dream. Australian this time.

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Ian Climacus

Liturgical Slattern
# 944

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[Votive]
Posts: 7759 | From: On the border | Registered: Jul 2001  |  IP: Logged
Curiosity killed ...

Ship's Mug
# 11770

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Really sorry to hear that Landlubber - I was wondering how you were getting on (and remembering your reaction to the ASMS service).

[Votive] Prayers for everyone else posting/posted about here.

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Mugs - Keep the Ship afloat

Posts: 13682 | From: outiside the outer ring road | Registered: Aug 2006  |  IP: Logged
MaryLouise
Shipmate
# 18697

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Landlubber [Votive]

Claude-Yves [Votive]

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“As regards plots I find real life no help at all. Real life seems to have no plots.”

-- Ivy Compton-Burnett

Posts: 567 | From: Cape Town | Registered: Nov 2016  |  IP: Logged
SusanDoris

Incurable Optimist
# 12618

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Chec-up today. Tumour smaller. No other problems, so Consultant said keep on with Letrozole. Next apt in six months, and then if all still going well, discharge. That sounds okay to me!

Ongoing good wishes to all here
.

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I know that you believe that you understood what you think I said, but I am not sure you realize that what you heard is not what I meant.

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Rossweisse

High Church Valkyrie
# 2349

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Brava, SusanDoris! (Ah, yes, Letrozole...)

[ 10. January 2018, 22:09: Message edited by: Rossweisse ]

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Landlubber
Shipmate
# 11055

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Thank you, all.
[Votive] Claude-Yves and all who love him
SusanDoris: have a good six months and a good review next time!
Curiosity killed: you will not be surprised to hear that we are planning a very simple funeral here (although we hope for some good singing at a thanksgiving service later).

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They that go down to the sea in ships … reel to and fro, and stagger like a drunken man

Posts: 379 | From: On dry land | Registered: Feb 2006  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

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I'm awaiting the results of this morning's bone scan, and hoping the cancer hasn't advanced too much. (I've been at this so long that everyone from the woman at the check-in to the techs knows me from earlier visits.)

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Ian Climacus

Liturgical Slattern
# 944

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Ross [Votive]

Susan [Votive]

Claude-Yves [Votive]

Landlubber [Votive]

All, and anyone I've missed (sorry) [Votive]

Posts: 7759 | From: On the border | Registered: Jul 2001  |  IP: Logged
Martin60
Shipmate
# 368

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[Votive] & thanks for all of your courage, to all for your courage.

[ 15. January 2018, 21:43: Message edited by: Martin60 ]

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Love wins

Posts: 17353 | From: Never Dobunni after all. Corieltauvi after all. Just moved to the capital. | Registered: Jun 2001  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

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I just heard that the cancer has progressed further in my bones. Now I'm waiting to hear what that means to me.

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Amanda B. Reckondwythe

Dressed for Church
# 5521

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I am so very sorry to hear that, Rossweisse.

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"Stop your noisy songs; I do not want to listen to your praise bands." -- Amos 5:23, Good News Bible (modified)

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Nicolemr
Shipmate
# 28

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Oh Rossweisse! [Frown] ((hugs))

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On pilgrimage in the endless realms of Cyberia, currently traveling by ship. Now with live journal!

Posts: 11750 | From: New York City "The City Carries On" | Registered: May 2001  |  IP: Logged
Pigwidgeon

Ship's Owl
# 10192

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Rossweisse - More hugs and more prayers.

[Votive]

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Don't keep calm. Go change the world.

Posts: 9659 | From: Hogwarts | Registered: Aug 2005  |  IP: Logged
Ian Climacus

Liturgical Slattern
# 944

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Rossweisse [Votive]
Posts: 7759 | From: On the border | Registered: Jul 2001  |  IP: Logged
Lamb Chopped
Ship's kebab
# 5528

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Dear God.

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Er, this is what I've been up to (book).
Oh, that you would rend the heavens and come down!

Posts: 20035 | From: off in left field somewhere | Registered: Feb 2004  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

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For some reason, the word "progressed," in this context, bothers me. The cancer spread. How is that progress?

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Golden Key
Shipmate
# 1468

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[Votive]

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Blessed Gator, pray for us!
--"Oh bat bladders, do you have to bring common sense into this?" (Dragon, "Jane & the Dragon")
--"Oh, Peace Train, save this country!" (Yusuf/Cat Stevens, "Peace Train")

Posts: 18381 | From: Chilling out in an undisclosed, sincere pumpkin patch. | Registered: Oct 2001  |  IP: Logged
Landlubber
Shipmate
# 11055

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[Votive]

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They that go down to the sea in ships … reel to and fro, and stagger like a drunken man

Posts: 379 | From: On dry land | Registered: Feb 2006  |  IP: Logged
Bishops Finger
Shipmate
# 5430

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[Votive] for Rossweisse.

May that further 'progress' (yes, odd word) soon be arrested.

IJ

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Our words are giants when they do us an injury, and dwarfs when they do us a service. (Wilkie Collins)

Posts: 9794 | From: Behind The Wheel Again! | Registered: Jan 2004  |  IP: Logged
Martin60
Shipmate
# 368

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Rossweisse - your capacity for irony at this time is inspiring.

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Love wins

Posts: 17353 | From: Never Dobunni after all. Corieltauvi after all. Just moved to the capital. | Registered: Jun 2001  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

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I find that a snarky sense of humor is invaluable in dealing with these things.

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Bishops Finger
Shipmate
# 5430

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[Overused]

IJ

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Our words are giants when they do us an injury, and dwarfs when they do us a service. (Wilkie Collins)

Posts: 9794 | From: Behind The Wheel Again! | Registered: Jan 2004  |  IP: Logged
no prophet's flag is set so...

Proceed to see sea
# 15560

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Colleague's husband died this morning in palliative care; we became friends in these weeks. He was frightened and then not any more. I'm at work because what else is there to do until asked.


I'm carrying around "cells" myself, whatever that means via their phrase "watchful waiting". Been wondering if somehow creation required a devil.

Posts: 11295 | From: Treaty 6 territory in the nonexistant Province of Buffalo, Canada ↄ⃝' | Registered: Mar 2010  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

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I am sorry to hear it, no prophet, but grateful that he wasn't afraid at the end.

Cancer (as I have no doubt said before; I find that I repeat myself lately) is the devil.

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Bishops Finger
Shipmate
# 5430

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[Votive] for colleague's husband. RIPARIG.

As you say, best carry on as per usual.

Re 'cells', and 'watchful waiting' - IANAD, but this is a sensible option, if said cells are not actually doing anything harmful.

It's certainly true of some brain tumours, such as meningiomas, many of which are not in themselves malignant. It's only when they start having adverse effects, e.g. seizures, that action needs to be taken, if they haven't been diagnosed earlier. If they have been diagnosed, but are not being naughty, then a 'watching brief' is maintained.

IJ

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Our words are giants when they do us an injury, and dwarfs when they do us a service. (Wilkie Collins)

Posts: 9794 | From: Behind The Wheel Again! | Registered: Jan 2004  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

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Update: I spoke to the oncologist, who told me that the cancer has progressed sufficiently to be a concern. (I'm having a CT scan and a brain MRI in February.) He's changing my meds (the good news there is that I was scheduled to have the Shots from Hell tomorrow, and now I never had to suffer them again).

And when I asked if I should return my new little cat while she's still young and cute enough to be easily adopted, he said no: "I would not plan on an imminent demise." (I do like his way with words.)

Has anyone here had any experience with tamoxifen?

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
no prophet's flag is set so...

Proceed to see sea
# 15560

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Tamoxifen was taken by another friend's wife. We blamed it for giving her another 2½ years of life.

Thanks for the comments re what I posted.

I am trying to determine if 8 cups of tea is too many today, and may I please have several more. I suffer from the delusion that tea cures many ills.

Posts: 11295 | From: Treaty 6 territory in the nonexistant Province of Buffalo, Canada ↄ⃝' | Registered: Mar 2010  |  IP: Logged
Lothlorien
Ship's Grandma
# 4927

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My sister had an unusual type of breast cancer diagnosed first in 1997. Several operations and radiation treatmentslater, it has been discovered that only tamoxifen keeps it away. Every time it has been stopped, the cancer returns , so tamoxifen is taken every single day of her life even if that is another twenty plus years.
.
It does produce an extremely hot flush every evening on the dot of 9:00 pm, even is sister has no idea of actual time.

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Buy a bale. Help our Aussie rural communities and farmers. Another great cause needing support The High Country Patrol.

Posts: 9657 | From: girt by sea | Registered: Aug 2003  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

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Yes, tamoxifen is well-known for its propensity to cause hot flashes. But I'm glad to hear it works so well.

I find it a little amusing that unbearable hot flashes were the chief reason I was put on hormone replacement therapy, which has been associated with breast cancer.

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
RuthW

liberal "peace first" hankie squeezer
# 13

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quote:
Originally posted by Rossweisse:
Has anyone here had any experience with tamoxifen?

My mother took tamoxifen for five years following her treatment at age 60 for breast cancer (lumpectomy and radiation only, as it had not spread to her lymph nodes). She says it gave her hot flashes, and she thinks it may have contributed to the uterine cancer that was removed when she was 70. She is now 81, and her doctor is not at all concerned about a possible recurrence of cancer.

[Votive]

Edit due to X-post: HRT was implicated in my mother's breast cancer as well.

[ 16. January 2018, 21:04: Message edited by: RuthW ]

Posts: 24449 | From: La La Land | Registered: Apr 2001  |  IP: Logged
Moo

Ship's tough old bird
# 107

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I took tamoxifen for more than four years after removal of a stage 1 tumor from my breast. I stopped taking it about ten months ago.

While I was taking it I had hot flashes, but I was having those before I started taking it. After I had been taking it a few months, the doctor specifically asked me whether I had muscle aches and digestive problems. I didn't at the time, but I developed them after about three years. They have continued even though I'm not taking it any more. I'm hoping they stop eventually.

Moo

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Kerygmania host
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See you later, alligator.

Posts: 20341 | From: Alleghany Mountains of Virginia | Registered: May 2001  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

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Thank you, Ruth and Moo.

My oncologist did mention the possibility of uterine cancer, but said he wouldn't recommend a hysterectomy - just yearly pap smears, which I get anyway.

I shall see how it goes (she said, as if there were a choice...).

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Martin60
Shipmate
# 368

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Just stop it will you!

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Love wins

Posts: 17353 | From: Never Dobunni after all. Corieltauvi after all. Just moved to the capital. | Registered: Jun 2001  |  IP: Logged
SusanDoris

Incurable Optimist
# 12618

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quote:
Originally posted by Martin60:
Rossweisse - your capacity for irony at this time is inspiring.

It certainly is. All best wishes, Rossweisse.

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I know that you believe that you understood what you think I said, but I am not sure you realize that what you heard is not what I meant.

Posts: 2987 | From: UK | Registered: May 2007  |  IP: Logged
SusanDoris

Incurable Optimist
# 12618

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quote:
Originally posted by Rossweisse:
Update: I spoke to the oncologist, who told me that the cancer has progressed sufficiently to be a concern. (I'm having a CT scan and a brain MRI in February.) He's changing my meds (the good news there is that I was scheduled to have the Shots from Hell tomorrow, and now I never had to suffer them again).

And when I asked if I should return my new little cat while she's still young and cute enough to be easily adopted, he said no: "I would not plan on an imminent demise." (I do like his way with words.)

Has anyone here had any experience with tamoxifen?

Yes. When I had breast cancer and a lumpectomy 30 years ago , followed by radiotherapy, I was put on Tamoxifen. I took it for years. After five years, people asked me why I was still taking itand I said no doctor has told me to stop! Finally, after ten years, a doctor said to stop, so I did! It had no side effects and whether or not the long time of taking it helped me not to get it again until now, I do not know.

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I know that you believe that you understood what you think I said, but I am not sure you realize that what you heard is not what I meant.

Posts: 2987 | From: UK | Registered: May 2007  |  IP: Logged
SusanDoris

Incurable Optimist
# 12618

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There was no mention of ovarian cancer or anything 30 years ago because I had already had a hysterectomy including removal of most of ovaries at age 37 because of severe endometriosis.
I never had a hot flush! However, I am getting an occasional very mild one now, being on the Letrozole, I presume.

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I know that you believe that you understood what you think I said, but I am not sure you realize that what you heard is not what I meant.

Posts: 2987 | From: UK | Registered: May 2007  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

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quote:
Originally posted by SusanDoris:
It certainly is. All best wishes, Rossweisse.

Thank you!

As for hot flashes, yes, Letrozole will do that.

I'm going out of town tomorrow for a couple of weeks, and my oncologist isn't starting me on the Tamoxifen until after I get back. A vacation from meds!

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged
Stercus Tauri
Shipmate
# 16668

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quote:
Originally posted by Rossweisse:
quote:
Originally posted by SusanDoris:
It certainly is. All best wishes, Rossweisse.

Thank you!

As for hot flashes, yes, Letrozole will do that.

I'm going out of town tomorrow for a couple of weeks, and my oncologist isn't starting me on the Tamoxifen until after I get back. A vacation from meds!

As a self-appointed expert in the field of consumer oncology, I have two pieces of thoroughly tested advice: If your body allows you to do it, a glass of wine every day makes you happier and therefore annoys the cancer; and don't ever lose your sense of humour - feed it and exercise it as often as you can. Or, as my mother in law always advises - Carry on! [Votive] I know; some days it isn't so easy.

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Thay haif said. Quhat say thay, Lat thame say (George Keith, 5th Earl Marischal)

Posts: 892 | From: On the traditional lands of the Six Nations. | Registered: Sep 2011  |  IP: Logged
Rossweisse

High Church Valkyrie
# 2349

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Oh, I always have my glass (or two) of red wine.

When I was 22, I was borderline anemic. My internist at the time said, "I hate to put you on iron pills at your age. Do you like red wine?"

When I replied in the affirmative (duh), he asked how I'd feel about having a glass with my dinner every night. I allowed as how I could probably manage that. I have done so ever since (except when I knew I was pregnant, or was on meds where it was not advised), and I have never been anemic since. I think it's one of the reasons I'm still around. It's a great little analgesic, too.

And snark helps me deal with all the crap as well.

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I'm not dead yet.

Posts: 14958 | From: Valhalla | Registered: Feb 2002  |  IP: Logged



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