Thread: Purgatory: Who knows best - the state or the parents? Board: Limbo / Ship of Fools.


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Posted by seekingsister (# 17707) on :
 
I'm sure many in the UK have seen the story of Ashya, a 5 year old boy whose parents removed him from the hospital against medical advice. A European arrest warrant was issued for them and when apprehended they were jailed and separated from their son.


quote:
A European arrest warrant has been issued for the parents of a five-year-old boy with a brain tumour, missing from hospital since Thursday.

Ashya King was taken out of Southampton General Hospital by his mother and father against medical advice.

Hampshire Police believe he may have been taken to Spain and police are at a Marbella property owned by the family.

It turned out that

1. they were taking him to Europe to receive a treatment currently not approved by the NHS for the child's condition but available abroad

2. They did not break any laws in taking him out of the hospital.

And now charges have been dropped.

BBC News

It seems to me that an undue amount of resources were spent in chasing down this boy and his family, who did nothing other than make a decision about his care which surely is their right.

So - should it be a crime to remove a loved one from hospital to pursue alternative medical treatment?

[ 08. January 2015, 14:40: Message edited by: Barnabas62 ]
 
Posted by Horseman Bree (# 5290) on :
 
We have had several cases of parents refusing blood transfusions (e.g. JWs) or otherwise impacting treatment in ways that were not in the child's best interests. In some cases, those children died or were left with impaired health.

Admittedly not all cases, but enough to make it valid to question the parents' judgment.

And "undue resources" used: surely it is appropriate to attempt to ensure that the child's welfare was being looked after? Do you prefer to let the child disappear with no further requests for information?

At what point does the state (actually, you) have no interest in the welfare of the child? Would you prefer some sort of Victorian-Oliver-Twist sort of child care?

Yes, sometimes the system gets it wrong. Yes, sometimes the parents get it wrong. And sometimes people who don't know about the actual situation get it wrong.

Possibly a tangent, but ISTM related: at what point does the parents' wrongheadedness about vaccination have to be curbed IN THE INTEREST of the other children who may be exposed to diseases unnecessarily? In our crowded and insanitary world, you can't run everything on some vague innuendo that "I saw on the Internet".

Letting Ashya simply disappear makes it much more dangerous for many other kids, if their parent(s) decide to take unilateral action.
 
Posted by Eutychus (# 3081) on :
 
It was interesting watching the media coverage of this unfold in the UK compared to the coverage in France, which was non-existent for at least the first 12 hours or so (I had a special interest, because I'm probably the closest shipmate to where their ferry arrived in France. I was wondering what I would do if I spotted them).

The French police would not issue the "AMBER" style alert, simply because the grounds for doing so were not fulfilled - first and foremost, no offence was committed.

In early UK media coverage, amidst the usual hysteria I noted the child was said to be removed from the hospital "without the hospital's consent".

Excuse me? I thought it was patients that gave or withdrew their consent, not hospitals or doctors (no court order was in place). The French media more correctly recorded "against medical advice".

I also think the hospital misled the police about the seriousness of the situation. They have more to answer for than the police. They wailed about the battery life of the feeding device when apparently it was as easy to recharge as an iPhone.

The parents have done a very good PR job - possibly with outside advice? - which seems to have resulted in a rare victory of common sense via social media.

And I can't help thinking it might well, ironically, do a lot to improve the image of Jehovah's Witnesses.
 
Posted by no prophet (# 15560) on :
 
Discharge was parental controlled disappearance? That's not acceptable. Discharge with a credible health plan even if the doctors disagreed, this may be acceptable unless it was for faith healing or something without data to back it.

As for vaccinations, the new policy here for health workers is either get a 'flu vaccine or when ordered to do so at work, wear proper protection to avoid getting infected or infecting others. I suspect that not being paid for sick days when it is the 'flu and you've not been vaccinated is also the consequence. My employees are told to get vaccinated (free for all here through medicare), and haven't had the issue of considering not paying them if ill with the 'flu.

I don't think it is a problem to order conduct from people for the sake of others. We already do this with various activities, like regulating public drinking and smoking, use of mobile phones, etc. The difference I think is regulating things for the good of the individual and considering that the government or officials know better than the individual. Except that we already require people to go to school and get educated even if they don't want to be there. Thus, there is obviously some middle ground where we must require certain things, and will let other things go.

Not being vaccinated is just plain stupid.
 
Posted by Byron (# 15532) on :
 
Glad the charges have been dropped, and that the family can reunite.

On the issue, parents' rights over their children aren't absolute. They're obliged to act in their child's best interests. If the hospital had reason to believe that their actions had endangered Ashya, they may have acted properly on the info they had.

Right now it looks like a tragic misunderstanding between parents, hospital and prosecutors.
 
Posted by Doublethink (# 1984) on :
 
In certain circumstances, refusing appropriate medical treatment for your child would constitute neglect.

Thresholds for what is held to constitute abuse, and what constitues a crime, are not the same.

I note from Cancer Research UK, proton beam therapy is thought to be appropriate for only about 1% of patients - and the evidence for advantage over conventional treatment is not that great.

Nonetheless, the NHS will send folk abroad for this treatment if a special panel agrees the patient is suitable.

In the King case, it looks as if the medical team and the parents disagreed about whether this was a suitable treatment for their son.

I seriously doubt the only ongoing medical care aside from radiotherapy the child needs is a battery operated feeding mechanism - even if this was the main thing highlighted in press coverage. A tube into the stomach carries infection risk that requires careful management It is said in news reports that he has very little physical movement. This leads to all sorts of other problems that need ongoing management - many of which can become dangerous quickly.

We don't know how exactly the brain tumour effects this child either.

I have no doubt both the medical team and the parents thought they were acting for the best, but That doesn't mean they are right.

Given the police were told the child might die, it seems to me they did the best they could based on the information they had at the time.
 
Posted by Zoey (# 11152) on :
 
The account currently being given in the press is that the family travelled to Spain in order to sell a property they own there, with a view to the proceeds of that sale funding the proton beam therapy. I don't understand why one parent didn't go to sell the Spanish property leaving Ashya and the rest of the family (including the other parent) in the UK, with ongoing medical care, support from friends and family, etc, until the funds had been raised. I also don't understand why the parents carried out their actions in a secretive way. As has been said - they did not kidnap their son and it's not illegal for a parent to remove their child from hospital. But surely the more sensible plan would have been to talk to the hospital about one's proposals i.e. we want to take our child to X medical facility in country Y in order to get Z treatment available there. If hospital and parents had been unable to agree what was in the child's best interests, the case would have gone to court for a determination on that front, but just disappearing from a hospital with a seriously ill child isn't a great plan either. At present, to me, it looks like the family's plans were ill thought-through. I can understand the family feeling desparate and acting irrationally, but also don't think it's fair at this point to criticize the hospital's and police's actions as harshly as some sections of the media appear to be doing. I agree that the state intervention has not been ideal in that it's resulted in Ashya being separated from his parents whilst he has been seriously ill. However, the UK operates on the basis that when a child is at high risk of harm through his or her parents' actions, then the state does intervene. When Ashya's parents didn't return with him to the hospital as expected on Thursday last week, the hospital tried to contact them and was unable to do so. What does the media expect the hospital and the state to have done at that point - shrugged and decided that it didn't matter that a seriously ill child in need of ongoing medical care had disappeared without anybody knowing what arrangements his family might or might not have put in place for his ongoing care?
 
Posted by Zoey (# 11152) on :
 
quote:
Originally posted by Byron:
Right now it looks like a tragic misunderstanding between parents, hospital and prosecutors.

I would agree with this, but argue that most of the responsibility for the 'misunderstanding' / lack of communication lies with the parents - they didn't talk to the hospital about their plans and weren't contactable when hospital staff became worried about Ashya's welfare because he hadn't returned to the hospital as expected. I'm sure the parents were motivated by desperately wanting to do what they felt best for their son, rather than by any malice, but I still think they went about it entirely the wrong way and I'm not sure how the hospital and police would have been expected to react (given that they couldn't contact the family or obtain reassurance about Ashya's welfare) if not in roughly the way they did.
 
Posted by Firenze (# 619) on :
 
And if the publicity generated results in him receiving a therapy which the doctors in his case did not think would be efficacious? That's a lot of expenditure which is not now available for other patients in less dramatic circumstances. A little learning is a dangerous thing, as witness the rise of antibiotic resistant bacteria because of the number of vociferous patients who knew they were what their sniffly kid needed (and line-of-least-resistance doctors).

I realise a medical degree/x years of clinical practice does not make someone infallible, but it still trumps any amount of bopping round the Internet.
 
Posted by Ariel (# 58) on :
 
quote:
Originally posted by seekingsister:
So - should it be a crime to remove a loved one from hospital to pursue alternative medical treatment?

What would the answer be if someone's loved one had Ebola, or some other horribly contagious disease, and was removed from hospital by their family to pursue alternative medical treatment, possibly at home or possibly by a local healer?
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by Zoey:
But surely the more sensible plan would have been to talk to the hospital about one's proposals i.e. we want to take our child to X medical facility in country Y in order to get Z treatment available there.

The father's answer to that, in the first video posted on his behalf, was that when they made these sorts of noises to the hospital they were told a Child Protection Order would be sought if they persisted with that line of argument.

Do you have any idea what it is like to be threatened with losing the custody of your child to the state, or how hard it can be to get it back? I can see how this case might set a terrible precedent for other families, but I can totally sympathise with this family devising a plan to act before the hospital could put such an order in place.

The family's view appears to be that the hospital was basically looking to experiment with radiotherapy despite proven risks. The child, they felt, was to be a guinea pig. Proton beam therapy results appear to be unconfirmed (no better or worse than radiotherapy) but at least do less collateral damage.
 
Posted by Caissa (# 16710) on :
 
Parents have a duty of care. When they do not meet it, the state is obliged to intervene.
 
Posted by Zoey (# 11152) on :
 
Child Protection Orders do not exist in the UK. Children can be subject to a Child Protection Plan, but that does not give the Local Authority or any other arm of the state any legal powers in respect of the child. Court orders for which Local Authorities can apply in respect of children in England and Wales include: Emergency Protection Orders, Interim Care Orders and Care Orders.

My brain is not up to responding to the rest. (I'm a UK children's social worker. I wouldn't propose that Ashya's parents should lose custody of him and would be surprised if any social worker or member of medical staff is arguing that. I think children should be with their birth parents unless they are at risk of serious harm and that risk cannot be managed. Despite this and the amount of time and effort I and my colleagues put in to trying to support children within their birth families, it's good to know that we are still viewed by many as evil kiddy-snatchers who get our jollies stealing children for no good reason.) Probably shouldn't be posting in Purg, so am going to duck out.
 
Posted by Zoey (# 11152) on :
 
quote:
Originally posted by Zoey:
I wouldn't propose that Ashya's parents should lose custody of him and would be surprised if any social worker or member of medical staff is arguing that.

Moreover, if that were seriously being proposed by a state body, his parents would be entitled to free legal representation and I would be astounded if a court in England or Wales agreed to a care plan whereby they lost care of him on the basis of the facts as currently presented.

I know, I know - I said I'm ducking out and that is what I should do.
 
Posted by Sioni Sais (# 5713) on :
 
Primarily, care for the child should be the parents responsibility. It looks like, at the very least, there was a breakdown in communications between the hospital and the parents, with everyone refusing to back down at which point the hospital seems to have called in the cavalry (in the form of the police).

I hope we don't decide future policy on the basis of this case, which looks a hard one, because hard cases make bad law [Snore] . Leave the marginal ones to the judges.
 
Posted by Eutychus (# 3081) on :
 
I apologise for the wrong terminology and erroneous legal conclusions (or at least implications I drew).

Among my longstanding local church friends I have a social worker who for a large part of her career has been involved in removing children from the care of their parents, and parents of children who have been removed from their care, so I can see this issue from both sides.

The fact remains that in this case, the parents say they got the distinct impression they would not be able to have access to their child if social services got involved and that this would happen if they persisted asking about alternative treatment options. I can understand that mindset even if they were mistaken, and I think this explains why they acted pre-emptively, even if opinion is divided as to whether they were justified in doing so.

I note the health trust is still talking in terms of a lack of consent on the part of the hospital, which sounds scary to me.

While this still looks like having indirect benefits for JWs, I wonder whether the family's reaction is coloured by a certain view of "The World"™.

(x-post)

[ 02. September 2014, 21:17: Message edited by: Eutychus ]
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Eutychus:
The family's view appears to be that the hospital was basically looking to experiment with radiotherapy despite proven risks. The child, they felt, was to be a guinea pig. Proton beam therapy results appear to be unconfirmed (no better or worse than radiotherapy) but at least do less collateral damage.

Using radiotherapy to treat cancer is hardly experimental. Unconfirmed is not the same as equivalent.
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by Doublethink:
Using radiotherapy to treat cancer is hardly experimental. Unconfirmed is not the same as equivalent.

I am not a doctor and I appreciate the problems with protocol by internet.

As I understand it, the family's arugment is that there is less collateral damage - especially in children - with proton therapy, the therapeutic outcomes of which are disputed.

Apart from the treatment options themselves, we also don't know enough about the child's prognosis to take an informed view. But if the family felt the side-effects of the proposed treatment greatly outweighed any uncertain benefits, and had assurances from another hospital of treatment with fewer side-effects, I can understand them wanting to exercise that option, and having trouble seeing why they shouldn't be allowed to.

In their case, meeting resistance from the hospital staff when this idea was raised probably strengthened, rather than lessened, their resolution.

[ 02. September 2014, 21:27: Message edited by: Eutychus ]
 
Posted by Zoey (# 11152) on :
 
quote:
Originally posted by Eutychus:

The fact remains that in this case, the parents say they got the distinct impression they would not be able to have access to their child if social services got involved and that this would happen if they persisted asking about alternative treatment options.

I wish they had got decent legal advice before doing a flit. It really doesn't sound as if they did. If social services become involved, in England and Wales, social services have a **duty** to promote contact between children who are Looked After by the state and members of their birth family. The contact must be in the best interests of the child - hence, if children are in permanent foster care and parents don't present appropriately at contact sessions then contact may stop being offered and, additionally, children in permanent foster care need to settle in that foster care, so contact with their birth parents may only be once every few months. However, whilst Care Proceedings are going on, social services in England and Wales have a legal duty to promote the relationship between a child who is subject to such proceedings and their birth family (usually offering supervised contact multiple times a week). Moreover, I continue to think that a court in England would almost certainly not approve a care plan for Ashya to be placed in foster care or away from the custody of his parents - I would expect the court to make a determination regarding what medical treatment is appropriate for him, but would expect everybody (social workers, court, etc) to see that, aside from the issue of what medical care is in his best interests, there is no question that his parents can care for him appropriately and meet his needs and are therefore the best people to do so.

(Thank you for your post, Eutychus. As you may have guessed, I'm a bit tetchy currently for reasons entirely unrelated to this thread and your first response to me wound me up somewhat. I'm grateful for your follow up.)
 
Posted by Eutychus (# 3081) on :
 
And thanks for that. I agree that with different and better advice, they might have acted differently. But how hard it is in situations like this to know who will give you truly wise advice and who you can really trust. [Votive]
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by Caissa:
Parents have a duty of care. When they do not meet it, the state is obliged to intervene.

Exactly. And in this case there was a temporary Wardship Order which made the child a ward of court. The parents were legally obliged to comply with the court's direction. All that was known for certain was that the parents had disappeared with a very sick child who needed specialised medical care. Parents don't have the right to put their child in danger and the priority was to find Aysha and ensure his safety.

IMO the authorities acted properly. The arrest warrant was for suspected neglect or cruelty and since there was initially no information about how Aysha would be fed and cared for there was justifiable suspicion that he might be in danger.
 
Posted by Doublethink (# 1984) on :
 
It looks as if both Neon Roberts & Aysha King had/have medullablastoma.

Info.

[ 02. September 2014, 21:53: Message edited by: Doublethink ]
 
Posted by JoannaP (# 4493) on :
 
quote:
Originally posted by Eutychus:
quote:
Originally posted by Doublethink:
Using radiotherapy to treat cancer is hardly experimental. Unconfirmed is not the same as equivalent.

I am not a doctor and I appreciate the problems with protocol by internet.

As I understand it, the family's arugment is that there is less collateral damage - especially in children - with proton therapy, the therapeutic outcomes of which are disputed.

Apart from the treatment options themselves, we also don't know enough about the child's prognosis to take an informed view. But if the family felt the side-effects of the proposed treatment greatly outweighed any uncertain benefits, and had assurances from another hospital of treatment with fewer side-effects, I can understand them wanting to exercise that option, and having trouble seeing why they shouldn't be allowed to.

In their case, meeting resistance from the hospital staff when this idea was raised probably strengthened, rather than lessened, their resolution.

AIUI, the oncologist responsible for treating Ashya believes that, for his particular tumour, there would be no difference in outcome between proton beam radiation and whatever the normal type of radiotherapy is. I do not know how much variation there can be in brain tumours nor how much detail the websites discussing proton beam therapy go into about the differences. The Czech hospital which had agreed to treat Ashya had apparently not seen any brain scans or medical records, so were hardly speaking from a position of knowledge of this particular tumour.

I also note that, according to Southampton Hospital, they had offered the family a second opinion and were prepared to discuss travelling abroad for proton beam therapy, possibly including applying for NHS funding to do so, as nearly 100 other children have done.
 
Posted by LucyP (# 10476) on :
 
quote:
Originally posted by no prophet:
.

As for vaccinations, the new policy here for health workers is either get a 'flu vaccine or when ordered to do so at work, wear proper protection to avoid getting infected or infecting others. I suspect that not being paid for sick days when it is the 'flu and you've not been vaccinated is also the consequence. My employees are told to get vaccinated (free for all here through medicare), and haven't had the issue of considering not paying them if ill with the 'flu.


This is a tangent, but - really, people don't get paid if they have "the flu"? I am pro-vaccination and have had the flu shot, but am under no illusions about its efficacy: approximately 60%.

Are payments only cancelled if the sick person has had swabs done which have proved that their illness was one of the 3 strains prevented by that year's vaccine? Because there are plenty of viruses that can give you flu-like symptoms (parainfluenzae, nonseasonal strains of influenza, CMV, rhinoviruses, RSV, coronaviruses, to name a few) which are not covered by the vaccine. Other viruses are far more common. What if the person calls in sick with "a bad cold" - do they still get paid then, or are they forced to leave the house to visit the doctor to get swabs done to ensure it's not influenza?
 
Posted by anoesis (# 14189) on :
 
quote:
Originally posted by LucyP:
quote:
Originally posted by no prophet:
.

As for vaccinations, the new policy here for health workers is either get a 'flu vaccine or when ordered to do so at work, wear proper protection to avoid getting infected or infecting others. I suspect that not being paid for sick days when it is the 'flu and you've not been vaccinated is also the consequence. My employees are told to get vaccinated (free for all here through medicare), and haven't had the issue of considering not paying them if ill with the 'flu.


This is a tangent, but - really, people don't get paid if they have "the flu"? I am pro-vaccination and have had the flu shot, but am under no illusions about its efficacy: approximately 60%.

He did say "not being paid for sick days when it is the 'flu and you've not been vaccinated", which I take to mean that those who have been vaccinated are safe to claim sick leave if they do contract influenza or one of the illnesses which can masquerade as influenza, because they've done what they can to reduce the risk to themselves and others.
 
Posted by L'organist (# 17338) on :
 
posted by Joanna P
quote:
AIUI, the oncologist responsible for treating Ashya believes that, for his particular tumour, there would be no difference in outcome between proton beam radiation and whatever the normal type of radiotherapy is. I do not know how much variation there can be in brain tumours nor how much detail the websites discussing proton beam therapy go into about the differences. The Czech hospital which had agreed to treat Ashya had apparently not seen any brain scans or medical records, so were hardly speaking from a position of knowledge of this particular tumour.

I also note that, according to Southampton Hospital, they had offered the family a second opinion and were prepared to discuss travelling abroad for proton beam therapy, possibly including applying for NHS funding to do so, as nearly 100 other children have done.

The trouble is that because there is no facility for proton beam therapy (PBT) in the UK there will always be the suspicion that a decision that a treatment won't be recommended because it simply isn't available. At the moment UK patients who require PBT are sent to the US.

Cost is another factor: the government made £250m available for the development of 2 PBT facilities in September 2013 but these won't come on-stream for years. Meanwhile the radiation therapy innovation fund was only charged with £23m which is a drop in the ocean.

Outside London especially the NHS is way behind on many treatments for cancer that have been available for 10-15 years or more in the USA and some European countries. PBT has been available in the US for more than a decade but the UK centres won't be on-stream for at least another 3 years. Brachytherapy is the same, etc, etc.

As for thr possibility of Ashya being taken abroad for treatment: the procedure for organising this to be paid for by the NHS is extremely long-winded. Doctors cannot simply recommend it but have to go through a long and time consuming rigmarole to get a decision from NICE (these decisions are made on a patient by patient basis). The time from applying to send a patient to decision is usually 8-10 weeks and, because the patient remains in the UK until a funding decision has been reached there is then a further wait of about 9 weeks before the first PBT session is made.

Tragically there have been quite a few cases in patients whose PBT has eventually been approved that the lengthy process to get funding has meant tumours have grown so the prognosis is significantly less good than at the time the application was made - delays cost lives, to be blunt.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Caissa:
Parents have a duty of care. When they do not meet it, the state is obliged to intervene.

Meeting parental duty of care is not equal to mindlessly agreeing with everything a doctor tells you.

I have to say this whole excuse of "oh, but we didn't know what the parent's intentions were" seems extraordinarily lame to me at the moment. It makes it sound like they'd threatened to harm him or kill him.

As things stand, the proposal to make this child a ward of the State sounds like a gross usurpation of the proper role of medical professionals.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by orfeo:

As things stand, the proposal to make this child a ward of the State sounds like a gross usurpation of the proper role of medical professionals.

There is no proposal to make the child a ward of court, he was made a ward of court under a temporary order. Being a ward of court does not make the child a 'ward of the state', it means decisions will be authorised by a judge and, most importantly, it means the child will be represented independently of parents, doctors or social workers. The court has a duty to act in the child's best interests and to consider the situation from the child's viewpoint. In this case there was good reason to fear for Aysha's safety and therefore a duty to take whatever action was needed in order to locate him and ensure he was getting the care he needed.

[code]

[ 03. September 2014, 05:31: Message edited by: Eutychus ]
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by seekingsister:
So - should it be a crime to remove a loved one from hospital to pursue alternative medical treatment?

Without the loved one's consent? Yes.

In the case of children it depends. Children are not deemed able to give consent.

If you are removing them and having their treatment replaced with snake oil of one sort or another again, yes. That's as abusive to the child as beating them up would be.

If you are having them discharged for something that has a plausibly good chance of success under current medical guidance then the parents are in the right. This is rare and was not communicated clearly. It is (fortunately) what was happening here.

Do parents own their children? No. Children are individual beings that need protection. The parents are normally the people in the best place to make such decisions. But not always.

(Trigger warning: The cases of Victoria Climbie and Baby P are harrowing reading even if I only linked Wikipedia).

[ 03. September 2014, 02:08: Message edited by: Justinian ]
 
Posted by Leorning Cniht (# 17564) on :
 
quote:
Originally posted by no prophet:
Except that we already require people to go to school and get educated even if they don't want to be there.

We require them to be educated. We do not require this to happen in a school. And, at least here, it is not up to the local school to determine whether or not the parents' plan for their child's education is appropriate.

On the other hand, the parents are obliged to give their children an education that, in at least broad terms, is equivalent to or better than that provided by the public schools.

My general opinion for children and hospital treatment is similar. I don't think it's reasonable to require the hospital to be able to prevent a child from leaving (one assumes that the parents would be removing their child because, for whatever reason, they aren't happy with the treatment at the hospital, and there would seem to be potential conflict of interest and prestige issues involved if the hospital are allowed to keep the child against his parents' will.

On the other hand, parents should be required to provide proper treatment, and there's a difference between the school case and the hospital case - if you mess up your child's education for six months, and then the state calls you on it, the damage can be mended. If you remove your sick child in order to place energized crystals around him and chant a lot, he might die.

So perhaps what is needed is a letter from the parents informing the hospital that they are removing their child, and placing him under the care of <specific named doctor, with actual qualifications> at <recognized medical facility>. It's reasonable to give the hospital 15 minutes to verify the existence of the doctor and the facility.
 
Posted by Leorning Cniht (# 17564) on :
 
quote:
Originally posted by L'organist:
The trouble is that because there is no facility for proton beam therapy (PBT) in the UK there will always be the suspicion that a decision that a treatment won't be recommended because it simply isn't available. At the moment UK patients who require PBT are sent to the US.

Given the straight choice, and assuming that money was no object, if I had some kind of brain cancer, I would choose proton therapy over conventional radiotherapy any day of the week, and if I could find someone with a carbon machine willing to take me on as an R&D case, I'd choose carbon over protons. I don't see why I wouldn't make the same choice for one of my children.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
quote:
Originally posted by orfeo:

As things stand, the proposal to make this child a ward of the State sounds like a gross usurpation of the proper role of medical professionals.

There is no proposal to make the child a ward of court, he was made a ward of court under a temporary order. Being a ward of court does not make the child a 'ward of the state', it means decisions will be authorised by a judge and, most importantly, it means the child will be represented independently of parents, doctors or social workers. The court has a duty to act in the child's best interests and to consider the situation from the child's viewpoint. In this case there was good reason to fear for Aysha's safety and therefore a duty to take whatever action was needed in order to locate him and ensure he was getting the care he needed.
I stand corrected on my misuse of terminology. However...

What good reason to fear for his safety?

This is what I mean when I say that the "we didn't know where he as or what his parent's intentions were" claim seems like a self-justifying smokescreen.

They clearly didn't think he had been abducted by a stranger. That's inconsistent with referring to his parent's intentions and obtaining an arrest warrant for his parents.

And I haven't seen the slightest bit of evidence that his parents were considered a danger to him. There's no suggestion that I've seen that they were abusive, violent, failed to provide him with food or shelter, or anything else that would suggest a child is 'at risk'. There's not even any evidence that they refused him medical treatment - if they were the kind of parents who ascribed everything to God's will and thought the way to deal with illness was to pray, he wouldn't have been in hospital in the first place.

No, the sole basis for "fearing for his safety" is that his parents wanted a different medical treatment in a different location.

The implications are pretty staggering. What's next? What happens to adults who say they want a second opinion?

I will agree that it wasn't the best move for his parents to remove him from the hospital without notice, but I can well understand why they did. No-one should have EVER suggested to them that their power to make medicial decisions for their child might be taken away, because I don't think there was any justification for that suggestion.

I wouldn't be surprised if what the hospital said to the police was "THEY'VE TAKEN HIM OUT OF TREATMENT!". Because if they'd added "to take him to different treatment", the cause for alarm would have evaporated. There is absolutely no fear for the safety of a child involved in switching doctors.

The very notion of the hospital 'agreeing' to any of this is based on the false notion that the hospital had any business having a say in the first place. I'm not required to consult my GP or optometrist before trying a different GP or optometrist, any more than I'm obliged to notify my hairdress or gardener.

[ 03. September 2014, 03:15: Message edited by: orfeo ]
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by justlooking:
quote:
Originally posted by Caissa:
Parents have a duty of care. When they do not meet it, the state is obliged to intervene.

Exactly. And in this case there was a temporary Wardship Order which made the child a ward of court.
Not, I think, until after the parents had been arrested (without charge), and passed on the grounds that the parents were in custody.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Eutychus:
quote:
Originally posted by justlooking:
quote:
Originally posted by Caissa:
Parents have a duty of care. When they do not meet it, the state is obliged to intervene.

Exactly. And in this case there was a temporary Wardship Order which made the child a ward of court.
Not, I think, until after the parents had been arrested (without charge), and passed on the grounds that the parents were in custody.
The timeline I've found indicates:

28 August - parents remove him from hospital

29 August - made a ward of the court

30 August - parents arrested.

So it seems he wasn't a ward of the court at the time that his parents took him from the hospital.

It also seems that various authorities were told he was in grave medical danger in a misleading fashion, referring to the battery life of the machine without mentioning a charger.

There certainly doesn't seem to be any evidence that he was in worse shape when he arrived in Spain than he had been in Southampton. The biggest distress he seems to have suffered is being separated from his parents.

[ 03. September 2014, 05:54: Message edited by: orfeo ]
 
Posted by Doublethink (# 1984) on :
 
BBC news reports the tumour was removed last month. I would reiterate that I think that it is highly unlikely that the only ongoing care a child a few weeks post brain surgery needs, (aside from radiotherapy) , is a battery operated feed.
 
Posted by justlooking (# 12079) on :
 
Eutychus - From what I've read the temporary wardship order was made as an emergency measure after Aysha had been removed from hospital. The police acted on the information they had at the time - that a very sick child had been taken away and his whereabouts unknown. The doctors, the court and the police all acted properly IMO and they acted in accordance with UK child protection laws.

orfeo - the reason to fear for the child's safety was his need for specialised medical care which included being fed via a tube. In the absence of any information about how his parents intended to ensure his continued care and safety it seems reasonable to me that action was taken immediately to find him and make sure he was safe.

In the UK parents have considerable flexibility if they provide for a child's education outside the school system. They still, however, have a legal duty to arrange education in accordance with 'age, aptitude and ability' and to make provision for any special needs. Case law gives some framework for what a non-school education might be and education authorities have regulations and guidelines for managing the relationship with home educating families. The Education Act also specifies that a child's wishes and feelings must be taken into account in arranging their education. This applies to schools too.

ISTM that some of the outcry in this case comes from a view of children as property either of their parents or of the state and cases making the news are often discussed as if they are a battle between parents and state authorities. But UK law treats children as having rights and interests independent of their parents or of state authorities. When it comes to a dispute or when a child is seen to be in danger the court and legal system ensure the child's rights and interests take priority. e.g This case

[ 03. September 2014, 06:41: Message edited by: justlooking ]
 
Posted by bib (# 13074) on :
 
We had a patient, a little 3 year old with leukaemia, whose parents were determined to take him home and feed him only sterile water as the mother had a dream that this would bring about a cure. The hospital prevented this from happening and the child eventually responded to proper medical treatment. Surely it would not have been ok for the parents to be allowed to carry out their plans as the child would have died. Would that be considered manslaughter?
 
Posted by Doublethink (# 1984) on :
 
It would certainly count as abuse under the category of neglect. I assume that the child ended up on the at risk register.
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by justlooking:
When it comes to a dispute or when a child is seen to be in danger the court and legal system ensure the child's rights and interests take priority.

This is all well and good, but this is about balance of powers. The troubling thing from my perspective is the scale of the UK police response, apparently well ahead of any decision by a magistrate with regard to the child.

(In France, serious investigations quickly fall within the remit of a magistrate. I often find myself railing against this, but this case makes it look like not such a bad idea).

A quick browse does not reveal in what circumstances Child Rescue Alerts can be issued in the UK, but in France the equivalent requires a decision, independently of the police, by the prosecutor. And in possession of the same information as the UK police, the French prosecutor decided not to deploy such a sledgehammer - most probably because there was no relevant charge to be brought.
 
Posted by itsarumdo (# 18174) on :
 
It's a question as to who thinks they know best and what the proper order of guardianship should be

Parents should be allowed to be adequate, to be sufficiently competent, to be humanly imperfect in theor decisions provided that they are doing their best for the child. This is about expression of parental love.

OTOH, the state's primary responsibility is to protect its citizens from its own excesses, and its secondary responsibility iost to protect them from other people and from themselves.

In child protection we now have an ATTITUDE that says - every adult is suspicious, is a potential child abiuser or is inadequate to make the correct decisions, because state child protection knows best, and only we are really safe. That attitude is corrosive - how can a world be safe for children if they get the message that all adults are dangerous? It is a lso a displacement of the state's position re its citizens - somehow the state's position as a dangerous guardian and parent that has to be watched and kept in check has been projected back at its citizens. The active abuse of children when they are in state protection - e.g. care homes - is a case in point - it's not that they represent a high proportion of the children abused, but rather like an airplane or a train crash, it all happens in one place and there should have been measures in place to prevent this in the first place. It's all very well making legislation to prevent abuse when under state protection, but that should apply to abuse FROM the state and its employees, NOT from potentially responsible adults. The state's administrative structures are ideal for infiltration by anyone who has criminal motives, and so the state should be prepared for that, one way or another. However, the legislation for private individuals should be different, and be based on the principle that most adults do not wish to harm children. Furthermore, it should be fairly extreme cases, where a clear boundary has been crossed which prompts the state to "save a child" by removing guardianship from its parents or normal family guardians. The threat of making the child a ward of court should the parents disagree with the doctors diagnosis or proposed treatment is the only reason this family took off in a car.
 
Posted by justlooking (# 12079) on :
 
Eutychus - The police applied for an international arrest warrant because the child had been taken out of jurisdiction of the UK court. I don't see any other way of ensuring the French or Spanish police could act swiftly. Until the family were found there was no information about if or how they were caring for Aysha and meeting his medical needs.

[ 03. September 2014, 07:47: Message edited by: justlooking ]
 
Posted by seekingsister (# 17707) on :
 
quote:
Originally posted by itsarumdo:
In child protection we now have an ATTITUDE that says - every adult is suspicious, is a potential child abiuser or is inadequate to make the correct decisions, because state child protection knows best, and only we are really safe. That attitude is corrosive - how can a world be safe for children if they get the message that all adults are dangerous? It is a lso a displacement of the state's position re its citizens - somehow the state's position as a dangerous guardian and parent that has to be watched and kept in check has been projected back at its citizens. The active abuse of children when they are in state protection - e.g. care homes - is a case in point - it's not that they represent a high proportion of the children abused, but rather like an airplane or a train crash, it all happens in one place and there should have been measures in place to prevent this in the first place. It's all very well making legislation to prevent abuse when under state protection, but that should apply to abuse FROM the state and its employees, NOT from potentially responsible adults. The state's administrative structures are ideal for infiltration by anyone who has criminal motives, and so the state should be prepared for that, one way or another. However, the legislation for private individuals should be different, and be based on the principle that most adults do not wish to harm children. Furthermore, it should be fairly extreme cases, where a clear boundary has been crossed which prompts the state to "save a child" by removing guardianship from its parents or normal family guardians. The threat of making the child a ward of court should the parents disagree with the doctors diagnosis or proposed treatment is the only reason this family took off in a car.

You've captured my thoughts very well here.

The press coverage of this over the weekend before the family was found, essentially painted the parents as anti-medicine kooks who snatched their child and were taking him "to Europe" - that terrifying place where there are no hospitals or doctors, of course.

The hospital completely overreached and I hope an investigation and even charges are made against the individuals who threatened to take Ashya from his parents over a disagreement over medical treatment. That is why they fled - because they had been told the state would take their child from them.

quote:
King said when he questioned the doctors' plans, they threatened to take Ashya away from him via a protection order.

"We couldn't take it anymore, not knowing and not being able to question anything," King said. "We couldn't be under that system anymore."

ABC News
 
Posted by seekingsister (# 17707) on :
 
quote:
Originally posted by bib:
We had a patient, a little 3 year old with leukaemia, whose parents were determined to take him home and feed him only sterile water as the mother had a dream that this would bring about a cure. The hospital prevented this from happening and the child eventually responded to proper medical treatment. Surely it would not have been ok for the parents to be allowed to carry out their plans as the child would have died. Would that be considered manslaughter?

But what if the parents wanted to take the child to the US or Europe for an alternative medical treatment? Surely that's different from home remedies?

If the NHS will not fund overseas treatment then they need to allow families to choose to withdraw from NHS care and pursue alternatives at medical centers that will provide them.

Otherwise it seems that if you disagree with the NHS they will use the force of the police to ensure you comply with their treatment.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by itsarumdo:
The threat of making the child a ward of court should the parents disagree with the doctors diagnosis or proposed treatment is the only reason this family took off in a car.

Making a child of ward of court doesn't necessarily mean the court will decide in favour of the doctors' proposals. The court will have to listen to all interested parties, including the child, and to then make a decision in accordance with the child's best interests.

Children under 16 can, in many circumstances, give or refuse consent to medical treatment if doctors consider them capable of understanding their situation and making an informed decision. Where there is a dispute, including a dispute about a child's ability to make a decision, then the case is referred to court. The newsworthy cases are often those involving under 16 year old pregnant girls but most such cases never get to court because the girl decides, ideally with the support of her parents but sometimes without them ever knowing if she chooses to have an abortion.
 
Posted by North East Quine (# 13049) on :
 
There seems to be a lack of hard facts in this case, particularly around the parents ability to have their son treated by proton therapy in Prague.

According to this BBC report, Mr King contacted the Prague centre on 20 Aug.

What doesn't seem clear is why Southampton Hospital wouldn't co-operate with the Prague centre by sending medical details which would let the Prague centre assess Ashya's suitability for proton therapy.

What is also not clear is whether Southampton hospital did, as Mr King alleges, threaten to involve social services because he was contacting Prague.

Somewhere along the line there appears to have been a massive breakdown in communication.

I can understand the initial impetus to find Ashya, but I cannot understand why, when he was found and hospitalised in Spain, he was kept apart from his parents. What was the risk in letting his parents remain at his bedside? Why did they need to be handcuffed and imprisoned?

How much distress was caused for that little boy by keeping him apart from his family? It seems callous to me.
 
Posted by Jane R (# 331) on :
 
seekingsister:
quote:
If the NHS will not fund overseas treatment then they need to allow families to choose to withdraw from NHS care and pursue alternatives at medical centers that will provide them.
Except they will fund overseas treatment, if they think the outcome is likely to be significantly better for the patient in question than having the treatment available in the UK. As several other people have said, this is not always the case. Cost is a factor (because if you spend umpty thousand pounds on one expensive treatment that may not work you may run out of money for mundane but very effective treatments like hip replacements, hernia operations and gallstone removals) but a five year old child with a brain tumour will get priority for any money that's going. If the NHS really can't fund your overseas treatment then you can try to raise the money yourself - some parents have set up charities to raise the money for their children to have treatment abroad, and as far as I am aware the NHS was very supportive of them. But they didn't rush out of the country with their sick child in tow without telling the hospital what they were doing.

BTW proton beam therapy is a type of radiotherapy. The radiation is more tightly focused on the tumour, but it's still radiotherapy. Some of the media coverage seems to be implying that it's a magic bullet that doesn't involve nasty radiation at all.
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by justlooking:
Eutychus - The police applied for an international arrest warrant because the child had been taken out of jurisdiction of the UK court. I don't see any other way of ensuring the French or Spanish police could act swiftly. Until the family were found there was no information about if or how they were caring for Aysha and meeting his medical needs.

I think you miss my point though, which is that in France, while the police did not do nothing at all, they did not at any time launch the high-profile "hunt" the UK police wanted them to.

They did not have the powers to do so without a magistrate, and presumably the magistrate that did - the procureur - did not judge there were grounds to do so. That to me looks (here) like a good check in the system.

The UK police claimed they had implemented the European Arrest Warrant merely to give them the right to talk to the parents.

When the police caught up with the parents, they were not just "talked to". They were arrested, charged, and put in prison. Do you think that should happen every time the police want to "talk to" somebody?

I agree with Sioni Sais that extreme cases make bad laws, but I also think that in this instance, a sledgehammer was used to crack a walnut, as the result of a chain of errors and an imbalance in powers.

[ 03. September 2014, 08:36: Message edited by: Eutychus ]
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by Eutychus:
The UK police claimed they had implemented the European Arrest Warrant merely to give them the right to talk to the parents.

When the police caught up with the parents, they were not just "talked to". They were arrested, charged, and put in prison. Do you think that should happen every time the police want to "talk to" somebody?

The Spanish police arrested the parents and arranged for the child to be taken to hospital but did not charge the parents with any offence. They were held pending a decision about extradition but the UK then withdrew the arrest warrant.

It was a fast moving case and the legal action was sparked by the parents' action in removing Aysha from medical care without giving any information about where they were going and what arrangements they had for meeting his continued medical needs.
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by justlooking:
The Spanish police arrested the parents and arranged for the child to be taken to hospital but did not charge the parents with any offence. They were held pending a decision about extradition but the UK then withdrew the arrest warrant.

As I understand it, the arrest warrent included a specific charge to do with harm to a vulnerable child (can't remember the exact charge). This was presented at the time as a device to enable the police to talk to the parents. It quickly became much more than a device.

It would have been much faster to send UK police to Spain to question them than complete extradition proceedings.
quote:
the legal action was sparked by the parents' action in removing Aysha from medical care without giving any information about where they were going and what arrangements they had for meeting his continued medical needs.
My point is that, at least initially, as I understand it, it was not legal action but far-reaching police action, well ahead of any "ward of court" or other decision. I think having a magistrate somewhere in the proceedings would have been a worthwhile check in this case.

[ 03. September 2014, 09:02: Message edited by: Eutychus ]
 
Posted by seekingsister (# 17707) on :
 
quote:
Originally posted by Jane R:
If the NHS really can't fund your overseas treatment then you can try to raise the money yourself - some parents have set up charities to raise the money for their children to have treatment abroad, and as far as I am aware the NHS was very supportive of them. But they didn't rush out of the country with their sick child in tow without telling the hospital what they were doing.

But given that Hampshire police have established that what the parents did is not illegal, why do they have to tell the hospital anything? Especially if Mr King's claim that they threatened him with a protection order if he continued to ask for a transfer to a proton therapy clinic is true.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
orfeo - the reason to fear for the child's safety was his need for specialised medical care which included being fed via a tube. In the absence of any information about how his parents intended to ensure his continued care and safety it seems reasonable to me that action was taken immediately to find him and make sure he was safe.

You've just reiterated one of my chief objections here - in the absence of any information the worst was presumed.

Again, I don't see any information about these parents that would justify presuming the worst about them, that they were anti-scientific kooks or reckless as to their child's welfare.

Nor, as seekingsister has pointed out, was there any justification for thinking that his parents were taking him out of reach of the medical care that he needed. He is now doing just as well in a Spanish hospital as he was doing in an English one.

It is simply not true that this child was going to be in medical danger the moment he left the hospital he was in. Yes, he needs medical attention, but the deep flaw here is the presumption that his ability to receive medical care was at risk.

I would have thought that taking these actions - ward of the Court, arrest warrants - required at least some positive evidence that his needs weren't going to be taken care of. That's the big difference from the case that bib has referred to, of parents who made positive statements that they were going to put their child on a sterile water diet as a cure. Making statements that you want your child treated by a clinic offering proton therapy is not remotely in the same category, not in a million years.

[ 03. September 2014, 09:05: Message edited by: orfeo ]
 
Posted by justlooking (# 12079) on :
 
quote:
.....in the absence of any information the worst was presumed.

Yes, because of the severity of the child's condition and the fact that he needed constant monitoring. He was not considered to be in a fit state to be discharged from hospital. Presuming the worst was the most effective way of safeguarding the child's interests.
 
Posted by Jane R (# 331) on :
 
seekingsister:
quote:
But given that Hampshire police have established that what the parents did is not illegal, why do they have to tell the hospital anything?
IANAL, but I would guess the hospital behaved like that because the parents are not the patient: the child is. The situation would be different for an adult who was considered capable of making his or her own medical decisions. In the case of a child or a vulnerable adult, where someone else is making medical decisions on their behalf, the hospital has an additional duty of care. That's why cases like this may end up in court, when the medical professionals' recommendations for treatment conflict with the wishes of the family.

I don't know any more than you do about this case, so I would not care to speculate about whether Mr King really was threatened with a court protection order. But I can understand why Southampton Hospital was reluctant to spend thousands of pounds on proton beam therapy if it is not significantly more effective than conventional radiotherapy.

[ 03. September 2014, 09:26: Message edited by: Jane R ]
 
Posted by Erroneous Monk (# 10858) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by justlooking:
orfeo - the reason to fear for the child's safety was his need for specialised medical care which included being fed via a tube. In the absence of any information about how his parents intended to ensure his continued care and safety it seems reasonable to me that action was taken immediately to find him and make sure he was safe.

You've just reiterated one of my chief objections here - in the absence of any information the worst was presumed.

Again, I don't see any information about these parents that would justify presuming the worst about them, that they were anti-scientific kooks or reckless as to their child's welfare.

Nor, as seekingsister has pointed out, was there any justification for thinking that his parents were taking him out of reach of the medical care that he needed. He is now doing just as well in a Spanish hospital as he was doing in an English one.


I disagree. The secrecy around removing the child from hospital was adequate justification for the hospital presuming the parents were taking action they did not want the child's doctors to know about. That behaviour was the "information" that justified the hospital's actions.

In my view, the hospital were absolutely acting in the child's best interests. Where things got out of hand was in arresting the parents and separating them from the child once he had been located, and was, clearly, receiving the medical attention he needed.

I am, I admit, biased, but having a number of relatives who do or have worked in the NHS and having been a patient myself for many many years, and now having to make decisions about my children's care, the idea that NHS doctors have any incentive not to be wholly open with patients about treatment options and prognosis seems strange to me.
 
Posted by Gracie (# 3870) on :
 
It seems to me that the doctor in question knew that the Kings are good, loving and caring parents and that he totally miscalculated the effect of his threat to get a protection order. Some doctors do not like to have their authority questioned and/or believe this to be a waste of their time. He probably thought that this threat would bring the parents in line with his plans, which it may well have done for the majority of parents.
 
Posted by Erroneous Monk (# 10858) on :
 
quote:
Originally posted by Jane R:
But I can understand why Southampton Hospital was reluctant to spend thousands of pounds on proton beam therapy if it is not significantly more effective than conventional radiotherapy.

I imagine the doctors were also reluctant to see the parents spend the kind of money involved in getting that treatment privately, since they genuinely believed the outcome would be no different.
 
Posted by North East Quine (# 13049) on :
 
Originally posted by seekingsister:

quote:
Especially if Mr King's claim that they threatened him with a protection order if he continued to ask for a transfer to a proton therapy clinic is true.
Is there any evidence that this is true, beyond Mr King's own assertion?

Given that he openly contacted the Prague Centre on 20 August, it does seem that something happened for the family to switch from aiming for a managed hospital transfer to reckless flight.

I think this is the crux of the whole matter. If the family originally sought a managed hospital transfer and had a property which they could sell to finance treatment themselves, what made them sneak Ashya out of hospital and flee?
 
Posted by Jane R (# 331) on :
 
Who knows? Maybe the staff at Southampton Hospital said something that was misinterpreted. Maybe they thought Ashya was getting worse and time was running out. Maybe they had a buyer interested in their Spanish property and couldn't bear to be separated from each other while the property sale was going through.

What does seem clear is that everyone concerned was trying to do what they thought was best for Ashya. [Votive]
 
Posted by Margaret (# 283) on :
 
quote:
Originally posted by North East Quine:
If the family originally sought a managed hospital transfer and had a property which they could sell to finance treatment themselves, what made them sneak Ashya out of hospital and flee?

I wonder if it had something to do with their faith? JWs believe that we live in a wicked system (which Jehovah is shortly going to put an end to) but while they're living under it they must render to Caesar's what is Caesar's, and they're generally scrupulous about obeying the law of the country in which they live, unless it conflicts with Jehovah's law. If Mr King believed that some sort of legal action was being threatened, that might have sharpened the family's dilemma and pushed them into the action they took.

We don't know if what a doctor at the hospital said was what Mr King understood - good doctors unfortunately aren't always good communicators, and stressed parents don't always hear clearly if they feel their child is being threatened.
 
Posted by Eutychus (# 3081) on :
 
If this case were to be construed as religious discrimination, the legal issues would change entirely.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Erroneous Monk:
quote:
Originally posted by Jane R:
But I can understand why Southampton Hospital was reluctant to spend thousands of pounds on proton beam therapy if it is not significantly more effective than conventional radiotherapy.

I imagine the doctors were also reluctant to see the parents spend the kind of money involved in getting that treatment privately, since they genuinely believed the outcome would be no different.
It doesn't matter what the doctors genuinely believed.

A doctor is perfectly entitled to express their opinion on such a question. But they are not entitled to enforce that opinion. That's where this seems to have gone wrong.

Obviously we don't know exactly what was said, but currently the Kings are saying that the perception they got was that the doctors would take legal action to enforce their treatment plan.

No-one should have ever suggested such a thing. The law is only supposed to be there to step in when parents are acting entirely outside reasonable bounds, not when they are making a choice which is within the bounds of reasonableness. Opting for another medical treatment might not be what the doctors in Southampton recommended, but that's not the right question.

As for 'secrecy': Where's the obligation to give the hospital information? Given all the things that the hospital seems to have successfully worked out (he's gone, his parents have him, they have a feeding system, they want to take him to another clinic), what exactly were the parents supposed to tell the hospital?

The scenario as currently presented doesn't really have the hospital in the dark about much. The main thing missing is an opportunity for the hospital to act to prevent the child's removal. That's not a piece of information.

[ 03. September 2014, 10:25: Message edited by: orfeo ]
 
Posted by Jane R (# 331) on :
 
I don't think the moral issues change. The basic issue is how far the state (or its representatives) are entitled to go in defence of the rights of a minor child to medical treatment, if there is reason to believe the parents are not acting in the child's best interests. Being a JW is only one possible reason why you might decline medical treatment. Someone with no religious objections to radiotherapy might still want proton beam therapy because they don't believe the doctors' assurances that it isn't any more effective than conventional radiotherapy.

The basic principle in UK law is that children are not the property of their parents, and their right to appropriate medical treatment trumps their parents' right to practice their religion. Teenagers might be allowed to refuse medical treatment if they are considered mature enough to understand the implications, even if they are underage; five-year-olds would not be, although a court would be expected to consult them before coming to a final decision.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by orfeo:
I stand corrected on my misuse of terminology. However...

What good reason to fear for his safety?

You're seriously asking what good reason there is to fear for the safety of a patient who needs continual medical care and is not returned to any hospital at all?

quote:
They clearly didn't think he had been abducted by a stranger. That's inconsistent with referring to his parent's intentions and obtaining an arrest warrant for his parents.

And I haven't seen the slightest bit of evidence that his parents were considered a danger to him.

A danger through malice? We have absolutely no idea - the hospital has not (and indeed can not and should not) released the medical notes. A danger through not understanding the issues involved, and not having adequate medical care laid on or anyone, so far as I can tell, with any actual medical training present to care for him?

quote:
There's no suggestion that I've seen that they were abusive, violent, failed to provide him with food or shelter, or anything else that would suggest a child is 'at risk'.
Other than medical care from anyone with training. When found he wasn't in a hospital and there's no mention of nursing care laid on for him. The parents were gambling that they understood all the issues and would see and be able to cope with any further symptoms.

quote:
No, the sole basis for "fearing for his safety" is that his parents wanted a different medical treatment in a different location.
Had this been the case the kid would have been transferred straight from Southampton to Prague. The part you miss is that he was taken to Spain, outside a hospital, where the father was trying to sell the house to raise money for the Proton Beam Therapy. Note the gap.

quote:
The implications are pretty staggering. What's next? What happens to adults who say they want a second opinion?
They get one. Without the scaremongering as here. There is an absolute right under the NHS to a second opinion.

What there isn't a right to is to decide your own treatment.

quote:
I wouldn't be surprised if what the hospital said to the police was "THEY'VE TAKEN HIM OUT OF TREATMENT!". Because if they'd added "to take him to different treatment", the cause for alarm would have evaporated.
But they didn't take him to different treatment. The different treatment is a potential future event. Had they said they were taking him to different treatment this would have not been true.

quote:
There is absolutely no fear for the safety of a child involved in switching doctors.
And if that's what the parents had done this would be an entirely relevant point. The kid was in Spain, the Proton Beam the parents are talking about is in the Czech Republic - over 1000 miles away. The kid was not in a Spanish hospital until after he was found, and there was no transfer of doctors.

quote:
I'm not required to consult my GP or optometrist before trying a different GP or optometrist, any more than I'm obliged to notify my hairdress or gardener.
You also are an adult. A child is not property of their parents.

The family's heart is definitely in the right place. But the timeline for cancer treatment is tight (62 days from referral to the start of first definitive treatment) - and the family's preferred timeline involves selling a house in the middle of the pathway.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by Jane R:
....

The basic principle in UK law is that children are not the property of their parents, and their right to appropriate medical treatment trumps their parents' right to practice their religion. Teenagers might be allowed to refuse medical treatment if they are considered mature enough to understand the implications, even if they are underage; five-year-olds would not be, although a court would be expected to consult them before coming to a final decision.

Yes. And in the case of a baby or a child unable to express a view the judge or court appointed guardian ad litem must consider what the child would want if he or she could express a view. In other words they have to try to put themselves in the child's position and see how it looks from that vantage point.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Justinian:
You're seriously asking what good reason there is to fear for the safety of a patient who needs continual medical care and is not returned to any hospital at all?

Yes, I'm seriously asking. Because it's a false equivalence. Needing medical care is not equal to needing to be in a hospital at all times.

It was known that the parents had the vital piece of equipment that was needed. Maybe it wasn't known they had a charger - but then the question becomes, why was this presented as "when the battery runs out, it will be a disaster"? Why did no-one think, well if there's a problem, his parents will take him to another hospital?

They'd already taken him to hospital once. This is why I keep emphasising that there is no evidence that these parents weren't monitoring their child's condition or in any way neglectful, or were unable to recognise when assistance was needed.

They clearly demonstrated the capacity to understand he needed a feeding tube. They had a feeding tube.

Saying that "he needed continual medical care" rather obscures the fact that he successfully survived the period out of hospital, and that there is no evidence that he has been harmed by the experience. He "wasn't returned to any hospital at all" because he didn't need to be. You cannot presume that if his condition had deteriorated he still wouldn't have gone to hospital. To presume so goes against the demonstrated capacity of his parents to take him to hospital when it was needed.
 
Posted by orfeo (# 13878) on :
 
To put it another way, there isn't any evidence of child endangerment. If there was, the legal action wouldn't have been dropped.
 
Posted by Doublethink (# 1984) on :
 
Well except for the fact that the Telegraph is reporting his transfer back is now being delayed by medical issues (not not treatment choice.)

The amongst the biggest risks to child outside hospital in this state (having had a tumour removed from his brain in the last few weeks) - would be things like infection, MRSA at the tube site, unmonitored changes in intercranial pressure, intestinal blockage due to lack of gut motility - taking the child to a hospital *after* he has gone into crisis means that the crisis has not been prevented.

Seriously, how do you think you monitor intercranial pressure in a family car ? He initially went into a high dependency unit in Malaga - that is only one step down from Intensive Care,
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by orfeo:
To put it another way, there isn't any evidence of child endangerment. If there was, the legal action wouldn't have been dropped.

That does not follow at all.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Doublethink:
Well except for the fact that the Telegraph is reporting his transfer back is now being delayed by medical issues (not not treatment choice.)

Who is trying to transfer him?
 
Posted by Jane R (# 331) on :
 
orfeo:
quote:
To put it another way, there isn't any evidence of child endangerment. If there was, the legal action wouldn't have been dropped.
It looks to me as if the legal action has been dropped partly as a result of the Internet outcry (mob rule, don't you just love it?) and partly to spare Ashya the distress of being separated from his parents. As Doublethink has already pointed out, subjecting a child who has just had an operation on his brain to a long journey across Europe by car and ferry is not a good idea and may have delayed his recovery from the operation.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Jane R:
Someone with no religious objections to radiotherapy might still want proton beam therapy because they don't believe the doctors' assurances that it isn't any more effective than conventional radiotherapy.

Except here the issue for the parents as stated by them was not the effectiveness of one treatment over the other, but rather the perceived devastating side effects of conventional radiotherapy compared to those potentially caused by proton bean therapy.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Jane R:
orfeo:
quote:
To put it another way, there isn't any evidence of child endangerment. If there was, the legal action wouldn't have been dropped.
It looks to me as if the legal action has been dropped partly as a result of the Internet outcry (mob rule, don't you just love it?)
The majority is not always wrong.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by Doublethink:
Seriously, how do you think you monitor intercranial pressure in a family car ? He initially went into a high dependency unit in Malaga - that is only one step down from Intensive Care,

This.

For those who aren't aware, Intensive Care is for the most ill patients in the hospital. It's the scary, sterile place with the ventilators. And by British standards it has a ratio of one nurse to one patient at almost all times. The only difference HDU has from Intensive Care is that it's one nurse to about two patients rather than one to one. (Indeed HDU is often put in the same ward as Intensive Care).

That was the medical decision the Spanish hospital made as soon as he was admitted. Not the English one. One specialist nurse to two patients. If you need HDU then the feeding tube is just the tip of the iceberg - it's just a particularly obvious means of saying things.

Given that the Spanish didn't just admit him, they put him straight into the second most intensively nursed (and expensive) area they had, they definitely thought he had an urgent problem that needed intensive nursing. And hadn't been taken to another hospital.

(By American standards where he went would be termed Level II PICU.)
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Gracie:
quote:
Originally posted by Jane R:
Someone with no religious objections to radiotherapy might still want proton beam therapy because they don't believe the doctors' assurances that it isn't any more effective than conventional radiotherapy.

Except here the issue for the parents as stated by them was not the effectiveness of one treatment over the other, but rather the perceived devastating side effects of conventional radiotherapy compared to those potentially caused by proton bean therapy.
What evidence there is, doesn't suggest much if any difference and that evidence is not very strong see here


quote:
A 2009 systematic review found that "No comparative study reported statistically significant or important differences in overall or cancer-specific survival or in total serious adverse events."[1][2]
quote:
Two prominent examples are pediatric neoplasms (such as medulloblastoma) and prostate cancer. In the case of pediatric treatments, a 2004 review gave theoretical advantages but did not report any clinical benefits.[18][19]

 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Jane R:
orfeo:
quote:
To put it another way, there isn't any evidence of child endangerment. If there was, the legal action wouldn't have been dropped.
It looks to me as if the legal action has been dropped partly as a result of the Internet outcry (mob rule, don't you just love it?)
The majority is not always wrong.
Let me just add to that by saying that, while looking for this report about transfer being delayed, I found this piece on the Telegraph website.

Yes, I know it's just a newspaper, but it makes a couple of salient assertions. First, that those involved in seeking the legal orders ended up admitting it was a mistake. Second, that everyone involved ended up agreeing that the Kings wanted the best possible medical treatment for their son.

Now, they might well have been forced to re-examine the case as a result of internet pressure. But that's very different from the idea that they only changed their minds just because of internet pressure.

In an open society, bureaucratic decisions must be open to question. That's precisely because it's possible for the bureaucracy to get things wrong. And I say that as a bureaucrat.
 
Posted by Matt Black (# 2210) on :
 
Whilst it does seem that the PTB overreacted after the removal from the hospital - and possibly before - someone raised the question on page 1 as to why it was apparently necessary for the both parents, plus Ashya, to go to Spain for apparently the sole purpose of selling a property. I can understand them removing him to take him to Prague, but this is the part on the parents' side that makes no sense to me.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Justinian:
quote:
Originally posted by Doublethink:
Seriously, how do you think you monitor intercranial pressure in a family car ? He initially went into a high dependency unit in Malaga - that is only one step down from Intensive Care,

This.

For those who aren't aware, Intensive Care is for the most ill patients in the hospital. It's the scary, sterile place with the ventilators. And by British standards it has a ratio of one nurse to one patient at almost all times. The only difference HDU has from Intensive Care is that it's one nurse to about two patients rather than one to one. (Indeed HDU is often put in the same ward as Intensive Care).

That was the medical decision the Spanish hospital made as soon as he was admitted. Not the English one. One specialist nurse to two patients. If you need HDU then the feeding tube is just the tip of the iceberg - it's just a particularly obvious means of saying things.

Given that the Spanish didn't just admit him, they put him straight into the second most intensively nursed (and expensive) area they had, they definitely thought he had an urgent problem that needed intensive nursing. And hadn't been taken to another hospital.

(By American standards where he went would be termed Level II PICU.)

When he was first admitted, all they knew was what they'd been told.

They then had to assess him.

The next day, they moved him to the lower dependency unit.

I don't draw the same conclusion from that that you appear to. I draw the conclusion that once they'd had a chance to check him out, the doctors in Malaga worked out his condition wasn't serious enough to warrant being in HDU.
 
Posted by Doublethink (# 1984) on :
 
Well this is where I got the transfer information from.

But I disagree with a number of assertions orfeo is making.

BBC news reports that the Southhampton reports that the child needs at least two cycles of chemotherapy before he can undertake radiotherapy (proton or otherwise).

I don't think there is, as yet, any evidence as to the hospital misrepresenting the risk given the information they had at the time.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Matt Black:
Whilst it does seem that the PTB overreacted after the removal from the hospital - and possibly before - someone raised the question on page 1 as to why it was apparently necessary for the both parents, plus Ashya, to go to Spain for apparently the sole purpose of selling a property. I can understand them removing him to take him to Prague, but this is the part on the parents' side that makes no sense to me.

One can only speculate as to whether they'd have done the same without the perception that their wishes were being ignored and/or overridden.

Assuming that's genuinely their perception of course. But I do think that if they really believed there was going to be some kind of legal action to enforce the hospital's treatment, they wouldn't leave him in the hospital while making visible steps towards their own preferred treatment.

In their eyes, that might've been a move that could trigger a hospital response just as much as what they actually did.

Part of the problem seems to have been a perception that Southampton wouldn't even talk to Prague. If the Kings had felt that the hospital was letting them find out from Prague whether that was a good option for their son, things might have gone very differently.

It's rather interesting that Prague has now said he is suitable for treatment.
 
Posted by Doublethink (# 1984) on :
 
And Prague are of course totally unbiased ? And have full access to all medical information about the case now ? Because previously they were giving an opinion without that information.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Doublethink:
Well this is where I got the transfer information from.

The impression I get from the relevant paragraph isn't the one that I got from your post.

And why did Southampton only get in touch with Prague on Monday? Why such a delay from 20 August?

Again, I come back to the point I was making earlier: doctors are entirely correct in giving their professional opinion about the best course of treatment. But it is not the role of doctors to control the flow of alternative information. If the clinic in Prague told the family that they would consider treatment but needed documentation first (which appears to be confirmed by the clinic), then it is completely inappropriate for anyone in Southampton to stand in the way of that documentation being provided.

The fact that THEY don't think Prague would offer a better treatment is irrelevant. The family have the right to make that decision themselves, and to be informed by Prague's opinion. It would be a very different situation if Prague said "no, he is not suitable for our treatment", but that hadn't happened.
 
Posted by Doublethink (# 1984) on :
 
It appears the father believed that conventional treatment would either kill his son or turn him into a "vegetable".

This suggests an extremely polarised position between the family and the hospital.

Rationally, why would you give a treatment to prevent lethal relapse if you believed it would kill your patient ? You'd give palative care in such circumstances.

Vincristin can be lethal if given incorrectly, I wonder how much of the dispute is about the radiotherapy and how much is about the chemotherapy.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Doublethink:
And Prague are of course totally unbiased ? And have full access to all medical information about the case now ? Because previously they were giving an opinion without that information.

What opinion did they give before? As far as I can see they said they wanted further information about the boy's condition.

As to totally unbiased: maybe no-one is totally unbiased. There's no evidence to show that Prague is more biased than Southampton. There's nothing wrong with 2 medical establishments both offering a treatment plan for a patient and saying "we think this is the best option". There's only something wrong with one of those establishments saying "if you pick the other plan, we'll get a court order".
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Doublethink:
Well this is where I got the transfer information from.

The impression I get from the relevant paragraph isn't the one that I got from your post.

And why did Southampton only get in touch with Prague on Monday? Why such a delay from 20 August?

Again, I come back to the point I was making earlier: doctors are entirely correct in giving their professional opinion about the best course of treatment. But it is not the role of doctors to control the flow of alternative information. If the clinic in Prague told the family that they would consider treatment but needed documentation first (which appears to be confirmed by the clinic), then it is completely inappropriate for anyone in Southampton to stand in the way of that documentation being provided.

The fact that THEY don't think Prague would offer a better treatment is irrelevant. The family have the right to make that decision themselves, and to be informed by Prague's opinion. It would be a very different situation if Prague said "no, he is not suitable for our treatment", but that hadn't happened.

Well firstly he had a second surgery on the 22nd of August, so I am guessing the medical team might have been wanting to see him stabilise post-operatively before being able to assess accurately what to do next, or for that matter to be able to provide current medical information to Prague.

Press reports suggest that Prague have been sent his MRI scans. But if he had brain surgery on the 22nd of August, there would little point in sending such scans until there was a enough post-op recovery to show clearly what they would be working with.
 
Posted by Matt Black (# 2210) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Matt Black:
Whilst it does seem that the PTB overreacted after the removal from the hospital - and possibly before - someone raised the question on page 1 as to why it was apparently necessary for the both parents, plus Ashya, to go to Spain for apparently the sole purpose of selling a property. I can understand them removing him to take him to Prague, but this is the part on the parents' side that makes no sense to me.

One can only speculate as to whether they'd have done the same without the perception that their wishes were being ignored and/or overridden.

Assuming that's genuinely their perception of course. But I do think that if they really believed there was going to be some kind of legal action to enforce the hospital's treatment, they wouldn't leave him in the hospital while making visible steps towards their own preferred treatment.

In their eyes, that might've been a move that could trigger a hospital response just as much as what they actually did.


Why/ how would the hospital have found out that one of them had gone to Spain? Hordes of Brits go to Spain each summer.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Doublethink:
And Prague are of course totally unbiased ? And have full access to all medical information about the case now ? Because previously they were giving an opinion without that information.

What opinion did they give before? As far as I can see they said they wanted further information about the boy's condition.

As to totally unbiased: maybe no-one is totally unbiased. There's no evidence to show that Prague is more biased than Southampton. There's nothing wrong with 2 medical establishments both offering a treatment plan for a patient and saying "we think this is the best option". There's only something wrong with one of those establishments saying "if you pick the other plan, we'll get a court order".

The court order doesn't mean the hospital get to choose the treatment, it means the case goes to legal arbitration basically. With an independent legal guardian for the child.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Doublethink:
The court order doesn't mean the hospital get to choose the treatment, it means the case goes to legal arbitration basically. With an independent legal guardian for the child.

Yes. What I meant was that the decision-making would be taken away from the parents. That is "if you don't choose our treatment plan, we'll take away your choice".

That doesn't automatically mean that the legal arbitration would go with Southampton's plan. But that approach still involves a piece of leverage against the parents (assuming that anyone did in fact convey anything along these lines). It still means that there are adverse consequences to picking a different treatment option.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Matt Black:
Why/ how would the hospital have found out that one of them had gone to Spain? Hordes of Brits go to Spain each summer.

The reports are that both parents were constantly at the hospital. They wouldn't have necessarily known where one parent had gone, but after a few days it wouldn't have been difficult to notice that one parent was gone.
 
Posted by Matt Black (# 2210) on :
 
I don't think that kind of reasoning would have stood up to scrutiny by a Family Court judge.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Doublethink:
quote:
Originally posted by orfeo:
quote:
Originally posted by Doublethink:
Well this is where I got the transfer information from.

The impression I get from the relevant paragraph isn't the one that I got from your post.

And why did Southampton only get in touch with Prague on Monday? Why such a delay from 20 August?

Again, I come back to the point I was making earlier: doctors are entirely correct in giving their professional opinion about the best course of treatment. But it is not the role of doctors to control the flow of alternative information. If the clinic in Prague told the family that they would consider treatment but needed documentation first (which appears to be confirmed by the clinic), then it is completely inappropriate for anyone in Southampton to stand in the way of that documentation being provided.

The fact that THEY don't think Prague would offer a better treatment is irrelevant. The family have the right to make that decision themselves, and to be informed by Prague's opinion. It would be a very different situation if Prague said "no, he is not suitable for our treatment", but that hadn't happened.

Well firstly he had a second surgery on the 22nd of August, so I am guessing the medical team might have been wanting to see him stabilise post-operatively before being able to assess accurately what to do next, or for that matter to be able to provide current medical information to Prague.

Press reports suggest that Prague have been sent his MRI scans. But if he had brain surgery on the 22nd of August, there would little point in sending such scans until there was a enough post-op recovery to show clearly what they would be working with.

Fair enough. And it may well be that there was some miscommunication with the parents over the willingness of Southampton to talk to Prague.

I would note, though, that the Telegraph article you linked to describes the Southampton hospital as executing a U-turn, from "he's getting the best possible care and proton beam therapy won't help" one day, to "we're talking to Prague" the next day. The earlier statements don't really seem to convey an idea that the issue was needing to wait before sending information, they seem more along the lines of having decided there was no need to send information.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Matt Black:
I don't think that kind of reasoning would have stood up to scrutiny by a Family Court judge.

I think you're probably right. But if you were in the parent's shoes, would you wait to find that out?

I'm not saying I think their actions are perfectly rational and the best possible option, but I do think they're understandable actions if they are giving a truthful description of how they perceived the hospital's attitude.
 
Posted by JoannaP (# 4493) on :
 
quote:
Originally posted by orfeo:
Obviously we don't know exactly what was said, but currently the Kings are saying that the perception they got was that the doctors would take legal action to enforce their treatment plan.

No-one should have ever suggested such a thing. The law is only supposed to be there to step in when parents are acting entirely outside reasonable bounds, not when they are making a choice which is within the bounds of reasonableness. Opting for another medical treatment might not be what the doctors in Southampton recommended, but that's not the right question.

The doctors do not have the authority to take legal action to enforce their treatment plan. The various protection orders can only be granted by a judge at the request of a local authority or the NSPCC so, to deny the Kings access to their son, the hospital authorities would have to persuade at least two other people that it was necessary. It took me less than 10 minutes to find that out so, why the Kings could not spare the time from researching Proton Beam Therapy to do that, I do not know. It is possible that being JW's has affected their perceptions on this matter.


quote:
Originally posted by orfeo:
As for 'secrecy': Where's the obligation to give the hospital information? Given all the things that the hospital seems to have successfully worked out (he's gone, his parents have him, they have a feeding system, they want to take him to another clinic), what exactly were the parents supposed to tell the hospital?

The scenario as currently presented doesn't really have the hospital in the dark about much. The main thing missing is an opportunity for the hospital to act to prevent the child's removal. That's not a piece of information.

At the time the hospital called the police, all they knew was that a seriously ill child was missing and his parents could not be contacted. They did not know that Ashya was still with his parents until they were found. I assume that, before they could take him off the ward, there was some informal agreement as to where they would take him and for how long; at the very least a commitment to return him. So they did give the hospital misinformation; even if there was no obligation on them to provide any information.
 
Posted by Moo (# 107) on :
 
quote:
Originally posted by justlooking
But UK law treats children as having rights and interests independent of their parents or of state authorities. When it comes to a dispute or when a child is seen to be in danger the court and legal system ensure the child's rights and interests take priority.

The problem lies in determining what the child's interests actually are.

There was a case about thirty years ago which I found extremely disturbing. Back in the days when treatment for childhood leukemia was not very good, a child's parents wanted to withdraw him from a treatment whose side-effects, they said, made him very restless and miserable all the time. Given the fact that his chances of survival were considerably less than fifty-fifty, they wanted his last days to be as pleasant as possible.

The doctor who was treating the child said that the treatment did not have the effect the parents said it did. He saw the child once a week, but he was sure he knew more about how the child felt and behaved at home than the parents did. His arrogance took my breath away.

The matter came to court, and the parents were allowed to discontinue the treatment. The boy's last days were much more pleasant than they would have been if the treatment had been continued.

Moo
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Doublethink:
quote:
Originally posted by orfeo:
quote:
Originally posted by Doublethink:
Well this is where I got the transfer information from.

The impression I get from the relevant paragraph isn't the one that I got from your post.

And why did Southampton only get in touch with Prague on Monday? Why such a delay from 20 August?

Again, I come back to the point I was making earlier: doctors are entirely correct in giving their professional opinion about the best course of treatment. But it is not the role of doctors to control the flow of alternative information. If the clinic in Prague told the family that they would consider treatment but needed documentation first (which appears to be confirmed by the clinic), then it is completely inappropriate for anyone in Southampton to stand in the way of that documentation being provided.

The fact that THEY don't think Prague would offer a better treatment is irrelevant. The family have the right to make that decision themselves, and to be informed by Prague's opinion. It would be a very different situation if Prague said "no, he is not suitable for our treatment", but that hadn't happened.

Well firstly he had a second surgery on the 22nd of August, so I am guessing the medical team might have been wanting to see him stabilise post-operatively before being able to assess accurately what to do next, or for that matter to be able to provide current medical information to Prague.

Press reports suggest that Prague have been sent his MRI scans. But if he had brain surgery on the 22nd of August, there would little point in sending such scans until there was a enough post-op recovery to show clearly what they would be working with.

Fair enough. And it may well be that there was some miscommunication with the parents over the willingness of Southampton to talk to Prague.

I would note, though, that the Telegraph article you linked to describes the Southampton hospital as executing a U-turn, from "he's getting the best possible care and proton beam therapy won't help" one day, to "we're talking to Prague" the next day. The earlier statements don't really seem to convey an idea that the issue was needing to wait before sending information, they seem more along the lines of having decided there was no need to send information.

I think that the the headline is misleading given the content of the article.

In particular, the Southhampton doctor doesn't comment on specifically on Aysha's case in that article he gives general informaiton and secondly the issue is th epros and cons of different types of radiotherapy, which is better in terms of side effects - not clinical effect. In effect, what Southhampton have argued is that they have offered appropriate, treatment and that basically they are being asked to offer a more expensive version of that treatment in another country with little evidence that doing so will offer benefit over an above what they are already offering.

[ 03. September 2014, 13:03: Message edited by: Doublethink ]
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Doublethink:
I think that the the headline is misleading given the content of the article.

We shall have to agree to disagree on that.
 
Posted by Beeswax Altar (# 11644) on :
 
Reading some of the comments on this thread, you would think that the King's read about some novel cancer treatment on the internet and then found a mechanic in Prague who would agree to do it. All of the world's doctors don't live in the UK. The ones who don't may not factor in what is most cost effective for the NHS when recommending a course of treatment. Parents in the UK should have every right to take their child to receive treatment under such a doctor without the government taking their child away to assuage the pride of doctors in the NHS.

They were offered a second opinion? You mean the NHS was willing to bring in a second doctor to explain the NHS policy to the Kings? The court will appoint a legal guardian to make decisions in the best interest of the child? What qualifications will the legal guardian have to make medical decisions for the child of another couple? Will the guardian seek expert medical advice? No doubt the guardian will ask doctors from the NHS about what's in the best interest of the child and act accordingly.

I wish this shit didn't happen in the United States but it does. Here, the police, child protective services, and courts got involved when parents tried to move their child from Boston Children's Hospital back to Tufts Medical Center. The parents didn't sufficiently kiss the Ivy League asses of the doctors at Boston Children's Hospital.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by orfeo:
And why did Southampton only get in touch with Prague on Monday? Why such a delay from 20 August?

The legal situation under the Data Protection Act.

quote:
But it is not the role of doctors to control the flow of alternative information. If the clinic in Prague told the family that they would consider treatment but needed documentation first (which appears to be confirmed by the clinic), then it is completely inappropriate for anyone in Southampton to stand in the way of that documentation being provided.
And if a journalist pretending to be a clinic in Prague phoned up and asked for the infomation? What then? There are little things like the Data Protection Act to prevent just this scenario happening.

quote:
The fact that THEY don't think Prague would offer a better treatment is irrelevant. The family have the right to make that decision themselves, and to be informed by Prague's opinion.
That does not mean that the hospital in Prague can contact Southampton and say "Hi. Can we have random patient's medical notes." Standard process says that the hospital can not give out the notes without consent of the patient - or the patient's guardians where applicable. The patient's guardians were not able to be contacted for obvious reasons. At which point the hospital could not legally send the notes to Prague.

When the patient's guardians reappeared and made explicitly clear what they wanted to do then and only then could the notes be sent to Prague without breaking the Data Protection Act.

Without the patient or the person legally able to speak for the patient (i.e. the parents) saying that the notes should be sent to Prague then it is illegal to send them to Prague. And I see no evidence to say that the patients had asked for the notes to be sent to that specific hospital.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Justinian:
And if a journalist pretending to be a clinic in Prague phoned up and asked for the infomation? What then?

Maybe we can wait until that actually happens to find out. I'm not going to speculate on slippery slope bogeymen ideas like this.

[ 03. September 2014, 13:24: Message edited by: orfeo ]
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Justinian:
And if a journalist pretending to be a clinic in Prague phoned up and asked for the infomation? What then?

Maybe we can wait until that actually happens to find out. I'm not going to speculate on slippery slope bogeymen ideas like this.
Or maybe we can obey the law that was put in place for a depressingly common thing - and not blame the hospital for not breaking the law.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Justinian:
quote:
Originally posted by orfeo:
quote:
Originally posted by Justinian:
And if a journalist pretending to be a clinic in Prague phoned up and asked for the infomation? What then?

Maybe we can wait until that actually happens to find out. I'm not going to speculate on slippery slope bogeymen ideas like this.
Or maybe we can obey the law that was put in place for a depressingly common thing - and not blame the hospital for not breaking the law.
You seem to be missing the fact that the parents were around for at least a week between contacting Prague and leaving the hospital. Your proposition that it wasn't possible to obtain the parent's consent makes no sense. This isn't something that only arose after they left the UK.

Surely you're aware that I, of all people, wouldn't advocate breaking the law!

[ 03. September 2014, 13:32: Message edited by: orfeo ]
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Justinian:
quote:
Originally posted by orfeo:
quote:
Originally posted by Justinian:
And if a journalist pretending to be a clinic in Prague phoned up and asked for the infomation? What then?

Maybe we can wait until that actually happens to find out. I'm not going to speculate on slippery slope bogeymen ideas like this.
Or maybe we can obey the law that was put in place for a depressingly common thing - and not blame the hospital for not breaking the law.
You seem to be missing the fact that the parents were around for at least a week between contacting Prague and leaving the hospital. Your proposition that it wasn't possible to obtain the parent's consent makes no sense. This isn't something that only arose after they left the UK.

Surely you're aware that I, of all people, wouldn't advocate breaking the law!

If the parents did not explicitly tell the hospital to send the medical records to Prague then the hospital was not legally able to do so. Incoming requests for medical records without such authorisation get a polite response - or sometimes just moved to the round file. If the patients had specifically told the hospital "Please send copies of the medical records to Prague" (or more likely "We want a copy of the notes so far" and the parents to then send it on) then and only then was the hospital legally authorised to do so - and with the working relationship the parents didn't have with the hospital I doubt that happened.
 
Posted by Eirenist (# 13343) on :
 
One thing we can be reasonably sure of about this case: if Ashya is treated by the Prague hospital, and the treatment proves ineffective, it is the hospital in Southampton that will get the blame.
 
Posted by 3M Matt (# 1675) on :
 
The state are swallowing us all up. Particularly in regards to child care.

They want to lower the age that children start school. They want to make the school day longer and longer.

Why? Because they want the children in the hands of the state MORE and in the hands of their parents LESS, because then they can exert more control over the kind of people they turn out to be.

Paranoid? Possibly, but it's a hypothesis that fits the facts.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by 3M Matt:
The state are swallowing us all up. Particularly in regards to child care.

They want to lower the age that children start school. They want to make the school day longer and longer.

Why? Because they want the children in the hands of the state MORE and in the hands of their parents LESS, because then they can exert more control over the kind of people they turn out to be.

Paranoid? Possibly, but it's a hypothesis that fits the facts.

Because Tories are such a fan of teachers.
 
Posted by chive (# 208) on :
 
I think the hospital and police response was absolutely reasonable and proportionate. A seriously ill child was removed from the hospital. The hospital had made arrangements for the child to be away for a short period. Instead the family disappeared to another country with the child. At this point the hospital and the police did not know where the child was, whether the child had appropriate care and even if the child was dead or alive.

I'm not saying the parents acted maliciously. I have nothing but compassion for a family which is going through one of the most distressing things possible. I think they did not act entirely rationally and the fact they went to Spain rather than straight to the Czech Republic suggests this.

The hospital and the police had no other options. What would have happened if they did nothing and the child died? They had responsibility for the medical care of the child and they couldn't exercise it if the child wasn't there. There is definitely no question that they acted maliciously. They did what they felt, no doubt on legal and medical advice, was the best interests of the child.

This is one of these situations where there is no right answer only a tragedy. I think all parties acted in what they believed was the best interests of the child as they saw it. That is what they should be doing.
 
Posted by Belle Ringer (# 13379) on :
 
Once the parents were located, they could have been talked to instead of hauled into jail, hear their concerns. Even if arrested they could have been allowed at their son's bed under guard instead of preventing him from seeing them.

And if they were at his bed constantly in the UK hospital they were well aware of what treatments - or none but feeding - the child was receiving.

One article I read (I admit only one mentioned it) said the parents had been told by the doctors their son has only 4 months to live. If that's true I am totally on their side, nothing to lose possibly everything to gain in changing treatments, with or without permission.

I have had doctors "forbid" me to reject their tests and treatments. I walk out of their office, I tell them order any tests they want I'm not paying for them. I've had doctors follow me to the door telling me have to obey them. Some doctors even today really do use threats (that they know are not enforceable but the patients don't know) to get compliance.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
quote:
Originally posted by Gracie:
Except here the issue for the parents as stated by them was not the effectiveness of one treatment over the other, but rather the perceived devastating side effects of conventional radiotherapy compared to those potentially caused by proton bean therapy.

What evidence there is, doesn't suggest much if any difference and that evidence is not very strong see here


quote:
A 2009 systematic review found that "No comparative study reported statistically significant or important differences in overall or cancer-specific survival or in total serious adverse events."[1][2]
quote:
Two prominent examples are pediatric neoplasms (such as medulloblastoma) and prostate cancer. In the case of pediatric treatments, a 2004 review gave theoretical advantages but did not report any clinical benefits.[18][19]

The texts you quote do not talk about the comparative side effects at all.
 
Posted by Byron (# 15532) on :
 
quote:
Originally posted by Belle Ringer:
Once the parents were located, they could have been talked to instead of hauled into jail, hear their concerns. Even if arrested they could have been allowed at their son's bed under guard instead of preventing him from seeing them. [...]

Problem with that is, the Spanish authorities would have very little to go on, as they were dependent on England for the facts of the case. All they knew was that the Kings were accused of neglect, and were an obvious flight risk.

Looks like it was all dropped before more info could be brought before a Spanish court.
 
Posted by JoannaP (# 4493) on :
 
At the moment, the more I read of what Mr King has been saying, the less sympathy I feel for him. This BBC piece suggests that is is a case of choosing whom to believe, as the two versions are just not compatible.
quote:
Speaking about the family's relationship with doctors in Southampton, Mr King said: "They threatened me previously. When I asked about his cancer... they said if I ask anymore questions the right for me to make a decision will be taken away from me because they get immediate courts paper to say that they have right over my child.

"I had so much fear to mention anything to them because they could have stopped my son getting any treatment and just forcing this very strong treatment on him.

"So from that moment on I had to keep everything quiet."

Dr Pete Wilson, chief paediatrician at Southampton General Hospital, said doctors had told the family they believed proton beam therapy had "no benefit" but had still agreed to refer him for the treatment to be paid by the family and were in the process of helping them down this route.

He also denied any threats were made, adding: "When they [doctors] were asked directly by the family what would happen if they refused treatment, any treatment, they were told that in exceptional circumstances, as doctors, we would need to act in Ashya's best interests and that may need going to the court.


 
Posted by itsarumdo (# 18174) on :
 
The worth of current medical wisdom and evidence should also considered whilst carrying a small salt shaker. Especially for Cancer. There has been a fashion ("evidence", "best practice") in medicine for some years now that some women receive double mastectomies based on genetic profiling to prevent inevitable breast cancer. The latest evidence is that this has absolutelty no measurable effect on survival or lifespan. If I were Angelina Jolie, I would have a rather wry expression on my face the next time a specialist told me that he was very certain that X would happen and that Y is the best treatment in my particular situation.

The mistake is to think that science NOW is at some peak of wisdom that means it must be so correct that it can't possibly be that wrong. In fact, particularly for medical science, there are very few absolutes that are known with 100% certainty. Other than we are born and some time later we die. One major problem with medical best practice is that it is measured relative to placebo. If you investigate placebo, you will find it is so ill defined that the unit of measurement being applied is more variable in size than a poets monthly income.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Gracie:
quote:
Originally posted by Doublethink:
quote:
Originally posted by Gracie:
Except here the issue for the parents as stated by them was not the effectiveness of one treatment over the other, but rather the perceived devastating side effects of conventional radiotherapy compared to those potentially caused by proton bean therapy.

What evidence there is, doesn't suggest much if any difference and that evidence is not very strong see here


quote:
A 2009 systematic review found that "No comparative study reported statistically significant or important differences in overall or cancer-specific survival or in total serious adverse events."[1][2]
quote:
Two prominent examples are pediatric neoplasms (such as medulloblastoma) and prostate cancer. In the case of pediatric treatments, a 2004 review gave theoretical advantages but did not report any clinical benefits.[18][19]

The texts you quote do not talk about the comparative side effects at all.
A "serious adverse event" would be a serious side effect. Plus you need to read the whole article.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Belle Ringer:
One article I read (I admit only one mentioned it) said the parents had been told by the doctors their son has only 4 months to live. If that's true I am totally on their side, nothing to lose possibly everything to gain in changing treatments, with or without permission.

The telegraph article I cited some posts ago gives a life expectancy of three months - without further treatment.
 
Posted by JoannaP (# 4493) on :
 
quote:
Originally posted by Doublethink:
quote:
Originally posted by Belle Ringer:
One article I read (I admit only one mentioned it) said the parents had been told by the doctors their son has only 4 months to live. If that's true I am totally on their side, nothing to lose possibly everything to gain in changing treatments, with or without permission.

The telegraph article I cited some posts ago gives a life expectancy of three months - without further treatment.
According to Dr Pete Wilson, chief paediatrician at Southampton General Hospital, Ashya King is:
quote:
a young lad who has a very, very good chance of survival if he receives rapid treatment. (source)
Which, to me, is not compatible with his father's claim that he has only four months to live.
 
Posted by Doublethink (# 1984) on :
 
Makes sense of why the hospital were so intensely worried - question "what if we refuse all treatment" action "leave hospital with child leaving no information" does not necessarily = obvious conclusion is they are looking for another hospital.
 
Posted by justlooking (# 12079) on :
 
This struck me as significant:
quote:
Ashya is required to undergo two cycles of chemotherapy before he could be treated in Prague.

That is expected to take several weeks but afterwards Ashya would be able to travel to the Czech Republic.

So there was nothing to gain in removing Aysha before his chemotherapy was completed.

Also this:

quote:
"When [the doctors] were asked directly by the family what would happen if we refused any treatment they were told that in exceptional circumstances, as doctors, we would need to act in Ashya's best interests and that may need going to the court.

"[A threat] wasn't made. A question was asked what would happen if we refused treatment.

That looks like the parents making a threat, not the other way round. When they then disappeared with Aysha doctors may have suspected they were planning to keep him away from any medical help.

The arrest warrant has been withdrawn but Aysha remains a ward of court and any decision will now have to have the court's approval. .

[ 03. September 2014, 21:15: Message edited by: justlooking ]
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
A "serious adverse event" would be a serious side effect. Plus you need to read the whole article.

A "serious adverse event" would be one kind of serious side effect, but would not cover all serious side effects as I understand it. I don't get the impression from listening to Mr King that he got his information from Wikipedia.
 
Posted by North East Quine (# 13049) on :
 
While he was still missing, friends of the family said that they understood that his illness was terminal, and that the family refused to believe that no more could be done.

There seems to a big discrepancy between what the Kings claimed they believed the situation to be, and what the hospital are saying the situation was.
 
Posted by JoannaP (# 4493) on :
 
quote:
Originally posted by Gracie:
I don't get the impression from listening to Mr King that he got his information from Wikipedia.

Well no. If he had, he would know that Proton Beam Therapy is a form of radiotherapy for starters.
 
Posted by Justinian (# 5357) on :
 
This recent update leads to an obvious question:

If the kid has months to live without treatment, and will probably survive with treatment, and the parents refuse to let the kid receive treatment, should the parents have the right to let their kid die?

My answer is "Fuck, no. That's murder by neglect."

Those criticising Southampton, what would you do differently if that was the situation you thought you were in? A parent taking their child away from any practical treatment.
 
Posted by North East Quine (# 13049) on :
 
I'm not criticising Southampton. But there seems to have been a huge breakdown in communication.

If I believed that my child was getting optimal treatment in hospital, then hospital is where my child would be.

If I believed my child was dying in hospital, that if I challenged his doctors in any way, I might be excluded from contact with my child, but that there was an alternative treatment which held out hope, I might well do what the Kings did.

The question for me is - why is there such a discrepancy between what the Kings appear to to have believed the situation to have been, and what the hospital says the situation was?
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Justinian:
This recent update leads to an obvious question:

If the kid has months to live without treatment, and will probably survive with treatment, and the parents refuse to let the kid receive treatment, should the parents have the right to let their kid die?

My answer is "Fuck, no. That's murder by neglect."

(Emphasis added by me.)

That's my answer as well, as I'd already said in relation to a case that bib raised.

But it is simply wrong to equate wanting a different treatment with 'refusal to let the kid receive treatment'. This is clearly NOT a case of refusing to let a kid be treated. Refusal of a particular treatment is not refusal of treatment. Not unless there is no other treatment is available.

[ 04. September 2014, 02:36: Message edited by: orfeo ]
 
Posted by orfeo (# 13878) on :
 
ADDENDUM: And I do note your claim about taking a child away from "any practical treatment". This again has the flavour of depicting continental Europe as some kind of wasteland devoid of decent medical care.

I simply don't buy this proposition that this child was doomed if he was anywhere other than a particular hospital in Southampton.
 
Posted by Zacchaeus (# 14454) on :
 
Hindsight is a wonderful thing.

A very sick child disappeared, a week after an operation, without information as to where he was, what was going to happen to him and what provision for his ongoing care were in place. Even Ashya’s grandmother did not know what was happening.

At the time of his disappearance the hospital got flack for waiting 6 hours before reporting him missing.

We now know what happened, but it still remains his parent took him on an arduous journey by boat and car while he was very ill. I have done the journey to Spain by boat and car and it is not easy even for a healthy adult.

And the end destination of that journey was not treatment for Ashya, treatment is still another 1300 miles away across Europe.

Erm I can see why authorities are concerned about him and want to make sure he gets care…

What that care will be has not been specified, but it concerns me about the parents state of mind and understanding of what is being said to them.
 
Posted by seekingsister (# 17707) on :
 
quote:
Originally posted by Zacchaeus:
Hindsight is a wonderful thing.

A very sick child disappeared, a week after an operation, without information as to where he was, what was going to happen to him and what provision for his ongoing care were in place. Even Ashya’s grandmother did not know what was happening.

At the time of his disappearance the hospital got flack for waiting 6 hours before reporting him missing.

We now know what happened, but it still remains his parent took him on an arduous journey by boat and car while he was very ill. I have done the journey to Spain by boat and car and it is not easy even for a healthy adult.

But the question still remains, given that the Southampton police have said they broke no laws in taking the child out of the hospital in the first place:

1. Why was a European arrest warrant issued instead of a general Europe-wide alert to find the family and ensure the health of the child?

2. Why were the parents arrested, jailed, and separated from the child?

It's one thing to claim that the hospital was only concerned for Ashya's life, but the response was nonetheless excessive.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Zacchaeus:
Hindsight is a wonderful thing.

A very sick child disappeared, a week after an operation, without information as to where he was, what was going to happen to him and what provision for his ongoing care were in place. Even Ashya’s grandmother did not know what was happening.

At the time of his disappearance the hospital got flack for waiting 6 hours before reporting him missing.

We now know what happened, but it still remains his parent took him on an arduous journey by boat and car while he was very ill. I have done the journey to Spain by boat and car and it is not easy even for a healthy adult.

And the end destination of that journey was not treatment for Ashya, treatment is still another 1300 miles away across Europe.

Erm I can see why authorities are concerned about him and want to make sure he gets care…

What that care will be has not been specified, but it concerns me about the parents state of mind and understanding of what is being said to them.

He did not simply disappear, though. It was clearly worked out that he was with his parents.

Given that it was clearly lawful for him to be with his parents, the next question is, what obligation was there for his parents to give anyone further information about precisely where he was, or what provision had been made for his care (again, the most crucial piece of information was known - he had a feeding tube)?

I suggest it's far from clear they had any obligation to provide further information. They didn't have an obligation to the hospital any more than they had an obligation to the grandmother. I can well understand why the hospital might want more information, but that's different.

This again comes back to the 'concern' being based on speculation as much as facts, and a system that encourages people to fill in the blanks in the worst way possible. Yes, the hospital staff knew he was ill, but they also knew he was being cared for. Maybe they thought that care was not as good as the care they would have provided, but charges of child neglect should be for demonstrable cases of inadequate care, not for speculative ones.

It would have been perfectly possible for the hospital to express its desire for further information, to make sure that he was alright, by finding ways to ask the parents to provide that reassurance. They could have left phone messages, sent emails, left messages with relatives such as the grandmother, all saying "can you please get in touch and let us know that he's okay".

Instead, they turned "we don't know whether he's okay" into more positive assertions that he wasn't okay. That's the problem. The legal system was used to convey that this child was in danger. I can well understand why the lack of information led to speculation, but someone along the bureaucratic chain should have hit the pause button and asked what was actually known and what was speculation.

The impression that he was in imminent danger because his feeding device battery was going to run out is perhaps the most dramatic example of speculation. Some of the reporting certainly seems to indicate that the hospital gave this impression to some people. But any statement that "he will starve because the battery will drain" was a speculative one.

A truer, and less urgent-sounding, statement would be "it's possible he might starve because we're not sure whether they have a charger for the battery, but at the same time if that happens we recognise there's a fair chance they'll seek help at a hospital because they know he needs the tube and they want what's best for him".

None of that paragraph requires hindsight. All that it requires is a series of reasoned inferences from information already known to the hospital.

[ 04. September 2014, 09:16: Message edited by: orfeo ]
 
Posted by orfeo (# 13878) on :
 
It's not unlike what happens with terrorism. I can't remember the name of the documentary, but there's a show examining 9/11 and the response where one person involved in the United States intelligence agencies observed how, after 9/11, there was this sense that every possible risk had to be neutralised.

The result was a system that encouraged people to imagine the worst possible scenario, with no mechanism in place to assess how likely this doomsday actually was, and whether addressing this doomsday was the best use of available resources.

In my own country, a raft of new anti-terrorism laws were passed. I think at one point the average rate was one a week. The intelligence agencies basically had to say "we might need this" and they would get it.

Some of those laws eventually resulted in an innocent doctor being detained for 25 days as a suspected terrorist. Subsequent investigations showed how those who tried to point out there wasn't actually much in the way of solid evidence linking him to terrorism were overridden by those determined to create a speculative scenario that showed he was a terrorist.

Western countries agitated for Indonesia to create new terrorism laws to deal with the Bali bombers. The conviction of these people was placed in jeopardy after the Indonesian consitutional court ruled that the laws could not be applied retrospectively. No-one seemed to say for a long time "hang on, why don't we just charge them with 200 counts of murder?"

We seem to have a cycle whereby public/media outrage that something wasn't done in a particular case leads to a determination to be seen to be doing something in every case. The fear of being seen to be inactive is far greater than the fear of doing the wrong thing. That's precisely why you get heavy-handed responses - because being seen to do something becomes more important than working out the best thing to do.
 
Posted by itsarumdo (# 18174) on :
 
quote:
Originally posted by orfeo:
...

We seem to have a cycle whereby public/media outrage that something wasn't done in a particular case leads to a determination to be seen to be doing something in every case. The fear of being seen to be inactive is far greater than the fear of doing the wrong thing. That's precisely why you get heavy-handed responses - because being seen to do something becomes more important than working out the best thing to do.

Nail on the head
 
Posted by orfeo (# 13878) on :
 
^ Thanks.

"You must do something" is one of the most unhelpful sentences in the English language. Even when it's correct, it's rarely useful information.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by seekingsister:

But the question still remains, given that the Southampton police have said they broke no laws in taking the child out of the hospital in the first place:

1. Why was a European arrest warrant issued instead of a general Europe-wide alert to find the family and ensure the health of the child?

2. Why were the parents arrested, jailed, and separated from the child?

It's one thing to claim that the hospital was only concerned for Ashya's life, but the response was nonetheless excessive.

They broke no laws in taking the child out of hospital but their actions gave rise to justifiable fear for the child and the hospital would have been in breach of its legal obligations if it had taken no action. Once the child was made a ward of court then the parents had to comply with the court's orders.

An arrest warrant was issued because the child appeared to be in danger and in need of speedy intervention to ensure his safety.

The parents' arrest and the subsequent actions of the Spanish police were in accordance with the legal processes following the issuing of an arrest warrant.

Every decision now is subject the court's approval. The court's duty is to act in the child's best interests and with regard to the child's wishes, as far as his wishes can be determined.

I see nothing excessive in the actions taken by the hospital, the court or the police in order to safeguard this child.

[ 04. September 2014, 10:03: Message edited by: justlooking ]
 
Posted by Zacchaeus (# 14454) on :
 
When a child’s health is at stake they cannot afford to make ‘reasoned inferences’ they have to be certain. The hospital have the obligation to be certain the child is being looked after.

Yes the hospital knew his was with his parents and knew that they cared for him, as in loved him very much. They had no way of knowing for sure that they were caring for his medical needs, they are not allowed to assume or infer.

The hospital tried phoning the family but the calls were ignored and in the absence of information they have to seek to make sure the child is ok.

The hospital had no way of knowing that the family had rigged up a way of charging the food pump using their car battery or had to hand what ever other medical care that we are not allowed to be told about because of patient confidentiality. But there is bound to be medication or other things that Ashya needed.

There will be a lot we don’t know, the family can say what they want now they have been found, but the hospital can’t because of patient confidentiality.

But I ask questions about any parents who can take their very ill child on a journey of 1000 miles, including on a boat, without any medical help on hand. If something had happened and they needed to consult a doctor/hospital there were no medical notes with the child and treatment would be delayed.

If the family thought it essential to all go to Spain to sell their apartment, there would be ways of doing it that gave their child medical care along the way and in place for when they arrived.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Zacchaeus:
When a child’s health is at stake they cannot afford to make ‘reasoned inferences’ they have to be certain. The hospital have the obligation to be certain the child is being looked after.

How so?

Does the local hospital my nephew was born in have an obligation to be certain my nephew is being looked after? Is there some sort of roving duty of care in relation to all children in the area?

I don't think this obligation you are claiming exists. I think a hospital has an obligation to its patients. I don't think it follows that someone who is a patient continues to be a patient. I don't think it follows that termination of the patient/doctor relationship requires the doctor's consent.

[ 04. September 2014, 10:29: Message edited by: orfeo ]
 
Posted by itsarumdo (# 18174) on :
 
I'm sorry, but as soon as "child" is mentioned, there seems to be this all embracing desperate lavender fragrant panic that says "we must do everything". it's a CHILD!!!!!!!!

A child is not some entity on its own - it is part of a family, and there is a natural order of responsibility and authority. The state, the doctors, should come second to that natural order unless it's really really really awry. The lavender and hysteria make it so that a proportionate sense of what is reasonable and that the parents are the childs first primary guardians - have already flown out of the window and are nesting in a tree down the road.

In psychotherapy there is a principle of "good enough" parents - because very few parents have the continuous day by day wherewithal to hang it together through all stages of pregnancy through to adulthood that gives an optimum family life. There is therefore a generational guilt that passes down which is most visible in new mums that says "whatever I do is never good enough". This is the basis of the hysteria that creates these unbalanced decisions. Good enough.

The doctors - in fact - anyone - only have these rights of guardianship transferred if the parents transfer them for some reason - either they wilfully an unmistakably and *repeatedly* abuse the child, or they pass over responsibility voluntarily because they decide that person/organisation is far better resourced to deal with what is happening - for a defined period of time. And I say "repeatedly", because "good enough" means the right to seriously screw up and not be permanently branded by that action or judged by others. We already judge ourselves far too much.
 
Posted by seekingsister (# 17707) on :
 
quote:
Originally posted by justlooking:
They broke no laws in taking the child out of hospital but their actions gave rise to justifiable fear for the child and the hospital would have been in breach of its legal obligations if it had taken no action.

I accept this, but it still is a large leap from "justifiable fear for the child" to criminal neglect.

It is now confirmed that when the hospital told the police that Ashya's life was in immediate danger, this was not actually the case.

The hospital overreached, exaggerated, and perhaps outright lied in order to get that family locked up. And I firmly believe that their JW beliefs played into the hospital's fears. There is an article online of one of their neighbors in Spain who says they were extremely public about their faith and handed out pamphlets constantly. So this was likely known to the hostpical staff.

[ 04. September 2014, 10:38: Message edited by: seekingsister ]
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by itsarumdo:
I'm sorry, but as soon as "child" is mentioned, there seems to be this all embracing desperate lavender fragrant panic that says "we must do everything". it's a CHILD!!!!!!!!

A child is not some entity on its own - it is part of a family, and there is a natural order of responsibility and authority. The state, the doctors, should come second to that natural order unless it's really really really awry. The lavender and hysteria make it so that a proportionate sense of what is reasonable and that the parents are the childs first primary guardians - have already flown out of the window and are nesting in a tree down the road.

In psychotherapy there is a principle of "good enough" parents - because very few parents have the continuous day by day wherewithal to hang it together through all stages of pregnancy through to adulthood that gives an optimum family life. There is therefore a generational guilt that passes down which is most visible in new mums that says "whatever I do is never good enough". This is the basis of the hysteria that creates these unbalanced decisions. Good enough.

The doctors - in fact - anyone - only have these rights of guardianship transferred if the parents transfer them for some reason - either they wilfully an unmistakably and *repeatedly* abuse the child, or they pass over responsibility voluntarily because they decide that person/organisation is far better resourced to deal with what is happening - for a defined period of time. And I say "repeatedly", because "good enough" means the right to seriously screw up and not be permanently branded by that action or judged by others. We already judge ourselves far too much.

This is pretty much my reaction to most of the remarks about the wisdom or otherwise of the parent's decisions. I'm not for a second suggesting that what they did was smart or the best possible option.

But we don't require parents to engage in the best possible option - not least because that requires hindsight, the kind of hindsight best obtained 30 years later when the child hires a psychiatrist and identifies all the ways their parents screwed up their life.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by orfeo:
But it is simply wrong to equate wanting a different treatment with 'refusal to let the kid receive treatment'. This is clearly NOT a case of refusing to let a kid be treated. Refusal of a particular treatment is not refusal of treatment. Not unless there is no other treatment is available.

You might want to re-read Joanna P's comment and follow the link she presented.
quote:
From The Father:
"When they [doctors] were asked directly by the family what would happen if they refused treatment, any treatment, they were told that in exceptional circumstances, as doctors, we would need to act in Ashya's best interests and that may need going to the court."

So the communication pathway with the hospital ran according to the father:
F: What happens if we refuse any treatment [at all]
H: If you refuse all treatment that's murder by neglect
F: *Clams up and stops talking to the hospital*

Sometime later the father takes the child at a point that makes Proton Beam Radiotherapy impossible for now. The last question the father has asked is what happens if he refuses any treatment for his son.

Explain to me please how when the last question the father has asked is what happens if he tries to refuse all treatment, and he takes away the patient at a time that disrupts all plans for Proton Beam Radiotherapy, the obvious inference is not that he is taking the child away for the reason he last asked about and was told wouldn't be allowed? Please further explain how taking the child away just before a necessary stage in the treatment pathway for any radiotherapy makes it likely that he is seeking out a different form of radiotherapy rather than seeking to deny the child treatment?

According to Mr. King's own account, the actions he has let the hospital see are almost entirely in line with the actions of someone trying to ensure that the child does not receive treatment. Asking what happens if he tries denying the kid treatment, then taking them away just before chaemotherapy starts, the chaemo being a necessary precursor to the proton beams the father claims he wants for his son but now can't happen until a new chaemo regime is arranged.

What sort of telepathic powers do you think the hospital should have used to know that the last thing the father asked about was not something he was thinking of? Further what sort of telepathic powers do you think the hospital should have used to realise that the father wanted proton beam radiotherapy rather than more conventional radiotherapy for his son despite the fact that taking the son away when he did meant that a necessary precursor to proton beam radiotherapy was being prevented - and the son is on a clock.

quote:
Originally posted by orfeo:
ADDENDUM: And I do note your claim about taking a child away from "any practical treatment". This again has the flavour of depicting continental Europe as some kind of wasteland devoid of decent medical care.

I simply don't buy this proposition that this child was doomed if he was anywhere other than a particular hospital in Southampton.

And this is a complete misreading.

If the child were in a (non-homeopathic) hospital in Europe, with all the medical notes, I would not have said that. However I do not believe that a hotel with no full time nurses laid on is capable of providing treatment. And he was not actually transferred to a hospital.

The child is on a clock. Four months IIRC. He was just sitting in a hotel room with no medical care arranged - and over 1000 miles away from the hospital his father claims he is to be treated in. Because the father stopped talking to the hospital it is not possible that anywhere he took the kid could have up to date information on the kid's condition. Which means that they would have to start the entire cancer treatment pathway from a relatively early diagnostic phase while the patient is on a clock - and a clock that is ticking while the patient sits in the hotel room.

And even if he had arranged transfer of notes (which he evidently didn't) cancers grow.

[ 04. September 2014, 10:50: Message edited by: Justinian ]
 
Posted by Enoch (# 14322) on :
 
I'm tending to agree with what Orfeo has been saying on this, even though he's thousands of miles away.

However, I'm also tending to suspect that most of our reactions to this sad story are driven by which side we instinctively come down on in respect of a quite different question.
Do we instinctively trust authority figures, experts etc, believe they know best, and act with public spirited integrity until demonstrated otherwise, or are we instinctively suspicious of them? Do we give them the benefit of the doubt, or don't we?

I know that my deep seated instinctive preference for the latter side of that fence is influencing me when I say that, knowing the UK's box-ticking, back-watching, blame-diverting official culture, I tend to assume that the Southampton Hospital feels affronted by a family that hasn't done what it was told and that both the Hospital and the local Police are driven as much by fear of being held responsible à la Baby P etc and being named and shamed by the gutter press if they didn't go over the top and the poor boy died, as by genuine concern for a sick child.

But as I say, I know my reaction is as much influenced by which side of that other fence I instinctively find myself, as by an objective evaluation of this case. I suspect the same is also true of those who leap to defend the Hospital and the Police.
 
Posted by quetzalcoatl (# 16740) on :
 
As well as the idea of good enough parents, therapists also sometimes talk about bad enough parents. This is an interesting idea, meaning that perfect parents would really screw you up. A bit like the oyster and the grit, children need a bit of frustration and bad behaviour by parents; something to get their teeth into. And yes, it is a great boon to psychiatrists and therapists in later life.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by orfeo:
How so?

Does the local hospital my nephew was born in have an obligation to be certain my nephew is being looked after?

Does your nephew have four months to live if they are not treated?

quote:
Is there some sort of roving duty of care in relation to all children in the area?
No. Merely the ones who need medical treatment or they will die.

quote:
I don't think this obligation you are claiming exists. I think a hospital has an obligation to its patients. I don't think it follows that someone who is a patient continues to be a patient. I don't think it follows that termination of the patient/doctor relationship requires the doctor's consent.
It does not.

On the other hand kids are not the property of their parents. Parents do not have the right to kill their children. Had this been an adult recklessly endangering themself rather than a child being recklessly endangered by their parents the response would have been very different.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Enoch:
I'm tending to agree with what Orfeo has been saying on this, even though he's thousands of miles away.

However, I'm also tending to suspect that most of our reactions to this sad story are driven by which side we instinctively come down on in respect of a quite different question.
Do we instinctively trust authority figures, experts etc, believe they know best, and act with public spirited integrity until demonstrated otherwise, or are we instinctively suspicious of them? Do we give them the benefit of the doubt, or don't we?

I know that my deep seated instinctive preference for the latter side of that fence is influencing me when I say that, knowing the UK's box-ticking, back-watching, blame-diverting official culture, I tend to assume that the Southampton Hospital feels affronted by a family that hasn't done what it was told and that both the Hospital and the local Police are driven as much by fear of being held responsible à la Baby P etc and being named and shamed by the gutter press if they didn't go over the top and the poor boy died, as by genuine concern for a sick child.

But as I say, I know my reaction is as much influenced by which side of that other fence I instinctively find myself, as by an objective evaluation of this case. I suspect the same is also true of those who leap to defend the Hospital and the Police.

While I appreciate the theory and agree with it to a considerable extent, I'm going to expand on a point that I briefly made in response to Justinian yesterday.

Politically, I'm moderately left-wing. I don't believe in small government.

I am a bureaucrat.

I write laws. I believe passionately in the rule of law. I doubt I'd enjoy my job if I didn't see it as vital.

I certainly wouldn't spend as much time as I do in trying to explain to clients why I haven't typed what they asked me to type if I didn't think it mattered what the law said. I wouldn't make the lives of clients so goddamn difficult! I'd just keep them happy and ignore the questions in my mind of how the law is going to work in practice, and say that wasn't my problem.

An examination of my history, whether on the Ship or elsewhere, will show me frequently and passionately defending the right of people given authority by the law to exercise that authority.

I instinctively believe, exactly as you describe, that most people in the public service are trying to do their best (just as I believe most people are trying to do their job as well as they can).
I've also observed more than once then when faced with a choice between a government conspiracy and a government stuff-up, one should always assume the stuff-up. I'm not inherently suspicious of government.

So when I look at my fellow bureaucrats - my own team, as it were - and think "oh dear, you've stuffed up", I'm reasonably confident I'm doing it because I genuinely believe that this time around they've stuffed up.

I might also note that I have no children and so don't have any experiences in relation to the government trying to tell me how to bring up my children.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Justinian:
quote:
Originally posted by orfeo:
How so?

Does the local hospital my nephew was born in have an obligation to be certain my nephew is being looked after?

Does your nephew have four months to live if they are not treated?

Who knows? Maybe someone should go around to his house and check.

You still seem to proposing, in the next paragraph of your response, that a hospital automatically has an obligation towards anyone (or at least, anyone under the age of 18?) in the area who is terminally ill. Again I would question that. It would involve a pro-active duty of a hospital to go out and seek the terminally ill, not wait for them to come and ask for help.

Obligations arise from relationships. A hospital has an obligation to its patients. The patient relationship can be terminated.

It seems fairly clear to me that the parents, by their actions, were terminating the patient relationship. I would fully accept that the hospital had obligations towards the boy while they were treating him, but there seems to be this unstated assumption that they were still treating him. I don't think that assumption stands up very well to proper examination.

[ 04. September 2014, 11:11: Message edited by: orfeo ]
 
Posted by itsarumdo (# 18174) on :
 
quote:
Originally posted by quetzalcoatl:
As well as the idea of good enough parents, therapists also sometimes talk about bad enough parents. This is an interesting idea, meaning that perfect parents would really screw you up. A bit like the oyster and the grit, children need a bit of frustration and bad behaviour by parents; something to get their teeth into. And yes, it is a great boon to psychiatrists and therapists in later life.

I don't get that - it's not a familiar idiom to me, and it's not representative of the vast majority of people or therapists I know. Birth is a great boon to paediatricians, to schools, to career advisors, and eventually to people who run care homes for the elderly and to undertakers.
 
Posted by North East Quine (# 13049) on :
 
Originally posted by orfeo:

quote:
Does the local hospital my nephew was born in have an obligation to be certain my nephew is being looked after? Is there some sort of roving duty of care in relation to all children in the area?
Pretty much. The hospital check that, for example, if the parents are taking their newborn baby home by car, they are doing so in a properly fitted car seat. You can't just waltz out of hospital and put a baby in an unsecured carrycot on the back seat. Not here, anyway.

Once you're home, there are follow-up visits by a midwife, and then by a health visitor. Plus you're expected to show up regularly to have your baby weighed at a clinic. I'm not sure at what point alarm bells would start ringing if you kept your baby away from all health professionals, but it would happen at some point.

Also (voice of bitter experience) if your child hasn't been fully vaccinated (because your child had an adverse reaction to the first vaccination and your GP refused to give the second, and this is fully documented on your child's medical records) there are reassessments every few years of your child's not-fully-vaccinated status.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Justinian:
On the other hand kids are not the property of their parents. Parents do not have the right to kill their children. Had this been an adult recklessly endangering themself rather than a child being recklessly endangered by their parents the response would have been very different.

This is relevant to the duties of the parents, not to the duties of a hospital.

It is also relevant some case where the prosecution hasn't said "oh dear, there's absolutely no prospect of a conviction for child endangerment".
 
Posted by Matt Black (# 2210) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Justinian:
quote:
Originally posted by orfeo:
How so?

Does the local hospital my nephew was born in have an obligation to be certain my nephew is being looked after?

Does your nephew have four months to live if they are not treated?

Who knows? Maybe someone should go around to his house and check.

You still seem to proposing, in the next paragraph of your response, that a hospital automatically has an obligation towards anyone (or at least, anyone under the age of 18?) in the area who is terminally ill. Again I would question that. It would involve a pro-active duty of a hospital to go out and seek the terminally ill, not wait for them to come and ask for help.

Obligations arise from relationships. A hospital has an obligation to its patients. The patient relationship can be terminated.

It seems fairly clear to me that the parents, by their actions, were terminating the patient relationship. I would fully accept that the hospital had obligations towards the boy while they were treating him, but there seems to be this unstated assumption that they were still treating him. I don't think that assumption stands up very well to proper examination.

The healthcare service here has an ongoing responsibility to children and other legally vulnerable individuals, whether or not in hospital, hence the visits given as examples by North East Quine above. That relationship does not automatically terminate on discharge from hospital.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by North East Quine:
Originally posted by orfeo:

quote:
Does the local hospital my nephew was born in have an obligation to be certain my nephew is being looked after? Is there some sort of roving duty of care in relation to all children in the area?
Pretty much. The hospital check that, for example, if the parents are taking their newborn baby home by car, they are doing so in a properly fitted car seat. You can't just waltz out of hospital and put a baby in an unsecured carrycot on the back seat. Not here, anyway.

Once you're home, there are follow-up visits by a midwife, and then by a health visitor. Plus you're expected to show up regularly to have your baby weighed at a clinic. I'm not sure at what point alarm bells would start ringing if you kept your baby away from all health professionals, but it would happen at some point.

Also (voice of bitter experience) if your child hasn't been fully vaccinated (because your child had an adverse reaction to the first vaccination and your GP refused to give the second, and this is fully documented on your child's medical records) there are reassessments every few years of your child's not-fully-vaccinated status.

I see. I'm beginning to understand why medical staff think they have a law enforcement role...

I'd note that there are laws here, too, about car seats. Some of the other stuff I wouldn't know about. But while medical staff certainly have a role in advising you that you need a proper car seat, I suspect there'd be a fairly fundamental rule of law problem with preventing you from leaving without a proper car seat. Legal authority to detain people is pretty strictly confined. I can't take action against all the stupid fools who break the speed limit even though I'd dearly love to. About the most I'm empowered to do is report them to the police.

I very much doubt that even laws relating to the welfare of children would alter this. They usually impose duties of reporting, not of enforcement.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Matt Black:
The healthcare service here has an ongoing responsibility to children and other legally vulnerable individuals, whether or not in hospital, hence the visits given as examples by North East Quine above. That relationship does not automatically terminate on discharge from hospital.

Because of the nationalised nature of your health service?

I see.

I don't suppose you have any references to legislation handy?
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by orfeo:
It is also relevant some case where the prosecution hasn't said "oh dear, there's absolutely no prospect of a conviction for child endangerment".

And the prosecution was right to do so based on information that was unavailable to the hospital. Remember that by his own admission the last question the father asked was about withdrawl from treatment - which from his phrasing I and the hospital took to mean withdrawl from all treatment.

The father's actions were not in line with the message he communicated to the hospital. But the hospital didn't have that information. It just had the last thing the father talked with them about being taking the child away from treatment - and then he removed the child just as the treatment was about to start.

Had he been doing what he communicated to the hospital he was going to do there would be a clear cut case for child endangerment.

Why do you expect the hospital to be telepathic?
 
Posted by seekingsister (# 17707) on :
 
quote:
Originally posted by North East Quine:
Pretty much. The hospital check that, for example, if the parents are taking their newborn baby home by car, they are doing so in a properly fitted car seat. You can't just waltz out of hospital and put a baby in an unsecured carrycot on the back seat. Not here, anyway.

Just to say this is not just something that exists in a nationalized health system. I had relatives who had a baby in New York City (where hardly anyone has a car) and you are required to take the newborn home in a car with a properly fitted car seat. So taxis do a good service outside of maternity wards. It's a fairly undue burden given the majority of New Yorkers don't even own cars, so the car seat is rarely used for that purpose afterwards.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Justinian:
Why do you expect the hospital to be telepathic?

I don't. I also don't expect them to ignore the fact that the parents had the presence of mind to take a feeding tube with them.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Justinian:
Why do you expect the hospital to be telepathic?

I don't. I also don't expect them to ignore the fact that the parents had the presence of mind to take a feeding tube with them.
Feeding the patient is not a cancer treatment.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Justinian:
quote:
Originally posted by orfeo:
quote:
Originally posted by Justinian:
Why do you expect the hospital to be telepathic?

I don't. I also don't expect them to ignore the fact that the parents had the presence of mind to take a feeding tube with them.
Feeding the patient is not a cancer treatment.
Agreed. And?

Here's the disconnect I'm feeling right now with this 'child endangerment' argument that is currently running: where's the urgency? Where's the need to have court orders and arrest warrants within a single day?

That kind of action is consistent with imminent danger. Even if the hospital genuinely believed that the intention of the parents was to refuse any kind of treatment for cancer, how does that justify the actions taken in the timeframe in which they were taken?

The very reason for talking about the battery of the feeding machine is that that is framing the problem as a short-term, immediate risk in a way that the cancer treatment issue simply isn't. A belief that the parents would withhold cancer treatment may well justify action, but it does not justify we-have-to-find-him-right-now emergency-order action.

[ 04. September 2014, 11:56: Message edited by: orfeo ]
 
Posted by North East Quine (# 13049) on :
 
Originally posted by orfeo:

quote:
I don't suppose you have any references to legislation handy?
This is a Scottish government publication. See the box on page 10.

I assume the position in the rest of the UK is the same or broadly similar.
 
Posted by Gee D (# 13815) on :
 
NEQ, it has been a breach of traffic laws here for 30 odd years or more for an infant not to be carried in a safe "seat" - the particular style required varies with the age and weight of the child; the of course an ordinary seatbelt is required of all passengers over the age (I think) of 10. But while in practice hospitals enforce that la when a newborn is going home, I doubt very much if they have either a legal obligation to do more than advise, or that they have power to enforce the relevent Act.

And I'd agree with Orfeo's post that the termination of a doctor/patient relationship requires the doctor's consent and the same applies between patients and hospitals- with the obvious exception of a patient being detained under the Mental Health Act, or the patient is unable properly to make a decision and there is no responsible guardian to make the decision.

And surely rights of guardianship of a child only leave the parents if there is a court order to that effect. The proper course for the hospital to take would have been to make an application to the relevant court for an order declaring the child a ward of the court or of the state. Courts here regularly consider applications for such an order when a child of JW parents is said to need a blood transfusion. A court will only make an order if it is satisfied that the treatment is necessary. Now Ashya is out of the UK, that may very well not be possible for such an application to be made. In the absence of an order it's hard to see that the parents her have committed any offence.
 
Posted by itsarumdo (# 18174) on :
 
quote:
Originally posted by Matt Black:
The healthcare service here has an ongoing responsibility to children and other legally vulnerable individuals, whether or not in hospital, hence the visits given as examples by North East Quine above. That relationship does not automatically terminate on discharge from hospital.

Unfortunately anyone under 40 yo has grown up in the UK under the umbrella of the Health and Safety at Work Act. This states that there has to be an identifiable chain of responsibility, and if one is not in place, anyone who should or could have put one in place or acted has some legal culpability. The purpose of this is so that any case of neglect or manslaughter etc brought before courts has a can identify chains of responsibility and thus make the court proceedings easier and less labyrinthine. However, the principle remains a LEGAL construct, not a social one. My personal opinion is that this has created some rather skewed ways of looking at the world - and as has been said previously, there is a lot of ass covering and need to be seen to be doing something. Even if a "seen to be doing something" act is completely OTT or useless, it reduces or removes legal liability. Reducing legal liability is NOT a basis for moral decisions. It is a basis for not having to think about consequences, and a way to not have to engage the brain in making moral decisions.

[ 04. September 2014, 12:09: Message edited by: itsarumdo ]
 
Posted by Gwai (# 11076) on :
 
quote:
Originally posted by North East Quine:
Originally posted by orfeo:

quote:
Does the local hospital my nephew was born in have an obligation to be certain my nephew is being looked after? Is there some sort of roving duty of care in relation to all children in the area?
Pretty much. The hospital check that, for example, if the parents are taking their newborn baby home by car, they are doing so in a properly fitted car seat. You can't just waltz out of hospital and put a baby in an unsecured carrycot on the back seat. Not here, anyway.
You can't walk out of a hospital with a newborn unless you have a car seat here either. Two thoughts about that. One, I'm not sure this example disagrees with Orfeo because the hospital has duty of care for the child until it does approve the baby to go home. Secondly, note that I said you can't walk out of the hospital. That was meant literally. My first two children only went home from the hospital in cars because they had to have a damn car seat anyway. My third child went home in a car seat I carried down to the bus stop despite the fact that a week after surgery I was not supposed to be carrying weights like a car seat. But he had to have a car seat because the law is stupid. And that's exactly the kind of reason some of us have trouble trusting the government to know better, honestly.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by North East Quine:
Originally posted by orfeo:

quote:
I don't suppose you have any references to legislation handy?
This is a Scottish government publication. See the box on page 10.

I assume the position in the rest of the UK is the same or broadly similar.

Thank you, much appreciated.

It looks like a bit of a labyrinth, and has words likes 'guideline' and 'framework' that make me cringe. Homework! Not for tonight, though. I'm declaring myself done for the evening.

[ 04. September 2014, 12:14: Message edited by: orfeo ]
 
Posted by orfeo (# 13878) on :
 
Egads. And in one of the Appendices there's a "resilience matrix". Oh how I love management-speak.

*really closes document*
 
Posted by JoannaP (# 4493) on :
 
quote:
Originally posted by orfeo:

Obligations arise from relationships. A hospital has an obligation to its patients. The patient relationship can be terminated.

It seems fairly clear to me that the parents, by their actions, were terminating the patient relationship. I would fully accept that the hospital had obligations towards the boy while they were treating him, but there seems to be this unstated assumption that they were still treating him. I don't think that assumption stands up very well to proper examination.

Surely a doctor-patient relationship can only be terminated by one of the participants? The parents are not the patient and so do not have the right to terminate the relationship unilaterally.

Also, they did not terminate the relationship; they just removed Ashya from the hospital without providing any notice. Had they tried to discharge him or asked for him to be transferred to another hospital it would be different and the hospital would know that its duty of care had ended (assuming this was allowed to happen and Ashya was not made a ward of court).

According to your logic, when my grandmother, who was suffering from Alzheimer's, wandered out of the hospital after the hip replacement op and somehow managed to find her way home, she should have been allowed to stay home, having left her clothes, medication, etc. etc. in the hospital. At least she left the hospital under her own steam, which was more than Ashya did.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by orfeo:
Agreed. And?

Here's the disconnect I'm feeling right now with this 'child endangerment' argument that is currently running: where's the urgency? Where's the need to have court orders and arrest warrants within a single day?

What's the intermediate process? Especially when the patient has about four months. Using the police is about the only tool available if there's clear reason to think (as there was) that the kid wouldn't turn up again.

The choice was either using existing tools (the police) or custom crafting a one of a kind tool.

quote:
A belief that the parents would withhold cancer treatment may well justify action, but it does not justify we-have-to-find-him-right-now emergency-order action.
That's a shake-them-out-of-the-woodwork action. And it is completely clear that the parents do not have medical knowledge or they wouldn't have interrupted the treatment then.

Also the deadline for the child's death without treatment might be about 100 days away - but treatment takes time. Each day the parents play silly buggers that cancer gets larger.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by JoannaP:
quote:
Originally posted by orfeo:

Obligations arise from relationships. A hospital has an obligation to its patients. The patient relationship can be terminated.

It seems fairly clear to me that the parents, by their actions, were terminating the patient relationship. I would fully accept that the hospital had obligations towards the boy while they were treating him, but there seems to be this unstated assumption that they were still treating him. I don't think that assumption stands up very well to proper examination.

Surely a doctor-patient relationship can only be terminated by one of the participants? The parents are not the patient and so do not have the right to terminate the relationship unilaterally.

Also, they did not terminate the relationship; they just removed Ashya from the hospital without providing any notice. Had they tried to discharge him or asked for him to be transferred to another hospital it would be different and the hospital would know that its duty of care had ended (assuming this was allowed to happen and Ashya was not made a ward of court).

According to your logic, when my grandmother, who was suffering from Alzheimer's, wandered out of the hospital after the hip replacement op and somehow managed to find her way home, she should have been allowed to stay home, having left her clothes, medication, etc. etc. in the hospital. At least she left the hospital under her own steam, which was more than Ashya did.

Your argument is lacking in logic. How did the doctor/patient relationship arise in the first place? Did Ashya create it?

No. Children of that age have no capacity to enter into a doctor/patient relationship, and so they also lack the capacity to end it. Their parents make those decisions.
 
Posted by Moo (# 107) on :
 
quote:
Originally posted by JoannaP:
Surely a doctor-patient relationship can only be terminated by one of the participants? The parents are not the patient and so do not have the right to terminate the relationship unilaterally.

Did they have the right to initiate the relationship unilaterally?

Moo
 
Posted by JoannaP (# 4493) on :
 
quote:
Originally posted by Gee D:
And surely rights of guardianship of a child only leave the parents if there is a court order to that effect. The proper course for the hospital to take would have been to make an application to the relevant court for an order declaring the child a ward of the court or of the state. Courts here regularly consider applications for such an order when a child of JW parents is said to need a blood transfusion. A court will only make an order if it is satisfied that the treatment is necessary. Now Ashya is out of the UK, that may very well not be possible for such an application to be made. In the absence of an order it's hard to see that the parents her have committed any offence.

Gee D,
Ashya is now a ward of court and his parents cannot remove him from the hospital in Malaga without the judge's consent, which will be withheld until the judge and Portsmouth council are happy with the alternative arrangements made. Despite what Mr King told the media, however, the court order does not prevent him from seeing his son in hospital.
 
Posted by L'organist (# 17338) on :
 
Bottom line is one must seriously question the gumption of 'the authorities' if the result of your concerns - however much you may feel them to be justified - is that a small child ends up in a foreign hospital without Mum or Dad, denied visits from siblings, unable to speak and being cared for by staff unable to communicate with him.

Do tell me which part of that makes any kind of sense.

Even if one accepts that the various actions taken by Hampshire Constabulary, Southampton General Hospital and Portsmouth City Council were justified, why on earth didn't people from these three bodies talk to each other, if only to ensure that poor little Ashya had SOMEONE from his home country in the hospital with him.

And afer it became apparent that he had just been cast adrift in this nightmare scenario, why didn't HMG and the Foreign Office organise getting someone in there?

This all brings us back to the original point about the parents' fitness or otherwise to care for their child.

I think we can all see from this just how effective, caring, compassionate and intelligent a parent the state makes - but that is a better bet?
 
Posted by JoannaP (# 4493) on :
 
quote:
Originally posted by Moo:
quote:
Originally posted by JoannaP:
Surely a doctor-patient relationship can only be terminated by one of the participants? The parents are not the patient and so do not have the right to terminate the relationship unilaterally.

Did they have the right to initiate the relationship unilaterally?

Moo

How can anyone unilaterally initiate a relationship?? [Ultra confused]
 
Posted by la vie en rouge (# 10688) on :
 
quote:
Originally posted by orfeo:
Children of that age have no capacity to enter into a doctor/patient relationship, and so they also lack the capacity to end it. Their parents make those decisions.

And this is precisely what this thread was about back on page 1. If parents make decisions which place their children in danger, at what point should or must the state intervene to protect the child?

ISTM there are two questions here: (a) how much (immediate) danger Ashya was in as a result of his treatment being interrupted and (b) whether the state has the right to override the parents’ decisions if they are perceived to be acting in a way which is not in the best interests of the child.

Personally, I suspect more incompetence than malice in the particular case in question. Like NEQ, it looks to me like a catastrophic breakdown in communication between the parents and the hospital.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by orfeo:
Your argument is lacking in logic. How did the doctor/patient relationship arise in the first place? Did Ashya create it?

No. Children of that age have no capacity to enter into a doctor/patient relationship, and so they also lack the capacity to end it. Their parents make those decisions.

No. Their parents do not have the complete right to decide whatever they like. Children are not slaves, the absolute property of their parents - as they appear to be in your model.

If the parents had had Ashya transferred to another hospital then that would have been fine.

But the parents do not have the right to kill their own children by neglect, and if they believe that the parents are abusing the children (including killing them by neglect) the hospital has a duty of care to escalate this.

According to Mr. King himself, the last thing he spoke with the hospital about with respect to treatment was taking Ashya off all cancer treatment. His subsequent actions that the hospital saw are entirely in line with the idea that he was doing this.

Do you believe that Mr. King should have been allowed to completely take Ashya off all cancer treatment? Just because he is the father?

And if not what should the hospital do? Shrug and say "That poor kid is dead. There's nothing we can do about it. It's the father's right to kill his own son by neglect."
 
Posted by Figbash (# 9048) on :
 
quote:
Originally posted by orfeo:
Your argument is lacking in logic. How did the doctor/patient relationship arise in the first place? Did Ashya create it?

No. Children of that age have no capacity to enter into a doctor/patient relationship, and so they also lack the capacity to end it. Their parents make those decisions.

Your argument is lacking in reference to certain important facts. Southampton is a part of the United Kingdom, and not the United States of America.

It may be the case that US law recognises the parents of a child as the ultimate authority when it comes to making decisions on behalf of the child. UK law does not. In the UK it is acknowledged that parents do not always represent the best interests of their children and, when it is determined that such is that case, the state undertakes to represent the child's best interests.

In other words: in the US the child may be regarded as lying solely within the parents' dominion, and the rights of the parents to exercise said dominion are considered paramount, but in the UK the child is regarded as an individual, with rights which are considered more significant than those of the parents in those cases where the parents do not appear to have the child's best interests in mind. You may consider that illogical, but then, from a UK perspective the US position appears to be an abusers' charter.

Interestingly, this confusion is suffered also by Jehovah's Witnesses: their website explicitly states that parents do have absolute dominion over children, quoting the US Supreme Court as legal evidence to back this up. It does not seem to occur to them the the US Supreme Court does not hold sway outside of the US. As Jehovah's Witnesses emphasise the belief that parents do hold absolute sway, it is perhaps not surprising that they would, inevitably see the (child favouring) UK position as an affront to their sensibilities.
 
Posted by quetzalcoatl (# 16740) on :
 
It depends on whether the child is dying. If he is, then it would be legitimate to refuse further treatment, so he could die in peace. But this doesn't seem to fit here, as they wanted other treatment.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by Moo:
quote:
Originally posted by JoannaP:
Surely a doctor-patient relationship can only be terminated by one of the participants? The parents are not the patient and so do not have the right to terminate the relationship unilaterally.

Did they have the right to initiate the relationship unilaterally?

Moo

Where children are concerned parents and other adults have duties and responsibilities and a general right to discharge those duties and responsibilities. The right to initiate a doctor-patient relationship on behalf of their child comes from their duty to promote their child's health.

If a parent wants to discharge a child from hospital against medical advice the medical staff follow hospital procedures. e.g. Discharge Contrary to Medical Advice

quote:
11. If a parent / legal representative requests to discharge a child from hospital contrary to medical advice, the Hospital Team should consider whether such an action is potentially harmful to a child’s welfare and of
immediacy as to require the initiation of statutory intervention to preclude such a course of action. Where immediate statutory intervention is considered to be necessary, Child Protection Procedures should be initiated and hospital staff should refer the child to Social Services with a view to the initiation of Emergency Protection Procedures.

12. Where medical and nursing staff conclude that there are no concerns identified, the request for discharge will be honoured and the parent / legal representative will be asked to sign the CTMA form. In these situations, hospital staff should consider whether a referral of the child to Social Services for assessment as a Child in Need is warranted.

In this case the parent removed a very sick child without any discharge arrangements and the hospital would have been failing in its duty of care if it took no action.
 
Posted by itsarumdo (# 18174) on :
 
quote:
Originally posted by justlooking:
...In this case the parent removed a very sick child without any discharge arrangements and the hospital would have been failing in its duty of care if it took no action.

As I said previously, "Duty of Care" is a legal term.

This is one of the obfuscations around this case - what is legal as opposed to what is "right". The legalities of relationship and responsibility may affect how some one is allowed to act (or expected to act), but they do not define right action.

You're not alone in using legal terms in an essentially moral argument, because the legal principles have deeply infiltrated societal ways of thinking about this.
 
Posted by North East Quine (# 13049) on :
 
Originally posted by Justinian:

quote:
According to Mr. King himself, the last thing he spoke with the hospital about with respect to treatment was taking Ashya off all cancer treatment. His subsequent actions that the hospital saw are entirely in line with the idea that he was doing this.

Do you believe that Mr. King should have been allowed to completely take Ashya off all cancer treatment? Just because he is the father?

But this is where the massive breakdown in communication came about. Mr King stopped talking to the hospital because he feared being banned from his very sick son's bedside. He wasn't trying to take Ashya off all cancer treatment - the Prague hospital confirms that he was in contact with them, discussing radiotherapy in the form of Proton therapy. Indeed, he was trying to sell a property in order to pay for this treatment.

If Mr King hadn't been afraid of legal repercussions, he'd have been able to tell the hospital exactly what he hoped to do - and possibly Ashya could have been transferred straight from Southampton to Prague.

The big question to me is - how did a situation arise in which loving parents feared being banned from their child's hospital bedside because they were seeking alternative treatments? Had they misunderstood? Had someone at the hospital expressed themselves badly? How did this happen?

It seems to me that everything that happened thereafter flows from that.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by L'organist:
Bottom line is one must seriously question the gumption of 'the authorities' if the result of your concerns - however much you may feel them to be justified - is that a small child ends up in a foreign hospital without Mum or Dad, denied visits from siblings, unable to speak and being cared for by staff unable to communicate with him.

Do tell me which part of that makes any kind of sense.

The part where in this situation the child is more likely to survive than they would have been had the hospital not acted. It's not a good situation. But are you saying that it's a worse situation than letting the parents kill their child by neglect? Which is what in his own account Mr. King communicated to the hospital he was going to do.

His current story makes little sense from a practical standpoint. He was found over 1000 miles from the hospital he claims Ashya is going to be treated in. The child was not being given the chaemotherapy that is necessary before Ashya starts Proton Beam Radiotherapy. He was not under the care of any medical professional who would know the symptoms of things getting worse. And with four months for Ashya to live, Mr. King needs to sell a house before he can fund treatment. If he really is going for Proton Beam Radiotherapy then he has delayed it happening - and would have delayed it further had the state not stepped in. With such things the longer you wait the worse the prognosis.

quote:
I think we can all see from this just how effective, caring, compassionate and intelligent a parent the state makes - but that is a better bet?
So the problem you have with the authorities is that they did not talk to each other - when Mr. King was actively not talking to the hospital. And that Ashya was away from his parents for about a day?

I'm not sure which side is worse. But I do know that the initial major fuckup that triggered this came from Mr. King. Based on his own words. So yes, I'd have to say that if he, as he says, asked the hospital about cessation of any treatment, stopped talking to them after the response, and then took Ashya away just before treatment (chaemotherapy) that was a necessary precondition for his favoured treatment was about to start, then he has done even worse on all counts than the state has.

The state shouldn't and doesn't (normally) step in when parents behave sensibly. In this situation, with the State fucking up by the numbers, they are still doing more to help Ashya than if they hadn't stepped in.
 
Posted by Figbash (# 9048) on :
 
quote:
Originally posted by itsarumdo:

This is one of the obfuscations around this case - what is legal as opposed to what is "right". The legalities of relationship and responsibility may affect how some one is allowed to act (or expected to act), but they do not define right action.

You're not alone in using legal terms in an essentially moral argument, because the legal principles have deeply infiltrated societal ways of thinking about this.

I thought it was a legal argument myself. Apart from anything else, as there is no such thing as intrinsic or absolute morality, asking whether the actions of the authorities or the parents were 'right' is a pointless exercise, as you will get as many answers as you ask people. As law, on the other hand, is well-defined and agreed on, at least debating lawfulness can lead to a meaningful argument.

The basic issue underpinning any moral discussion (if you believe one even possible) is that I commented on above as regards the relative priority of the parents' right of 'ownership' of the child, and the child's own inalienable human rights. As I noted, in the UK, the parents' 'ownership' is not recognised, while the child is recognised as having inalienable rights. In other legal systems (and in certain fringe religions) the parents win out.

Once we have concluded that the child's rights are pre-eminent, then we must consider whether the parents will always act in their best interest. The answer, obviously, must be no. Therefore mechanisms are required to deal with cases where the parents' desires are clearly not in accordance with the child's inalienable rights. Now, you may believe that when parents make demands about medical treatment, and discuss same in such a way as to make it clear that they have no real understanding of the subject and are, essentially, risking their child's health for the sake of a fantasy, that is in accord with the child's needs; I do not. And that judgement is all that is needed. Right and wrong do not (and should not) enter into it.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by North East Quine:
Originally posted by Justinian:

quote:
According to Mr. King himself, the last thing he spoke with the hospital about with respect to treatment was taking Ashya off all cancer treatment. His subsequent actions that the hospital saw are entirely in line with the idea that he was doing this.

Do you believe that Mr. King should have been allowed to completely take Ashya off all cancer treatment? Just because he is the father?

But this is where the massive breakdown in communication came about. Mr King stopped talking to the hospital because he feared being banned from his very sick son's bedside. He wasn't trying to take Ashya off all cancer treatment - the Prague hospital confirms that he was in contact with them, discussing radiotherapy in the form of Proton therapy. Indeed, he was trying to sell a property in order to pay for this treatment.

If Mr King hadn't been afraid of legal repercussions, he'd have been able to tell the hospital exactly what he hoped to do - and possibly Ashya could have been transferred straight from Southampton to Prague.

The big question to me is - how did a situation arise in which loving parents feared being banned from their child's hospital bedside because they were seeking alternative treatments? Had they misunderstood? Had someone at the hospital expressed themselves badly? How did this happen?

It seems to me that everything that happened thereafter flows from that.

At that point we can go by Mr. King's words. He asked what would happen if he stopped any treatment. The hospital understood stopping any treatment to mean leaving the patient with no treatment - which would mean letting the kid die. At that point he got told that denying the kid treatment would be treated as life threatening neglect - as indeed it would be.

There is a possibility that he meant stopping any one treatment and the hospital took it differently and that's where the miscommunication happened.

At this point he himself says he became uncommunicative. If he was misunderstood he made no attempt to clean it up and got in the way of any attempts by the hospital to clean it up.

We don't have the hospital's side of the story because of Data Protection issues.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by itsarumdo:
quote:
Originally posted by justlooking:
...In this case the parent removed a very sick child without any discharge arrangements and the hospital would have been failing in its duty of care if it took no action.

As I said previously, "Duty of Care" is a legal term.

This is one of the obfuscations around this case - what is legal as opposed to what is "right". The legalities of relationship and responsibility may affect how some one is allowed to act (or expected to act), but they do not define right action.

You're not alone in using legal terms in an essentially moral argument, because the legal principles have deeply infiltrated societal ways of thinking about this.

Googling 'Duty of Care in English Law' produces a useful summary in wikipedia Including these snippets:

quote:
In English tort law, an individual may owe a duty of care to another, to ensure that they do not suffer any unreasonable harm or loss. If such a duty is found to be breached, a legal liability is imposed upon the tortfeasor to compensate the victim for any losses they incur. The idea of individuals owing strangers a duty of care – where beforehand such duties were only found from contractual arrangements – developed at common law, throughout the 20th century.
quote:
There are a number of distinct and recognisable situations in which the courts recognise the existence of a duty of care.

Examples include

one road-user to another
employer to employee
manufacturer to consumer
doctor to patient
solicitor to client
teacher to student

In this case the primary duty of the hospital is to the child who is its patient.
 
Posted by North East Quine (# 13049) on :
 
Originally posted by Justinian:

quote:
At this point he himself says he became uncommunicative.
I think most parents would become uncommunicative if they feared being banned from their sick child's hospital bedside. It would certainly shut me up.

As you say, Data Protection means that we don't know what the hospital say they told Mr King. But whatever it was, and however they meant him to interpret it, this seems to be the point at which everything went to hell in a handbasket.
 
Posted by Matt Black (# 2210) on :
 
Orfeo, if you really find yourself unable to sleep, knock yourself out on these; you're welcome!
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Figbash:
quote:
Originally posted by orfeo:
Your argument is lacking in logic. How did the doctor/patient relationship arise in the first place? Did Ashya create it?

No. Children of that age have no capacity to enter into a doctor/patient relationship, and so they also lack the capacity to end it. Their parents make those decisions.

Your argument is lacking in reference to certain important facts. Southampton is a part of the United Kingdom, and not the United States of America.

It may be the case that US law recognises the parents of a child as the ultimate authority when it comes to making decisions on behalf of the child. UK law does not. In the UK it is acknowledged that parents do not always represent the best interests of their children and, when it is determined that such is that case, the state undertakes to represent the child's best interests.

In other words: in the US the child may be regarded as lying solely within the parents' dominion, and the rights of the parents to exercise said dominion are considered paramount, but in the UK the child is regarded as an individual, with rights which are considered more significant than those of the parents in those cases where the parents do not appear to have the child's best interests in mind. You may consider that illogical, but then, from a UK perspective the US position appears to be an abusers' charter.

Interestingly, this confusion is suffered also by Jehovah's Witnesses: their website explicitly states that parents do have absolute dominion over children, quoting the US Supreme Court as legal evidence to back this up. It does not seem to occur to them the the US Supreme Court does not hold sway outside of the US. As Jehovah's Witnesses emphasise the belief that parents do hold absolute sway, it is perhaps not surprising that they would, inevitably see the (child favouring) UK position as an affront to their sensibilities.

1. My point was that the child lacks decision-making capacity, given the assertion that the child is the patient. I'm fairly sure that the UK doesn't allow children aged 5 to enter contracts or do anything else that requires legal capacity.

2. I'm not American.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Matt Black:
Orfeo, if you really find yourself unable to sleep, knock yourself out on these; you're welcome!

Thankfully, I'm feeling tired. [Biased]

But, you never know, if I feel the need for a bit of light reading in a break tomorrow from wrestling with my own horribly knotty legal problems (this week being knottier than usual)...
 
Posted by itsarumdo (# 18174) on :
 
quote:
Originally posted by justlooking:
...

There are a number of distinct and recognisable situations in which the courts recognise the existence of a duty of care.
...

In this case the primary duty of the hospital is to the child who is its patient.

quote:
Originally posted by Figbash:
... dah de hah de dah...

Once we have concluded that the child's rights are pre-eminent, then we must consider whether the parents will always act in their best interest. The answer, obviously, must be no. Therefore mechanisms are required to deal with cases where the parents' desires are clearly not in accordance with the child's inalienable rights. Now, you may believe that when parents make demands about medical treatment, and discuss same in such a way as to make it clear that they have no real understanding of the subject and are, essentially, risking their child's health for the sake of a fantasy, that is in accord with the child's needs; I do not. And that judgement is all that is needed. Right and wrong do not (and should not) enter into it.

There are far too many legalisms here.

Although duty of care developed as common law, it is a direct genetic descendant of the health and safety at work act - see my post further up. Duty of care is a jobs worth far more than a real duty. It's a legal contrivance that has entered the popular culture and stopped anyone having to think hard about their actions. With it has come blatant disregard for people's self-determination, because it all comes down to what can and cannot be enforced by the law, not what is reasonable behaviour of one human being to another.

And making the law the final arbiter of morality is utterly nonsensical - anyone who opposed Stalin's psychiatric wards for political prisoners would be anti-morality (to give just one example). They would be by definition immoral. Take a holiday in Saudi Arabia and enjoy the morality of the religious police. Realise that if you go to Singapore with long hair, you are not only illegal, but are committing an immoral act. Just because someone can squirrel away money in Grand Cayman under their laws in a way that is illegal in most other parts of the world does't make that act moral just as long as you live on Grand Cayman.
 
Posted by BroJames (# 9636) on :
 
quote:
Originally posted by itsarumdo:
Although duty of care developed as common law, it is a direct genetic descendant of the health and safety at work act - see my post further up.

This is an exact reversal of the actual historical reality.

The Health and safety at Work Act 1974 follows over 40 years after the basic establishment of the neighbour principle in Donoghue v Stevenson in 1932.

The general duty upon individuals to take reasonable care in their actions or omissions, so as not to cause harm to others proximate to them, was multiply established in case law before the Health and Safety at Work Act.

The Act is essentially a statutory formalisation of that pre-existing principle in the workplace setting, and makes its enforcement not merely a chance of which victims can afford to sue, but of the criminal law.
 
Posted by justlooking (# 12079) on :
 
itsarumdo - whatever you think about the legal concept of duty of care it has been applied in the case under discussion by making the child a ward of court. Self-determination works for competent adults but a young child, especially a very sick child, cannot determine much for himself. In this case the wardship is to protect his rights and interests which doesn't mean making decisions according to what any particular adult may think is right. It means assessing the views of all interested parties and looking at the situation from the child's point of view before determining what is in his best interests.
 
Posted by Matt Black (# 2210) on :
 
Bro James is correct, hence the old tort lawyers' joke about health and safety legislation developing at a snail's pace after the snail's case.
 
Posted by JoannaP (# 4493) on :
 
quote:
Originally posted by orfeo:
My point was that the child lacks decision-making capacity, given the assertion that the child is the patient. I'm fairly sure that the UK doesn't allow children aged 5 to enter contracts or do anything else that requires legal capacity.

Can you provide any evidence for the claim that to be a patient requires legal capacity rather than just to be in receipt of medical care?

What is the correct term used to designate a person in a coma in an Intensive Care Unit?
 
Posted by L'organist (# 17338) on :
 
The fact remains that at no time during Ashya's time in Southampton General show any signs of mistreating the boy. Sure, they questioned the medical staff and asked about possible treatments - but wouldn't you?

They decided to explore other avenues towards treatment for their son having been told that what seemed to be the course that would have the fewest side effects was not an option when all the information on the WWW is that PBT is ideal for the treatment of medulloblastoma.

And they questioned also starting him on chemotherapy because it is frequently the case that chemotherapy is given AFTER radiotherapy for the simple reason that chemo leaves a patient so debillitated that they aren't up to the rigours of radiotherapy. This certainly holds good for the treatment of brain tumours at the Chelsea & Westminster to my certain knowledge.

The doctors at Southampton are now saying they were happy to send scans, etc, to the hospital in Prague; but I know from personal experience that if you question treatment plans and seek a second opinion some doctors take this as a personal affront and don't hand over information.

As for the Kings being found 1000 miles away from the hospital in Prague, Mr King has stated from the beginning that they had gone to Spain to put property on the market, the sale of which will fund Ashya's treatment. Yes, we've now heard that the NHS will pay the cost of all or some of it but do you really think that offer would have been forthcoming if there hadn't been all this publicity?

I can't help feeling that fairly near to the surface of the UK medics minds was the fact that the Kings are JWs: when you couple that with them not mutely following the course outlined for their son unquestioningly you can see how this dreadful situation arose.
 
Posted by St. Stephen the Stoned (# 9841) on :
 
quote:
Originally posted by L'organist:

I can't help feeling that fairly near to the surface of the UK medics minds was the fact that the Kings are JWs: when you couple that with them not mutely following the course outlined for their son unquestioningly you can see how this dreadful situation arose.

That and the fact that the mother and children are somewhat brown of skin.

Early reports made a point of saying that the parents' religion would not be mentioned. At some time this policy was changed, and we were allowed to know that they are Jehovah's Witnesses, perhaps to let us know that they are not (whisper) Muslims.

Someone hit the panic button anyway. Do you think we'll ever find out who?
 
Posted by itsarumdo (# 18174) on :
 
quote:
Originally posted by BroJames:
quote:
Originally posted by itsarumdo:
Although duty of care developed as common law, it is a direct genetic descendant of the health and safety at work act - see my post further up.

This is an exact reversal of the actual historical reality.

The Health and safety at Work Act 1974 follows over 40 years after the basic establishment of the neighbour principle in Donoghue v Stevenson in 1932.

The general duty upon individuals to take reasonable care in their actions or omissions, so as not to cause harm to others proximate to them, was multiply established in case law before the Health and Safety at Work Act.

The Act is essentially a statutory formalisation of that pre-existing principle in the workplace setting, and makes its enforcement not merely a chance of which victims can afford to sue, but of the criminal law.

Thankyou, Bro - I can't quite understand why this specific issue stirs me up quite so much, though the theme of being powerless against authority I guess does ring a lot of bells

I wan't so much referring to the Act itself, as the absorption into popular culture of the principles, and the gradual expansion of the Act or its general gesture into almost every crevice of activity. We've been legalised. Which I guess might not seem so bad if you're a lawyer [Smile]
 
Posted by Zacchaeus (# 14454) on :
 
The hospital have said all along that the Kings were offered a second opinion, which they never took up
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by L'organist:
The fact remains that at no time during Ashya's time in Southampton General show any signs of mistreating the boy. Sure, they questioned the medical staff and asked about possible treatments - but wouldn't you?

No active abuse. But according to Mr. King's own account he was talking about stopping his son having any treatment. And then took the son away just ahead of treatment. Characterising this as as standard case of "asking about possible treatments" is a misrepresentation. The two combine into a fairly obvious sign. It's incorrect.

But there are two readings.
The Hospital's reading. Mr King is basically going to kill his son through refusing treatment. If they don't act fast and hard Ashya will die.

What was actually going on. Mr King was merely fucking up his son's treatment, dragging him thousands of miles away and delaying treatment that was a necessary precondition of what is, for children, an experimental procedure.

quote:
when all the information on the WWW is that PBT is ideal for the treatment of medulloblastoma.
Really? Macmillan doesn't list it. The NIH calls it under investigation. And those are my top two hits when I google "Medulloblastoma treatment".

quote:
And they questioned also starting him on chemotherapy because it is frequently the case that chemotherapy is given AFTER radiotherapy for the simple reason that chemo leaves a patient so debillitated that they aren't up to the rigours of radiotherapy.
And yet the hospital in Prague said otherwise. "The centre said Dr Nicolin had confirmed that Ashya must first undergo two cycles of chemotherapy, which are expected to take several weeks."

So it's your medical opinion vs the medical opinion of the hospital offering the Proton Beam Therapy. Right.

quote:
As for the Kings being found 1000 miles away from the hospital in Prague, Mr King has stated from the beginning that they had gone to Spain to put property on the market, the sale of which will fund Ashya's treatment.
In short Mr. King added "Dealing with estate agents" to an already tight timescale. As well as adding "Disrupted the chaemotherapy the hospital in Prague thinks is necessary" to the tight timescale.

There was no clinical need at all to do this. Mr. King could have gone to Spain on his own rather than completely messing up his son's medical care, delaying any possibility of his favoured medical treatment, and dragging his son literally thousands of miles.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Justinian:

In short Mr. King added "Dealing with estate agents" to an already tight timescale. As well as adding "Disrupted the chaemotherapy the hospital in Prague thinks is necessary" to the tight timescale.

Can you point to any evidence to prove that any assurance was given to Mr King before he left the hospital with his son that the chemotherapy was in preparation for the proton bean treatment or indeed that the hospital in Southampton had taken at all seriously his request for his son's medical inforamtin to be passed on to the centre in Prague?

I believe that it is just as plausible to believe that there has subsequently been decision between Prague and Southampton hospitals and that they have agreed on preparatory chemotherapy to save face for the hospital in Southampton.

Also from further up the thread - I have listened a number of time to what Mr King has been saying and it was clear that the question was, what would happen if they refused any specific treatment (i.e. radiotherapy with devastating side effects) and most definitely not all treatment.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by North East Quine:
Originally posted by orfeo:

quote:
Does the local hospital my nephew was born in have an obligation to be certain my nephew is being looked after? Is there some sort of roving duty of care in relation to all children in the area?
Pretty much. The hospital check that, for example, if the parents are taking their newborn baby home by car, they are doing so in a properly fitted car seat. You can't just waltz out of hospital and put a baby in an unsecured carrycot on the back seat. Not here, anyway.

Once you're home, there are follow-up visits by a midwife, and then by a health visitor. Plus you're expected to show up regularly to have your baby weighed at a clinic. I'm not sure at what point alarm bells would start ringing if you kept your baby away from all health professionals, but it would happen at some point.

Also (voice of bitter experience) if your child hasn't been fully vaccinated (because your child had an adverse reaction to the first vaccination and your GP refused to give the second, and this is fully documented on your child's medical records) there are reassessments every few years of your child's not-fully-vaccinated status.

Voice of depressing experience, if you don't register the baby with a gp - healthcare professionals get very worried. In that case despite strenuous efforts to keep in touch with mum, she eventually left the child with her unsafe alcoholic mother - lost custody of child at 6 weeks, fortunately birth father was willing to raise the child with his new partner & safe to do so.

Essentially, NHS / social care have to have a reason to be worried to start following things up very assertively. But are also all under a legal and professional duty to prioritise the safety of the child. If you believe a child to be in danger, not reporting it is not an option. Likewise in the case of a vulnerable adult.
 
Posted by JoannaP (# 4493) on :
 
quote:
Originally posted by Gracie:
Also from further up the thread - I have listened a number of time to what Mr King has been saying and it was clear that the question was, what would happen if they refused any specific treatment (i.e. radiotherapy with devastating side effects) and most definitely not all treatment.

So why would the chief paediatrician lie? Do you believe that Mr King is also accurate when he says that the staff at Southampton hospital were going to kill Ashya or turn him into a vegetable?

A couple of people have suggested that the hospital staff were prejudiced against the Kings because they are Jehovah's Witnesses; I am wondering if the boot is on the other foot and the Kings were predisposed not to trust the hospital staff.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by Gracie:
quote:
Originally posted by Justinian:

In short Mr. King added "Dealing with estate agents" to an already tight timescale. As well as adding "Disrupted the chaemotherapy the hospital in Prague thinks is necessary" to the tight timescale.

Can you point to any evidence to prove that any assurance was given to Mr King before he left the hospital with his son that the chemotherapy was in preparation for the proton bean treatment or indeed that the hospital in Southampton had taken at all seriously his request for his son's medical inforamtin to be passed on to the centre in Prague?
Can you point to any evidence to prove with any assurance that Mr. King had even told the hospital he was talking to the centre in Prague, let alone asked Southampton to transfer the notes? He himself said of his own actions "So from that moment on I had to keep everything quiet." He also seems to have even turned down the standard offer of a second opinion.

I agree that it is very unlikely he intended to take his son off all treatment. On the other hand he seems to have conveyed that impression to the hospital and what he said in at least one of the interviews would have given me that impression. Especially given his self-admitted subsequent secrecy followed by taking his son away from treatment.

quote:
Also from further up the thread - I have listened a number of time to what Mr King has been saying and it was clear that the question was, what would happen if they refused any specific treatment (i.e. radiotherapy with devastating side effects) and most definitely not all treatment.
He's phrased it in multiple ways. And it is clear that from the proceedures that is where the communication screw-up happened. The hospital's representative reacted with horror to the idea of the kid not having any treatment at all - and understandably so. What he intended to ask was what would happen if he refused any single treatment - rather than any treatment at all.

Once the communication reached the point of believing the father was thinking seriously of refusing any treatment at all the hospital's hands were tied. There is very little else they could have done. There are two questions - the first is what was actually said, and the second is whether the communication could have been recovered. The chance of recovering the communication is, to me, answered by Mr King's statement that "So from that moment on I had to keep everything quiet."

Referring patients to private treatment is almost SOP. Especially in cases like cancer where there is little evidence that the treatment is better - but people want to try everything.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by JoannaP:
quote:
Originally posted by orfeo:
My point was that the child lacks decision-making capacity, given the assertion that the child is the patient. I'm fairly sure that the UK doesn't allow children aged 5 to enter contracts or do anything else that requires legal capacity.

Can you provide any evidence for the claim that to be a patient requires legal capacity rather than just to be in receipt of medical care?

What is the correct term used to designate a person in a coma in an Intensive Care Unit?

You're now paraphrasing what I said as "a child isn't a patient". What I actually said was about the beginning and ending of a doctor/patient relationship. You can claim all you like that only the actual patient has power over the doctor/patient relationship, but it's clearly not true because newborn infants do not choose their doctors.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by JoannaP:
quote:
Originally posted by orfeo:
My point was that the child lacks decision-making capacity, given the assertion that the child is the patient. I'm fairly sure that the UK doesn't allow children aged 5 to enter contracts or do anything else that requires legal capacity.

Can you provide any evidence for the claim that to be a patient requires legal capacity rather than just to be in receipt of medical care?

What is the correct term used to designate a person in a coma in an Intensive Care Unit?

You're now paraphrasing what I said as "a child isn't a patient". What I actually said was about the beginning and ending of a doctor/patient relationship. You can claim all you like that only the actual patient has power over the doctor/patient relationship, but it's clearly not true because newborn infants do not choose their doctors.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by JoannaP:
quote:
Originally posted by Gracie:
Also from further up the thread - I have listened a number of time to what Mr King has been saying and it was clear that the question was, what would happen if they refused any specific treatment (i.e. radiotherapy with devastating side effects) and most definitely not all treatment.

So why would the chief paediatrician lie? Do you believe that Mr King is also accurate when he says that the staff at Southampton hospital were going to kill Ashya or turn him into a vegetable?

A couple of people have suggested that the hospital staff were prejudiced against the Kings because they are Jehovah's Witnesses; I am wondering if the boot is on the other foot and the Kings were predisposed not to trust the hospital staff.

I can think of very obvious reasons why he would lie - or put a particular gloss - on what happened, not least to protect himself. It happens all the time.

As I have already suggested a few pages back, what seems likely to me is that the doctor threatened getting a protection order thinking this would bring Mr and Mrs King "in line" - scare them into cooperating. Whereas in fact the plan backfired and had the opposite effect. A lot of doctors expect people to trust them completely and do not like to have their authority questioned.

quote:
Originally posted by Justinian:

The chance of recovering the communication is, to me, answered by Mr King's statement that "So from that moment on I had to keep everything quiet."

Which was several days after Mr King gave the doctor the email from the hospital in Prague requesting the child's detailed information, with absolutely no response from the doctor.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by orfeo:

You can claim all you like that only the actual patient has power over the doctor/patient relationship, but it's clearly not true because newborn infants do not choose their doctors.

Has anybody claimed that?

As far as I can see the argument is that the doctor's duty of care is to the patient, however young that patient may be. Parents may choose a doctor for a child but they cannot control the doctor/patient relationship.

[ 04. September 2014, 21:54: Message edited by: justlooking ]
 
Posted by North East Quine (# 13049) on :
 
Originally posted by Joanna P:

quote:
Do you believe that Mr King is also accurate when he says that the staff at Southampton hospital were going to kill Ashya or turn him into a vegetable?
In the first YouTube video Mr King says that one doctor spoke of following "the Milan protocol." That's been in the news because of the case of Claudia Burkill

Claudia has survived a cancer previously considered unsurvivable. However, the treatment has left her blind, with brain damage, limited ability to communicate, tube fed and with limited mobility.

If I were Mr King, and the Milan protocol was being proposed for my child, with Claudia Burkill held out as a beacon of hope, I'd be terrified. I'd probably be looking for alternatives, too.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
quote:
Originally posted by orfeo:

You can claim all you like that only the actual patient has power over the doctor/patient relationship, but it's clearly not true because newborn infants do not choose their doctors.

Has anybody claimed that?

As far as I can see the argument is that the doctor's duty of care is to the patient, however young that patient may be. Parents may choose a doctor for a child but they cannot control the doctor/patient relationship.

When I suggested that the parents had ended the doctor/patient relationship, JoannaP responded by saying the child was the patient rather than the parents. Draw your own conclusion as to what claim that entails.

Honestly, parts of this conversation feel to me like they ignore the reality that parents make decisions for their children every second of the day without needing court papers to empower them to do so. Parents making decisions for their children IS the default position. There may well be areas where the law says that parents don't have sole control, but nowhere was I asserting children were property. Children are one of the classes of people not making decisions (as are coma patients), and the law does NOT leave some kind of limbo where no one can make decisions. It is not the case that family members of coma patients are told they can't act and that everyone has to wait until the coma patient wakes up.

Admitting that the parent chooses the doctor MEANS the parent controls the doctor/patient relationship. What's the alternative? That you can never switch doctors? That once my mother took me to a GP, I was legally bonded to that GP until I was a teenager?

[ 04. September 2014, 22:23: Message edited by: orfeo ]
 
Posted by orfeo (# 13878) on :
 
Let me put the point another way, lest I get another round of people talking to me as if I'd said that it was fine if a child didn't get treated by anyone at all.

I'm talking about the relationship between a specific doctor and a specific patient. That's what a doctor/patient relationship is.

As North East Quine and Gracie have set out quite well, there may well have been a miscommunication between the parents and the hospital about whether the father meant "I don't want my son treated" or "I don't want my son treated HERE, BY YOU".

They are 2 different questions. I accept that the parents have an obligation to ensure that their son is treated. I've accepted that from the very beginning. I've said from the beginning that not getting your child any kind of treatment is a form of neglect.

What I've also been trying to point out, from very early on, is that it's the parents that decide which medical treatment is delivered from the range of options and who by.

When people tell me the child isn't the property of the parents, I really should have responded "neither is he the property of Southampton Hospital". It is highly questionable that the parents had any obligation to have their son treated at Southampton Hospital. Neither is it likely they had any obligation to tell Southampton Hospital where their son would be taken or treated.

[ 04. September 2014, 22:40: Message edited by: orfeo ]
 
Posted by orfeo (# 13878) on :
 
ADDENDUM: To which the next response has been to suggest that the child's state is such that his departure from the hospital had to be treated as a grave, immediately life-threatening emergency.

Which it wasn't. The immediate need for sustenance was taken care of by the feeding tube. While it's true that he needs cancer treatment reasonably soon, it's simply NOT true that the lack of cancer treatment constituted the emergency. Last I heard, he still isn't getting cancer treatment.

We've been arguing about this now for almost as long as the period of Ashya's disappearance (maybe longer?!), and what's actually happened? The most recent report I've seen says he could be given chemotherapy and radiotherapy in Spain, but he hasn't yet. No-one's seen fit to declare that if he doesn't get cancer treatment this very second, he will die.

[ 04. September 2014, 22:49: Message edited by: orfeo ]
 
Posted by orfeo (# 13878) on :
 
I might as well also add, while I'm here munching on breakfast, how striking it's been that the argument 'against' the proton beam therapy never seems to have risen any higher than "it's more expensive and it won't improve his chances".

Fine. Are those reasons for him not to have it? No.

They may well be reasons why any one of us would decided not to go for that treatment option. But given that the patient isn't us or our child, that's not a relevant question. It's a valid, effective treatment option - even if it isn't more effective, it's still a treatment.

Once that's established, it doesn't matter a damn whether it's the treatment that I'd choose or you'd choose or a doctor in Southampton would choose. The wisdom of the choice from our perspective is irrelevant. So long as it's a medically reasonable treatment, his parents have fulfilled their obligations to look after their child.
 
Posted by justlooking (# 12079) on :
 
orfeo:

The doctor/patient relationship in the case of hospital treatment is ended by the patient being discharged, usually with the agreement of the doctor and often with a plan for continuing medical care. When a patient chooses to leave against medical advice they are asked to sign a discharge form confirming this. If a child is discharged by parents against medical advice and the hospital believes this places the child in danger then there is a duty to take action, as quoted above, which may lead to parents being prevented from removing the child.

All the parent does is to initiate the doctor/patient relationship for the child. Parents are parties to the relationship but they are not the patient and the doctor's first duty is to the patient. Changing a GP doesn't alter anything - it would just move the relationship to a different doctor.

It's the same with a school. Parents can choose a school and the school then has a duty of care to the child. Parents do not control the teacher/pupil relationship.

If a hospital or a school fails in its duty of care and a child suffers injury as a result then the child can sue for damages, either independently when they reach 18 or via a 'next friend', who is often a parent.

[ 04. September 2014, 23:14: Message edited by: justlooking ]
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
All the parent does is to initiate the doctor/patient relationship for the child. Parents are parties to the relationship but they are not the patient and the doctor's first duty is to the patient. Changing a GP doesn't alter anything - it would just move the relationship to a different doctor.

It's the same with a school. Parents can choose a school and the school then has a duty of care to the child. Parents do not control the teacher/pupil relationship.

Sorry, but both of these statements just tell me you don't understand what a doctor/patient relationship or a teacher/pupil relationship is. Indeed, it tells me you're not thinking about what the word 'relationship' means.

It's a relationship between specific people, not a 'relationship' between the medical profession at large or the teaching profession at large. A relationship is not some abstract thing floating around on its own.

Of course changing GP alters something, it alters which GP has duties towards you. That's the whole point. Saying "it moves the relationship to a different doctor" neatly obscures that the relationship with the first GP ends and a relationship with the second GP begins.

What you're effectively arguing is that if I divorce my first wife and remarry, "the marriage" is still in existence. No. I'm still married. But "the marriage" ended when I got divorced. I'm now in a different marriage.

If you think that a parent can take their child out of one school and put them in another school, you think the parent controls the teacher/pupil relationship.

[ 04. September 2014, 23:26: Message edited by: orfeo ]
 
Posted by justlooking (# 12079) on :
 
quote:

[If you think that a parent can take their child out of one school and put them in another school, you think the parent controls the teacher/pupil relationship.

No I don't. Because the kind of relationship under discussion places a legal duty of care on the professional party. That duty of care is controlled by legislation, guidelines and professional practice, not by parents.

[ 04. September 2014, 23:46: Message edited by: justlooking ]
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
quote:

[If you think that a parent can take their child out of one school and put them in another school, you think the parent controls the teacher/pupil relationship.

No I don't. Because the kind of relationship under discussion places a legal duty of care on the professional party. That duty of care is controlled by legislation, guidelines and professional practice, not by parents.
The existence of the relationship. I thought it was perfectly clear we were talking about deciding to either start or end the relationship, not what goes on while the relationship is in place.

[ 04. September 2014, 23:52: Message edited by: orfeo ]
 
Posted by orfeo (# 13878) on :
 
I'd go so far as to say this whole sorry mess is driven by a general failure to understand and apply the difference between absolute statements:

I am married
I go to school
I am not being treated


and relational statements:

I am married to Jessica
I go to school at Sunnydale High
I am not being treated by Dr Smith


They mean quite different things. I suppose I shouldn't be surprised that they get blurred, because in fact a huge part of my job is pointing out to people when they've missed out relational linkages or applied the wrong ones.

But never underestimate the importance of relational linkages. The difference between "I don't want my son to be treated" and "I don't want you to treat my son" is probably what's put this whole saga on the front page in the first place.
 
Posted by orfeo (# 13878) on :
 
ADDENDUM: In fact, I wouldn't be the least surprised if an inquiry shows that exact sentence, or one very very similar to it, was used. I can well believe that Mr King said "I don't want you to treat my son", and that the hearer of this went and started telling people "He doesn't want his son to be treated".

Which is wrong. It's shorthand, and indeed it's a very common kind of shorthand, especially if people are talking heatedly, but the two sentences are not grammatically equivalent. "I don't want you to treat my son" is capable of 2 possible meanings, one of which emphasises the fact of treatment and one of which emphasises the person doing the treating.

And if one is going to start talking about court orders or arrest warrants, it's absolutely vital that one understands which of the 2 meanings is meant. I'd bet a fair sum that no-one ever went "hang on, what exactly did he say" and considered the possibility that Mr King made a relational statement, not an absolute one.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by orfeo:
The difference between "I don't want my son to be treated" and "I don't want you to treat my son" is probably what's put this whole saga on the front page in the first place.

What put this saga on the front page was an attempt by a parent to end a doctor/patient relationship without regard to the doctor's duty of care. Taking the child away without having agreed the conditions of his discharge meant the hospital still had a legal duty of care and had to act to safeguard the patient.

It's the same with your divorce analogy - in order to end a marriage you have to go through a legal process and satisfy certain conditions, you can't just waltz off and declare yourself unmarried.
 
Posted by cliffdweller (# 13338) on :
 
Yes. Communications screw-ups happen. Particularly, as noted above, when you're talking busy medical personnel and worried stressed parents. I can't honestly see this as anything more than that.

There may or may not have been some pride or arrogance at play on either or both sides-- it's certainly not unheard of for doctors to think they are omnipotent, but I have also known a number of people who defied sound medical advice thinking they know better-- and suffered severe consequences as a result. But people will be arrogant at times, they will be harried or stressed or busy, they will mishear or make assumptions about what someone meant based on prior experiences or expectations. All sorts of things happen. And will continue to happen, despite our best efforts to prevent them. Human communication is always prone to error and misunderstanding.

I don't see this as evidence of any dark conspiracy or government overreach. Just a misunderstanding that grew into a kerfuffle but thankfully seems to have ended well. In the grand scheme of things, there are much bigger things to worry about.
 
Posted by Leorning Cniht (# 17564) on :
 
quote:
Originally posted by justlooking:
What put this saga on the front page was an attempt by a parent to end a doctor/patient relationship without regard to the doctor's duty of care.

I'll go back to my earlier statement. It is reasonable for a doctor, or a hospital, to be concerned that a parent wants to withdraw a child from treatment, take him home, surround him with crystals and chant a lot.

A letter from the parents, handed to the hospital receptionist, stating that they withdraw their child from the hospital's care, and place him under the care of Dr. X at Facility Y is sufficient to meet the hospital's legitimate concerns. I'm happy to allow the hospital 15 minutes to phone facility Y and verify that they are prepared to accept the child as a patient. I would also expect the parents to be asking that all the child's medical notes be transferred to facility Y.
 
Posted by Justinian (# 5357) on :
 
quote:
Originally posted by orfeo:
Let me put the point another way, lest I get another round of people talking to me as if I'd said that it was fine if a child didn't get treated by anyone at all.

I'm talking about the relationship between a specific doctor and a specific patient. That's what a doctor/patient relationship is.

As North East Quine and Gracie have set out quite well, there may well have been a miscommunication between the parents and the hospital about whether the father meant "I don't want my son treated" or "I don't want my son treated HERE, BY YOU".

They are 2 different questions. I accept that the parents have an obligation to ensure that their son is treated. I've accepted that from the very beginning. I've said from the beginning that not getting your child any kind of treatment is a form of neglect.

What I've also been trying to point out, from very early on, is that it's the parents that decide which medical treatment is delivered from the range of options and who by.

The problem is that the information Southampton Hospital had was almost entirely consistent with the normal behaviour of people who say "I don't want my child treated at all" and very much inconsistent with the normal behaviour of people who say "I don't want my child treated by you."

If Mr. King hadn't turned uncommunicative after the miscommunication, but had tried to work out what was going on this wouldn't have happened. If he had properly prepared in advance and had the patient discharged into the care of another medical professional none of this would have happened. If he hadn't disappeared his son none of this would have happened.

To put things another way, in some states in America you have the right to open carry of assault rifles. You also have the right to withdraw money from your bank account. You have the right to wear a balaclava. On the other hand if you walk into a bank wearing a balaclava and carrying an assault rifle and ask to make a withdrawl the response is going to be inevitable and not what you want. It might sound like an absurd example - but Mr. King's actions have been around that level of absurdity and triggering warning bells when it comes to normal practice.

quote:
Originally posted by orfeo:
I might as well also add, while I'm here munching on breakfast, how striking it's been that the argument 'against' the proton beam therapy never seems to have risen any higher than "it's more expensive and it won't improve his chances".

Fine. Are those reasons for him not to have it? No.

On the other hand they, combined with the excessive cost, are reasons for him not to have it on the NHS. Which is why his doctors would not recommend the child for it on the NHS. Saying "I have investigated the options for private treatment which I am willing to pay for and would like a referral to this clinic for Proton Beam Therapy" would have taken a level of communication that he himself has said he simply wasn't doing.

The doctors should not, based on their diagnosis, have of their own initiative referred him for Proton Beam Therapy. You don't refer to the private sector for a hideously expensive treatment when it hasn't met NICE approval.

There is however one huge question. What happened to the letter Mr. King says he wrote Dr. Nicolin that said he was willing to pay for the treatment himself? (Once that specific combination arises then unless the hospital is e.g. homeopathic) If he received it and ignored it then he deserves a major disciplinary at the very least. And the entire fiasco follows from his malfeasance. If it was not received that too needs an investigation. I hope that Southampton are one of the trusts that scan all the letters they receive.
 
Posted by orfeo (# 13878) on :
 
Absolutely agree that "you can't have this treatment on the NHS" is different. Relational statements again. Guard your prepositions, people.

I've just been reflecting on my time working on a tribunal, and how a couple of cases had spiralled into mutual distrust and accusations of lying because of the wrong assumptions people made. I remember one case where an employee and supervisor both ended up accusing the other of lying because the employee claimed he'd been told something at a meeting and the supervisor denied that had been said at the meeting. Looking at the papers a year or two later, I worked out they were talking about 2 different meetings.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Justinian:
The problem is that the information Southampton Hospital had was almost entirely consistent with the normal behaviour of people who say "I don't want my child treated at all" and very much inconsistent with the normal behaviour of people who say "I don't want my child treated by you."

If Mr. King hadn't turned uncommunicative after the miscommunication, but had tried to work out what was going on this wouldn't have happened. If he had properly prepared in advance and had the patient discharged into the care of another medical professional none of this would have happened. If he hadn't disappeared his son none of this would have happened.

I think the behaviour is just more consistent with someone who's scared of the hospital. Exactly why he was scared is the question. He might have been scared because he already had the impression a court order was in the making.

If anyone had mentioned court in any way, he might well have interpreted that fairly badly, particulary as Jehovah's Witness. And the hospital might have already been interpreting things in a certain light because of a suspicion about Jehovah's Witnesses. Let's face it, JWs and the medical profession don't exactly encounter each other from a warm, friendly starting point.

I don't think anywhere I've said that the parents didn't contribute to this. But it seems likely that the hospital did as well. And it's the hospital that has to look now at its processes and ask what happened. It's the hospital that chose the response which is raising the systemic concern. Ashya's parents only affect one patient. Health and legal bureaucracy affect every patient.

No-one (or at least, not me) is arguing that the hospital should have just ignored Ashya's departure, sat back and said "oh well, another patient gone, cross him off the list". It's the choice of response that is at issue: why was the sledgehammer of a parental arrest warrant arrived at so quickly?

[ 05. September 2014, 02:41: Message edited by: orfeo ]
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Justinian:

There is however one huge question. What happened to the letter Mr. King says he wrote Dr. Nicolin that said he was willing to pay for the treatment himself? (Once that specific combination arises then unless the hospital is e.g. homeopathic) If he received it and ignored it then he deserves a major disciplinary at the very least. And the entire fiasco follows from his malfeasance. If it was not received that too needs an investigation. I hope that Southampton are one of the trusts that scan all the letters they receive.

Yes, indeed, that's what I've been trying to get at all along.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by orfeo:
Absolutely agree that "you can't have this treatment on the NHS" is different. Relational statements again. Guard your prepositions, people.


What kind of relationship do you think is implied by such a statement? i.e. what is the relationship between a service provider and a service user?

In the case under discussion there will be a network of relationships involving the NHS, the doctors, the patient and the patient's parents. There may be conflicting interests and wishes between any of them.

Discussion of the doctor/patient relationship figured strongly in the Michael Jackson case. It was clearly not that of employer and employee because the doctor had a duty of care which meant he had to act in his patient's best interests which may not be in accordance with his patient's wishes.
 
Posted by Karl: Liberal Backslider (# 76) on :
 
I've not seen a link to this on this thread: http://www.uhs.nhs.uk/aboutthetrust/newsandpublications/latestnews/2014/latest-statement-in-relation-to-ashya-king,-2-septemb er-2014.aspx

No particular dog in this fight, but thought this should be in there.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
quote:
Originally posted by orfeo:
Absolutely agree that "you can't have this treatment on the NHS" is different. Relational statements again. Guard your prepositions, people.


What kind of relationship do you think is implied by such a statement? i.e. what is the relationship between a service provider and a service user?

In the case under discussion there will be a network of relationships involving the NHS, the doctors, the patient and the patient's parents. There may be conflicting interests and wishes between any of them.

Discussion of the doctor/patient relationship figured strongly in the Michael Jackson case. It was clearly not that of employer and employee because the doctor had a duty of care which meant he had to act in his patient's best interests which may not be in accordance with his patient's wishes.

Saying that you can't have this treatment on the NHS is not the same as saying you can't have this treatment at all.

The relationship implied is that having treatment "on the NHS" means you are having a service that is NHS approved, and (as far as I understand) paid for by the NHS, and provided by people that the NHS considers qualified.

That the NHS does all these things doesn't necessarily mean that it's unlawful to have or supply treatment that the NHS hasn't approved, that it's unlawful to have treatment paid for by other means, or that it's unlawful for anyone not approved as a treatment provider by the NHS to provide treatment (the last point being particularly relevant to overseas treatment providers). You would need quite distinct rules to provide that the NHS has a monopoly on approving treatments, approving payment for treatments, or approving treatment providers.

This is not unlike a point that was made earlier about education: there is a requirement for parents to have their children educated, but it isn't a requirement to have their children educated by a state-run school and a state-accredited teacher.
 
Posted by la vie en rouge (# 10688) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by justlooking:
quote:

[If you think that a parent can take their child out of one school and put them in another school, you think the parent controls the teacher/pupil relationship.

No I don't. Because the kind of relationship under discussion places a legal duty of care on the professional party. That duty of care is controlled by legislation, guidelines and professional practice, not by parents.
The existence of the relationship. I thought it was perfectly clear we were talking about deciding to either start or end the relationship, not what goes on while the relationship is in place.
Yes, but there are some major safeguards around the way in which such a relationship can be terminated. Once a parent entrusts a child to an educational establishment, within the scope of the law the school is allowed to do things that the parent disagrees with.

My fiancé is a teacher in a rather rough middle school where there have been some major problems with the management. For the start of the new school year, a crack team has been sent in by the Rectorate to sort things out.

Punctuality has been a persistent problem in the school. Yesterday, as part of the new shock and awe tactics, the deputy head was on the front gate at 8:15 to meet the kids who turned up late (school starts at 8 o’clock). Once there was a decent crowd of latecomers, they were handed over to a school counsellor and herded off to a room, thus making them completely miss the lesson they had arrived late for. At this point, the heads called the parents and told them that their child had arrived late for school and would consequently be kept half an hour later at the end of the day.

When, as they expected, the parents kicked up a fuss and told the headteachers they had no right, the headteachers (who had a paper in front of them with the relevant legal texts on it) told them “according to article bla bla bla of the Civil code, you have entrusted the education of your child to the National Education. We are therefore responsible and are entitled to impose sanctions on your child if they don’t obey the internal rules of this school. If you don't want this to happen again, please ensure your child arrives on time in future.” There was nothing the parents could do. At the end of the day, the kids were indeed kept late and given a stern half-hour lecture by the new head. (They looked terrified. The teaching staff OTOH thought it was hilarious. [Two face] )

The parents have absolutely no recourse under the law if the school imposes an appropriate sanction (being kept late) for not following the school’s internal procedures. They have handed over responsibility for that part of their child’s wellbeing (their education) to the school. If the parents don’t like it, they can make alternative arrangements for their children’s education. But they can’t decide that they’re not sending their child to school today because they don’t like the punishment the child got yesterday. They may not unilaterally end the relationship with the school by withdrawing their child until they can demonstrate that suitable alternative arrangements are in place.
 
Posted by Alisdair (# 15837) on :
 
Something this case highlights, at least to me with the evidence so far available, is the paternalism that too often infuses the relationship between the 'medical profession' and 'ordinary people'.

It illustrates the reality that to a large extent we have allowed so called 'professionals' (medical/legal/...) to 'own' the area of life they apply their knowledge in, rather than acting as 'servants'. That 'ownership' can and does often extend to an ownership of those who are receiving that professional's service.

In other words, people become dis-empowered (horrible word), are stripped of personal/social responsibility and become 'children' under the guardianship of the professionals---who clearly know what's best because they have laid claim to authority in that area of life.

It is an insidious and corrosive progression. Instead of 'service' to others we have a tendency to 'control' of others, which at it's worst is heading towards de-humanisation---the treating of human beings as though they are merely objects, subject to the will of the one who claims authority over them.

The case in question seems to offer an example of what can happen when overweening authority feels thwarted and threatened and then completely fails to retain any sense of proportionality or balance in the relationship: 'Quick, our property has been stolen, our reputations are threatened. We must act decisively to recover both!'---completely forgetting that these are human beings, who are neither slaves nor prisoners, who are, on the face of what we know, people who have proven themselves over time to be entirely concerned for the well being of their child.

Just to finish, on a slightly transcendent note: we are all going to die, sooner or later, it is the natural way of things. In my experience, working in a hospital as I do, what matters most to most people is not so much whether they will be cured (although that is naturally often hoped for), but whether they will be 'looked after', i.e. cared for, treated with respect and compassion, even loved (if institutional care is capable of such a thing, which it is given wise and encouraging leadership and example).

This whole case went off the rails long before the family hit the road for Spain, and the failure that occurred back down the line was clearly not addressed properly, leading directly to the tragic farce that has been played out in the media.

Will the right lessons be learned, or will the implicit professional paternalism merely dig in with stubborn self-justifications?

[ 05. September 2014, 10:09: Message edited by: Alisdair ]
 
Posted by North East Quine (# 13049) on :
 
quote:
Originally posted by Karl: Liberal Backslider:
I've not seen a link to this on this thread: http://www.uhs.nhs.uk/aboutthetrust/newsandpublications/latestnews/2014/latest-statement-in-relation-to-ashya-king,-2-septemb er-2014.aspx

No particular dog in this fight, but thought this should be in there.

Is there a misprint in that statement? Because when Ashya went missing, the hospital said that he'd had "extensive surgery" seven days earlier i.e. 21 August. But the statement says that the tumour was successfully removed on 24 July. There's no mention of the 21 August "extensive surgery" in that statement.

Plus, the statement says that for best results chemo / radiotherapy should start within 4-6 weeks of the original 24 July surgery. But the treatment hadn't started on 28 Aug, 5 weeks after the original surgery.

The biggest gulf appears to be between what the hospital understood Mr King to be saying, and what Mr King understood the hospital to be saying, but there also seems to be a gulf between what the hospital said then and what it's saying now. (I accept Data Protection might explain this.)
 
Posted by Erroneous Monk (# 10858) on :
 
quote:
Originally posted by North East Quine:
quote:
Originally posted by Karl: Liberal Backslider:
I've not seen a link to this on this thread: http://www.uhs.nhs.uk/aboutthetrust/newsandpublications/latestnews/2014/latest-statement-in-relation-to-ashya-king,-2-septemb er-2014.aspx

No particular dog in this fight, but thought this should be in there.

Is there a misprint in that statement? Because when Ashya went missing, the hospital said that he'd had "extensive surgery" seven days earlier i.e. 21 August. But the statement says that the tumour was successfully removed on 24 July. There's no mention of the 21 August "extensive surgery" in that statement.

Plus, the statement says that for best results chemo / radiotherapy should start within 4-6 weeks of the original 24 July surgery. But the treatment hadn't started on 28 Aug, 5 weeks after the original surgery.

The biggest gulf appears to be between what the hospital understood Mr King to be saying, and what Mr King understood the hospital to be saying, but there also seems to be a gulf between what the hospital said then and what it's saying now. (I accept Data Protection might explain this.)

Can you provide a link to the statement on 28 August where the hospital says the surgery was 7 days earlier?

The reason the treatment hadn't started 5 weeks later was that the parents wouldn't consent to it, isn't it?
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by la vie en rouge:
The parents have absolutely no recourse under the law if the school imposes an appropriate sanction (being kept late) for not following the school’s internal procedures.

...

If the parents don’t like it, they can make alternative arrangements for their children’s education.

You've just set out the recourse.

Can you not see that. I specifically said I was talking about the existence of the relationship - the ability to either start or end the relationship - and you've just proved my point, two sentences after claiming the parents "had no recourse". You've just identified precisely the same recourse I've been talking about.

[ 05. September 2014, 10:43: Message edited by: orfeo ]
 
Posted by Zacchaeus (# 14454) on :
 
Yes but the relationship has to be formaly with a new one in place first that is the point.


Who knows what other forces/personalities were involved, but the hospital did offer the Kings a second opinion which they never took up.

The authorities have to go with the information that they had – it might be known now that the Kings had the food and had a way of charging the feeder – they didn’t know then.

Interestingly before this happened I saw a lot in the internet news about schools being asked to look out for and report non returners to school in September. Particularly in the case of young girls from certain cultures, might have been taken abroad to be married young and without their consent.

They were being asked not to assume that the children might have just gone to another school without the parents informing their current school.

There was an element of blame for schools who had allowed children such as this to disappear off the registers without checking up as to where they were now in the past.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Zacchaeus:
Yes but the relationship has to be formaly with a new one in place first that is the point.

And it says that, where?

Are you proposing that when a family moves interstate, the school that the family is leaving has some power over the enrolled children until the family identifies the name of the school that the children will attend in their new location?

We've already established there is no obligation to have a child enrolled in a school at all. There is only an obligation to have a child EDUCATED.

There are millions of conceptual miles between the idea that the old school would like to have information about the new arrangements if they are known, and the notion you're proposing that the new relationship "has to be formally in place". The latter cannot possibly be true if home schooling is permitted.

[ 05. September 2014, 10:56: Message edited by: orfeo ]
 
Posted by Clint Boggis (# 633) on :
 
quote:
Originally posted by orfeo:
Saying that you can't have this treatment on the NHS is not the same as saying you can't have this treatment at all.

This is true. Good.
quote:
The relationship implied is that having treatment "on the NHS" means you are having a service that is NHS approved, and (as far as I understand) paid for by the NHS, and provided by people that the NHS considers qualified.
Not so. You misunderstand a simple phrase.

If I say "have a drink on me" I don't mean have a drink I approve of at your own expense, I mean have a drink at my expense.
.
 
Posted by la vie en rouge (# 10688) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by la vie en rouge:
The parents have absolutely no recourse under the law if the school imposes an appropriate sanction (being kept late) for not following the school’s internal procedures.

...

If the parents don’t like it, they can make alternative arrangements for their children’s education.

You've just set out the recourse.[...] You've just identified precisely the same recourse I've been talking about.
You're cherrypicking what I wrote. The point is that there are a number of significant hoops that must be jumped through before the recourse becomes effective. The parents cannot decide that they just aren't sending their children to school today or they will be in considerable trouble with the authorities.

In the same way, you can't just remove your child from a hospital. If so requested, you need to be able to show that you have already made viable alternative arrangements, not just that you're planning to make them some time in the future.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Clint Boggis:
quote:
Originally posted by orfeo:
Saying that you can't have this treatment on the NHS is not the same as saying you can't have this treatment at all.

This is true. Good.
quote:
The relationship implied is that having treatment "on the NHS" means you are having a service that is NHS approved, and (as far as I understand) paid for by the NHS, and provided by people that the NHS considers qualified.
Not so. You misunderstand a simple phrase.

If I say "have a drink on me" I don't mean have a drink I approve of at your own expense, I mean have a drink at my expense.
.

Are you seriously suggesting that the word "on" automatically has a single meaning, applicable to both a government-run nationalised health service and your wallet?

"Have a drink on me. The drink is on the table."

EDIT: And you haven't even read what I said. I said the expense was paid by the NHS!

[ 05. September 2014, 11:05: Message edited by: orfeo ]
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by la vie en rouge:
The point is that there are a number of significant hoops that must be jumped through before the recourse becomes effective.

What hoops?

quote:
The parents cannot decide that they just aren't sending their children to school today or they will be in considerable trouble with the authorities.


So they have to tell the school at some point that the child isn't ever coming back. Okay then. What other hoops?

quote:
In the same way, you can't just remove your child from a hospital.
Yes you can. It's been established there was nothing unlawful about doing this.

quote:
If so requested, you need to be able to show that you have already made viable alternative arrangements, not just that you're planning to make them some time in the future.
It's been established there was nothing unlawful about removing the child without doing this.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by North East Quine:
quote:
Originally posted by Karl: Liberal Backslider:
I've not seen a link to this on this thread: http://www.uhs.nhs.uk/aboutthetrust/newsandpublications/latestnews/2014/latest-statement-in-relation-to-ashya-king,-2-septemb er-2014.aspx

No particular dog in this fight, but thought this should be in there.

Is there a misprint in that statement? Because when Ashya went missing, the hospital said that he'd had "extensive surgery" seven days earlier i.e. 21 August. But the statement says that the tumour was successfully removed on 24 July. There's no mention of the 21 August "extensive surgery" in that statement.

Plus, the statement says that for best results chemo / radiotherapy should start within 4-6 weeks of the original 24 July surgery. But the treatment hadn't started on 28 Aug, 5 weeks after the original surgery.

The biggest gulf appears to be between what the hospital understood Mr King to be saying, and what Mr King understood the hospital to be saying, but there also seems to be a gulf between what the hospital said then and what it's saying now. (I accept Data Protection might explain this.)

He had a second surgery after the brain tumour was removed, I am guessing for a shunt or similar. It was being reported on several of the news sites, as I quoted earlier it was on the 22nd of August.

[ 05. September 2014, 11:24: Message edited by: Doublethink ]
 
Posted by Clint Boggis (# 633) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Clint Boggis:
quote:
Originally posted by orfeo:
Saying that you can't have this treatment on the NHS is not the same as saying you can't have this treatment at all.

This is true. Good.
quote:
The relationship implied is that having treatment "on the NHS" means you are having a service that is NHS approved, and (as far as I understand) paid for by the NHS, and provided by people that the NHS considers qualified.
Not so. You misunderstand a simple phrase.

If I say "have a drink on me" I don't mean have a drink I approve of at your own expense, I mean have a drink at my expense.
.

Are you seriously suggesting that the word "on" automatically has a single meaning, applicable to both a government-run nationalised health service and your wallet?

"Have a drink on me. The drink is on the table."

EDIT: And you haven't even read what I said. I said the expense was paid by the NHS!

The phrase "on the NHS" is understood by everyone to mean the NHS is paying for it and by implication it's an appropriate treatment. Sometimes treatment is provided by someone else but if paid for from NHS funds it would be described as "on the NHS".

Clear enough? Does any UK resident disagree with this?
.

[ 05. September 2014, 11:23: Message edited by: Clint Boggis ]
 
Posted by orfeo (# 13878) on :
 
But that is what I said. I said, paid for by the NHS. Why are you continuing to disagree with me by agreeing with me?

[ 05. September 2014, 11:31: Message edited by: orfeo ]
 
Posted by Zacchaeus (# 14454) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Zacchaeus:
Yes but the relationship has to be formaly with a new one in place first that is the point.

And it says that, where?

Are you proposing that when a family moves interstate, the school that the family is leaving has some power over the enrolled children until the family identifies the name of the school that the children will attend in their new location?

We've already established there is no obligation to have a child enrolled in a school at all. There is only an obligation to have a child EDUCATED.

There are millions of conceptual miles between the idea that the old school would like to have information about the new arrangements if they are known, and the notion you're proposing that the new relationship "has to be formally in place". The latter cannot possibly be true if home schooling is permitted.

Well I have no idea about interstate or what happens over the pond, as I live in England – and I am not proposing anything, I was reporting to you was what I read on a news website.
And that was that English schools were being told to follow up on unexpected non returners, so that the authorities were satisfied that they knew where the children were.

Even home schooling has to be ok’d with the authorities too, yes people have the right to home school but they have to be able to tell the education authorities that is what they are doing. Children are not supposed to just go off the radar and schools were having their knuckles rapped because it was happening too often.

You cannot just remove a child from school and never go back, without evidencing where and how the child is getting its education.
Or you can find yourself in court for your child’s non attendance
 
Posted by Jane R (# 331) on :
 
orfeo:
quote:
I go to school at Sunnydale High...
[Eek!]
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Zacchaeus:
quote:
Originally posted by orfeo:
quote:
Originally posted by Zacchaeus:
Yes but the relationship has to be formaly with a new one in place first that is the point.

And it says that, where?

Are you proposing that when a family moves interstate, the school that the family is leaving has some power over the enrolled children until the family identifies the name of the school that the children will attend in their new location?

We've already established there is no obligation to have a child enrolled in a school at all. There is only an obligation to have a child EDUCATED.

There are millions of conceptual miles between the idea that the old school would like to have information about the new arrangements if they are known, and the notion you're proposing that the new relationship "has to be formally in place". The latter cannot possibly be true if home schooling is permitted.

Well I have no idea about interstate or what happens over the pond, as I live in England – and I am not proposing anything, I was reporting to you was what I read on a news website.
And that was that English schools were being told to follow up on unexpected non returners, so that the authorities were satisfied that they knew where the children were.

Even home schooling has to be ok’d with the authorities too, yes people have the right to home school but they have to be able to tell the education authorities that is what they are doing. Children are not supposed to just go off the radar and schools were having their knuckles rapped because it was happening too often.

You cannot just remove a child from school and never go back, without evidencing where and how the child is getting its education.
Or you can find yourself in court for your child’s non attendance

Sure.

The problem is equating the particular school with "the authorities". It is entirely correct to say that you are answerable to "the authorities" for the education of your child. But that is not the school. In fact you're telling me that the school tended to get in trouble with "the authorities" for not getting information on the fate of the child.

This seems to me to be one of the fundamental problems with this discussion. People are turning the duty of the school or the hospital to take an interest and get some information into an obligation on the parents to tell the school or the hospital some information. An obligation that I still don't think exists.

To put it briefly, a need to know is not the same as a need to tell. The fact that a school or hospital wants to know something, or is even required to know something, is not the same thing as a duty upon a parent to provide that information. I'm quite sure that a school or hospital can ask for this information from the parent, and in fact it's a damn good idea to ask for it, but that simply doesn't mean, without more, that the parent is then obliged to fulfil the request.

People are continually asserting that Ashya's parents HAD to tell the hospital they were removing him and where they were taking him. I've yet to see any evidence this is true. SHOULD they have? Of course, but you don't issue arrest warrants on the basis of people not following best practice.

It remains the case that no-one can find any legal requirement that would forbid them taking their child from the hospital - if there was, they would face charges of child abduction. I've seen one article pointing out that removing him when he was a ward of the Court would be illegal, but he wasn't a ward of the Court. The same article observed that obtaining the ward order afterwards was very much a case of shutting the door after the horse was bolted.

Nor was there anything lawful about not telling that particular hospital where they were going. It is not the case that having an obligation to treat a child means you have an obligation to satisfy a particular hospital that you are treating a child. It is not the case that having an obligation to educate your child means you have to satisfy a particular school that you are educating a child. You have to satisfy the education authorities. That's not the same thing. You are perfectly entitled to make different arrangements. You are not required, when moving to a different location, to tell your current medical practitioners or school teachers who your new medical practitioners or school teachers will be, for the incredibly obvious reason that you might not know yet.

[ 05. September 2014, 13:15: Message edited by: orfeo ]
 
Posted by Clint Boggis (# 633) on :
 
quote:
Originally posted by orfeo:
But that is what I said. I said, paid for by the NHS. Why are you continuing to disagree with me by agreeing with me?

Because you're not right. You said:

quote:
Originally posted by orfeo:
The relationship implied is that having treatment "on the NHS" means you are having a service that is NHS approved, and (as far as I understand) paid for by the NHS, and provided by people that the NHS considers qualified.

You talked about approval as being the determining factor, with costs being secondary. I said "on the NHS" means they're paying, with approval being implicit.

Approval of forms of medical treatment is the responsibility of a body called NICE which considers efficacy as well as cost. The NHS usually provides treatment but may arrange private treatment and cover the bill, in which cas it's still "on the NHS". It doesn't provide unapproved (by NICE) treatments which may be experimental or unduly costly compared with likely quality of life improvements.
 
Posted by justlooking (# 12079) on :
 
orfeo, you began this thread by asking 'who knows best - the state or the parents? What many of us have been trying to explain is that it isn't a simple either/or situation. The answer could be both and neither.

Nor is it primarily about power and control. It is about children's rights, their best interests and the responsibilities of both parents and state to act in accordance with those rights and best interests.

In the case we're talking about is a young child whose rights and interests are safeguarded by laws and procedures which are informed by, among other things, the UN Convention on the Rights of the Child

Ashya's parents and state institutions are obliged to comply with laws and procedures when decisions are being made about his medical treatment. The way the parents removed him from hospital put the medical staff under a legal obligation to take immediate action. They had no discretion to choose to do nothing. In such a situation power and control can be seen as ultimately with the child because his rights and best interests dictate what happens. In practical terms the court is now in control. The judge will decide, not on the basis of his or her personal views but on how best to secure the child's rights and provide medical treatment in accordance with his best interests. It may be that the court has appointed a Guardian ad Litum to represent Ashya's wishes because the judge must also try to determine what his wishes would be if Ashya was able to express them.

When it comes to education UK law requires parents to provide for this either by attendance at school or otherwise. If they choose a state school parents must ensure the child attends the school regularly. Failing to do this is an offence for which parents can be fined or even imprisoned. They can of course withdraw their child from any school by notifying the school or education authority and asking for the child's name to be removed from the register. In this case the education authority can make enquiries to satisfy themselves that the child is going to another school or is being home educated. The former school has no remit to make any enquiries about future education and if this is home education the local authority must proceed according to Department for Education guidelines - [URL]=https://www.gov.uk/govehechild rnment/publications/elective-home-education]elective home education[/URL]

You are right in saying that parents continually make decisions for their children however some decisions may be open to enquiry, challenge and possibly control by statutory bodies acting to safeguard children.

[ 05. September 2014, 13:24: Message edited by: justlooking ]
 
Posted by justlooking (# 12079) on :
 
Link - elective home education
 
Posted by North East Quine (# 13049) on :
 
Originally posted by Erroneous Monk:

quote:
The reason the treatment hadn't started 5 weeks later was that the parents wouldn't consent to it, isn't it?
No. The parents were under the impression that they had to consent to treatment, or have their parental rights taken away, and be banned from their child's bedside. They believed that not consenting wasn't an option. Hence the reason they removed him from the hospital secretly.

They may (and I hope they did) have completely misunderstood what the hospital were telling them. But they hadn't refused consent because of what they understood the implications of refusal to be.

The question I would like to know the answer to is - what had the hospital said to them which resulted in that understanding, or misunderstanding? (I understand that patient confidentiality might be preventing the hospital from ever being able to clarify this.)
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
orfeo, you began this thread by asking 'who knows best - the state or the parents?

I didn't begin the thread.

quote:
What many of us have been trying to explain is that it isn't a simple either/or situation. The answer could be both and neither.
I know. I never suggested otherwise.

quote:
Nor is it primarily about power and control. It is about children's rights, their best interests and the responsibilities of both parents and state to act in accordance with those rights and best interests.
ISSUING ARREST WARRANTS is primarily about asserting power.

quote:
In the case we're talking about is a young child whose rights and interests are safeguarded by laws and procedures which are informed by, among other things, the UN Convention on the Rights of the Child
Agreed.

quote:
Ashya's parents and state institutions are obliged to comply with laws and procedures when decisions are being made about his medical treatment.
Agreed.

quote:
The way the parents removed him from hospital put the medical staff under a legal obligation to take immediate action. They had no discretion to choose to do nothing.
Yes. In fact, I've explicitly stated on more than one occasion that sitting back and doing nothing wasn't an option.

The gulf between the obligation to do something and the wisdom of pursuing an arrest warrant is so wide, you could drive a Channel ferry through it.

quote:
In such a situation power and control can be seen as ultimately with the child because his rights and best interests dictate what happens.
I don't think that means the child has the power and control, but I agree his best interests control what happens.

quote:
In practical terms the court is now in control. The judge will decide, not on the basis of his or her personal views but on how best to secure the child's rights and provide medical treatment in accordance with his best interests. It may be that the court has appointed a Guardian ad Litum to represent Ashya's wishes because the judge must also try to determine what his wishes would be if Ashya was able to express them.
Agreed. Completely irrelevant, though, to what happened on the day that Ashya's parents removed him from hospital.

quote:
When it comes to education UK law requires parents to provide for this either by attendance at school or otherwise. If they choose a state school parents must ensure the child attends the school regularly. Failing to do this is an offence for which parents can be fined or even imprisoned.
Agreed. Never suggested otherwise.

quote:
They can of course withdraw their child from any school by notifying the school or education authority and asking for the child's name to be removed from the register. In this case the education authority can make enquiries to satisfy themselves that the child is going to another school or is being home educated. The former school has no remit to make any enquiries about future education and if this is home education the local authority must proceed according to Department for Education guidelines - elective home education
Which appears to be entirely consistent with what I've been saying, yes. It's not consistent with what some people appear to think I've been saying, but I'm not responsible for the fact that people keep adding and removing relational clauses so that something I say in relation to a particular school becomes a general proposition, or vice versa.

quote:
You are right in saying that parents continually make decisions for their children however some decisions may be open to enquiry, challenge and possibly control by statutory bodies acting to safeguard children.
Agreed. And explicitly said by me before to deny the notion that "children are property".

Enquiry and challenge are not the same thing as pursuing an arrest warrant. An arrest warrant is a legal sledgehammer. My problem is not with the hospital taking an interest in Ashya's welfare. My problem is with the hospital getting everyone into an enormous tizzy about the immediate, doomsday risk to the child such that it was necessary to remove all legal control from the parents (a pointless exercise if he's not in the country) and issue an arrest warrant.

If they'd put out a call across the media saying they had concerns for Ashya's welfare and urging the family or anyone else with information to get in contact, we would not be having this conversation.

[fixed link]

[ 05. September 2014, 13:48: Message edited by: Eutychus ]
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Clint Boggis:
quote:
Originally posted by orfeo:
But that is what I said. I said, paid for by the NHS. Why are you continuing to disagree with me by agreeing with me?

Because you're not right. You said:

quote:
Originally posted by orfeo:
The relationship implied is that having treatment "on the NHS" means you are having a service that is NHS approved, and (as far as I understand) paid for by the NHS, and provided by people that the NHS considers qualified.

You talked about approval as being the determining factor, with costs being secondary. I said "on the NHS" means they're paying, with approval being implicit.

Approval of forms of medical treatment is the responsibility of a body called NICE which considers efficacy as well as cost. The NHS usually provides treatment but may arrange private treatment and cover the bill, in which cas it's still "on the NHS". It doesn't provide unapproved (by NICE) treatments which may be experimental or unduly costly compared with likely quality of life improvements.

RIGHT. Thank you. So when you suggested I had said "at your own expense", you were in fact completely wrong and were pointing at the wrong part of what I'd said entirely.

I don't know where you got the idea that I said 3 things in a particular order, with commas between them, meant that I was setting up a priority and labelling one of them 'the determining factor'. If I'd meant that I would have said it.

I will happily accept that the treatments are not approved by the NHS. And will amend my statement to say that they are approved treatments, without saying who they are approved by.
 
Posted by cliffdweller (# 13338) on :
 
quote:
Originally posted by Alisdair:

It illustrates the reality that to a large extent we have allowed so called 'professionals' (medical/legal/...) to 'own' the area of life they apply their knowledge in, rather than acting as 'servants'. That 'ownership' can and does often extend to an ownership of those who are receiving that professional's service.

In other words, people become dis-empowered (horrible word), are stripped of personal/social responsibility and become 'children' under the guardianship of the professionals---who clearly know what's best because they have laid claim to authority in that area of life.

I think this used to be true 20 years ago. Since then it has become an excuse for anti-intellectualism.

It's a pendulum swing. Yes, doctors are fallible. They make mistakes. They can be insufferably arrogant. But there is still good reason to believe that someone who has spent a good part of their life studying medicine knows a bit more about the field than someone, even a parent, who has not. There are good reasons for listening to medical professionals, even the insufferably arrogant ones.


quote:
Originally posted by Alisdair:

Just to finish, on a slightly transcendent note: we are all going to die, sooner or later, it is the natural way of things. In my experience, working in a hospital as I do, what matters most to most people is not so much whether they will be cured (although that is naturally often hoped for), but whether they will be 'looked after', i.e. cared for, treated with respect and compassion, even loved (if institutional care is capable of such a thing, which it is given wise and encouraging leadership and example).

This sounds lovely, but particularly in the case of a desperately ill child, it's really rubbish. I'm sorry, but a parent of a seriously ill child would certainly prefer that their child be loved and cared for by compassionate health care professions, but first and foremost they DO want their child cured. End stop. That is their one and only desire and everything else-- including all those lovely soft intangibles-- is a very very distant second.

Many years ago I found myself in a high-risk pregnancy, having lost 3 already thru miscarriage. My OB was really more of an SOB-- the epitome of arrogance, zero bedside manner, very hard to nail down to get him to answer questions (would have one hand on the doorknob of the examining room ready to bolt the whole time)-- everything one rightly complains about re: the medical community. He also was extremely qualified in the field. Sure, I would have loved it if he had been a bit more approachable, a bit less hurried and rushed. But I was willing to deal with it, because I knew (having researched it a bit) he was my best chance of carrying this pregnancy to term (as I did). For my 2nd pregnancy, I went back to the same arrogant SOB, for the exact same reasons.

Hospice/ end of life care is another matter, and fits your description, of course.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by orfeo:
[QUOTE]Originally posted by justlooking:
orfeo, you began this thread by asking 'who knows best - the state or the parents?

I didn't begin the thread.

Sorry about that - it was seekingsister.

quote:
What many of us have been trying to explain is that it isn't a simple either/or situation. The answer could be both and neither.
I know. I never suggested otherwise.

I have the impression from many of your posts you've been arguing that the parent is, or should be, in control.

quote:
Nor is it primarily about power and control. It is about children's rights, their best interests and the responsibilities of both parents and state to act in accordance with those rights and best interests.
ISSUING ARREST WARRANTS is primarily about asserting power.

Yes,and this is an instance of the state acting in accordance with the child's rights and best interests - the power is asserted on behalf of the child.

quote:
The way the parents removed him from hospital put the medical staff under a legal obligation to take immediate action. They had no discretion to choose to do nothing.
Yes. In fact, I've explicitly stated on more than one occasion that sitting back and doing nothing wasn't an option.

The gulf between the obligation to do something and the wisdom of pursuing an arrest warrant is so wide, you could drive a Channel ferry through it.


The arrest warrant was IMO the best way of ensuring Ashya could be taken to a hospital as soon as he was found. This case in the US has some similar features
parents arrested

You have been arguing that parents are in control of the doctor/patient relationship when the child is the patient. I have been seeking to show that there is a network of relationships which operate to safeguard the child, including if necessary from the actions of the parents.

Ashya's parents have achieved a great deal of publicity and offers of funding but they have also delayed his continued treatment and caused considerable alarm.
 
Posted by L'organist (# 17338) on :
 
posted by justlooking
quote:
Ashya's parents have achieved a great deal of publicity and offers of funding but they have also delayed his continued treatment and caused considerable alarm.
1. I don't think this child's parents were after publicity, I think they were trying to achieve the best possible treatment for their son. In any case, what they have got is notoriety.

2. Do you really begrudge them the money to pay for treatment for their child? Yes, I know what was on offer from the NHS would be free, but that is not what they wanted - and whether or not it was the best treatment for their son is open to question.

3. They have not delayed their son's treatment at all: the minimum time from surgery to radiotherapy - of any kind - would be 5 weeks and since the child had another procedure (in late August) it is likely that radiotherapy (even the kind they don't want) would not be started until at least 3 weeks after that procedure - so not by now.

Furthermore, even if the NHS had recommended PBT the average lead time for this within the NHS is a minimum of 15 weeks: 4 weeks to go before the panel that decides whether or not to sanction the funding then a further 9 to arrange for further tests and scans, hotel accommodation, flights, visas, etc.

You seem to assume that because the parents disagreed with the treatment as proposed by the UK hospital it is reasonable to use legal force to coerce/force them into complying with that judgement. Far from seeking to stop treatment, these parents were seeking to get the best possible for their child. To put people like this in prison is grotesque.

Moreover, it can be argued that forcing a situation where a child is deprived of his parents, the company of his siblings, or of being in an environment where people speak his language constitutes abuse - and that situation came about through the combined efforts of Portsmouth City Council and Hampshire Constabulary, aided and abetted by selective release of accurate information by Southampton General Hospital.
 
Posted by Karl: Liberal Backslider (# 76) on :
 
Is it worth pointing out that at the point that the search started and the IAW were issued, all that was known by the hospital and the police was that a seriously ill child had vanished from the hospital without explanation?
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by Karl: Liberal Backslider:
Is it worth pointing out that at the point that the search started and the IAW were issued, all that was known by the hospital and the police was that a seriously ill child had vanished from the hospital without explanation?

That's inaccurate. The IAW took a while to be issued. Earlier, at least by the time the search had hit the UK media, the police knew the child had been removed from the hospital* by his father. Later, by the time the search IAW had been issued, they were sure they had crossed the Channel to Cherbourg, having declared a "passenger with medical needs" to Brittany Ferries.

*I still can't get over this "without the consent of the hospital" terminology. Can somebody point to where that expression has grounds in law?
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
I have the impression from many of your posts you've been arguing that the parent is, or should be, in control.

I have been arguing that this is the default position. Departure from that position requires some kind of legal rule that alters the default position.

As I've said, the alternative is that parents would constantly require some kind of court order or other official approval to go about their daily life as parents. When a child is born, they go home with their parents and those parents start 'parenting'. There is no extra legal action required to bring this about.

The point of what I'm arguing is that it's absolutely vital to identify the precise outline of whatever rule alters the default position, and carves out an area where there is a different rule from the default one.

Obviously my professional training as a drafter comes into play here, but I find any kind of statement that "X has power" tends to be a bit useless. Power to do what? In relation to what or whom? In what circumstances? With what preconditions? And so on and so on.

The Convention on the Rights of the Child (CRC) is not a rule of the kind that would answer those questions. It's a broad general convention that requires countries to PUT more specific rules in place to ensure certain kinds of outcomes. International laws of that kind are quite notorious for not nailing down just who has to do what and when.

Yes, the law imposes a duty on the parents to ensure medical treatment, but what it doesn't do is prescribe precisely what that medical treatment must be or where it must take place. It would actually be tremendously difficult to draft a law imposing such a duty, because of the enormous variety of circumstances it would have to cover.

The law focuses on the outcome - treatment (and in the other analogy we've been discussing, education) - in much the same broad general way that the CRC does. But who treats the child, and how, and where, are questions of process. The law doesn't usually take those decisions about process away from the parents, because the process needed to achieve the required outcome is going to be different in every case, and the parent is usually the person best placed to understand the specific circumstances. They have the most information about the particular child.

There's no doubt that making Ashya a ward of the court is an exercise of one of the more specific sets of rules designed to ensure CRC outcomes. No doubt there are specific legal criteria for making such an order. One issue is whether those criteria were in fact satisfied - the court obviously found that they were, but that's dependent on the evidence presented to the court. In this case, the evidence only came from one side.

Another issue is whether there was any point in this action in the circumstances. Even if it was legally authorised, what did it achieve when Ashya was believed to be at large somewhere in Europe (hence the arrest warrant)?

But the bigger issue is, even if it was legally in power, was it a good idea? And even if an arrest warrant was validly obtained, was that actually a good use of the power to obtain an arrest warrant?

That, I suppose, is where the "should" part of the equation comes in. What justification was there from departing from the usual position?

And I still maintain that the parents were indeed in control up until court action was taken. Before the court order, there was no legal reason why they couldn't leave the hospital with their son. Before the court order, I still can't see any legal duty to inform the hospital that is what they were doing (even though informing the hospital would have been objectively smarter and might not have triggered the hospital's own duties to follow up on the removal of a patient).

So yes, I do think that the parent has control unless and until it's taken away by some rule or in accordance with some mechanism set out in a rule, and I also think that this is entirely sensible. The law sets some limits on the scope of parental authority, but inside those limits it pretty much says "it's up to you how you go about this, so long as you ensure that some essential outcomes are achieved".
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by Eutychus:


*I still can't get over this "without the consent of the hospital" terminology. Can somebody point to where that expression has grounds in law?

The Daily Mail has an updated article which refers to the legal situation in Spain:

Ashya King can't be moved from Malaga hospital without High Court permission

quote:
If no agreement can be reached, lawyers for the parents and the NHS trust will appear before the judge on Monday and the court will make the final decision over the five-year-old’s treatment.

But today, Spanish local officials also insisted that if an agreement cannot be reached, Ashya's future will be determined by the doctors treating him in Malaga - and not the High Court.

Andalucia's regional Health Minister said medics looking after Ashya at the Hospital Materno-Infantil in Malaga would have 'the last word' under a 2005 regulations governing healthcare for minors in southern Spain.

They guarantee that the interests of the child should always prevail. Regional Health Minister Maria Jose Sanchez Rubio said: 'Whoever has the child's custody, the rights of that child are determined by the laws of the country the child is presently in. The child is here and so the rules here apply. 'Every decision about his future is adopted in conjunction with the local State Prosecution Service to guarantee that from a judicial and protection point of view, the interests of the child always prevail.'



 
Posted by orfeo (# 13878) on :
 
Oh, and I agree with L'Organist that there is no evidence whatsoever that Ashya's treatment has been delayed. Last I heard, he is sitting in a known location in a hospital bed in Spain, and no-one is delivering him chemotherapy or radiotherapy.

That's precisely one of the reasons why the arrest warrant, with its flavour of screaming urgency, seems so utterly inappropriate.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
quote:
Originally posted by Eutychus:


*I still can't get over this "without the consent of the hospital" terminology. Can somebody point to where that expression has grounds in law?

The Daily Mail has an updated article which refers to the legal situation in Spain:

Ashya King can't be moved from Malaga hospital without High Court permission

quote:
If no agreement can be reached, lawyers for the parents and the NHS trust will appear before the judge on Monday and the court will make the final decision over the five-year-old’s treatment.

But today, Spanish local officials also insisted that if an agreement cannot be reached, Ashya's future will be determined by the doctors treating him in Malaga - and not the High Court.

Andalucia's regional Health Minister said medics looking after Ashya at the Hospital Materno-Infantil in Malaga would have 'the last word' under a 2005 regulations governing healthcare for minors in southern Spain.

They guarantee that the interests of the child should always prevail. Regional Health Minister Maria Jose Sanchez Rubio said: 'Whoever has the child's custody, the rights of that child are determined by the laws of the country the child is presently in. The child is here and so the rules here apply. 'Every decision about his future is adopted in conjunction with the local State Prosecution Service to guarantee that from a judicial and protection point of view, the interests of the child always prevail.'



That's probably because he is now a ward. It has no relevance to the situation when he was removed from Southampton. Nor does a Spanish regulation tell you what the legal situation was in Southampton.

[ 05. September 2014, 15:34: Message edited by: orfeo ]
 
Posted by Eutychus (# 3081) on :
 
No, that "consent" terminology has been used consistently right from when the story broke, and is still being used by Southampton General about what happened when he was first removed.
 
Posted by justlooking (# 12079) on :
 
The legal situation in the UK seems to be similar to that of other European countries. The child is in Spain where he and his family were living until they came to England following the diagnosis. If no agreement is reached on Monday the doctors in Malaga will decide Ashya's treatment. In that case the parents would need the Spanish hospital's consent to remove him.

[ 05. September 2014, 15:58: Message edited by: justlooking ]
 
Posted by Zacchaeus (# 14454) on :
 
Firstly, I was not asserting anything, but passing on a news item which I had read which was reporting on responsibilities of schools and local authorities, regarding children who disappear out of the school system.

But sorry to be unclear – state schools in England (I won’t answer for the other UK countries, as systems vary a bit) do not stand alone they are answerable to a local education authority (which is a part of the local government authority that deals will all local services) and then to the department of education.

It’s slightly complicated with the advent of academies and free schools (it would take somebody in the system at the moment to explain properly) but the end of the day the school is responsible to the authority up the chain. Who is answerable to the central government department of Education– these are what I meant by the authorities, shorthand for the higher up part of the chain that the school has to answer to. But basically a part of the same system.

You can of course report directly to the Local education department, about your child’s school movements (and in the case of home schooling you may have to) but most parents deal straight with their schools – and the school passes on the necessary information. But the education department will demand to know the details of your child’s schooling and what your intentions are and if they are not satisfied will take you to court.

I was, as I said, reporting something I had seen, I was not making any assertions myself. So if you don’t agree with what I said argue with the BBC. This was a news item saying that schools as the ones at the sharp end of the system the schools were to be vigilant and pass up the chain information about any unexpected non returning children.
 
Posted by orfeo (# 13878) on :
 
Consent might be a legal requirement in Spain. I still can't see that it was in the UK. The charges brought against the parents, for the purpose of the arrest warrant, were based on the concept of neglect. As far as I can see they weren't based on the concept of abduction - of unlawful removal from a location.

I've seen one Daily Mail article having lawyers explicitly state this: that it was quite impossible for the parents to be guilty of abducting their own child, because they had lawful custody of the child. I don't necessarily trust the Daily Mail as an unbiased source of solid legal information, so it would be nice to find some other source. But as yet I've still not seen anything that shows that Southampton hospital had a legal right as against Ashya's parents to have its consent obtained.

The legal situation would be entirely different if we were talking about abduction by a stranger, because the entire point is that a stranger would lack the legal authority. But no-one has yet given me anything remotely convincing to back the assertion that while Ashya's parents had authority to put him in the hospital, they'd somehow lost the authority to take him out at the time that they did so.

They've since lost that authority in the UK. That was one of the results of the court order. But the very fact that a court order was necessary to achieve that result rather suggests that the legal situation was different before the court order!
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Zacchaeus:
Firstly, I was not asserting anything, but passing on a news item which I had read which was reporting on responsibilities of schools and local authorities, regarding children who disappear out of the school system.

But sorry to be unclear – state schools in England (I won’t answer for the other UK countries, as systems vary a bit) do not stand alone they are answerable to a local education authority (which is a part of the local government authority that deals will all local services) and then to the department of education.

It’s slightly complicated with the advent of academies and free schools (it would take somebody in the system at the moment to explain properly) but the end of the day the school is responsible to the authority up the chain. Who is answerable to the central government department of Education– these are what I meant by the authorities, shorthand for the higher up part of the chain that the school has to answer to. But basically a part of the same system.

You can of course report directly to the Local education department, about your child’s school movements (and in the case of home schooling you may have to) but most parents deal straight with their schools – and the school passes on the necessary information. But the education department will demand to know the details of your child’s schooling and what your intentions are and if they are not satisfied will take you to court.

I was, as I said, reporting something I had seen, I was not making any assertions myself. So if you don’t agree with what I said argue with the BBC. This was a news item saying that schools as the ones at the sharp end of the system the schools were to be vigilant and pass up the chain information about any unexpected non returning children.

You did make an assertion. You made an assertion that the formal arrangements with the new school had to be in place.

I haven't disagreed with anything that you related about what the BBC had reported in terms of schools being required to check up on things. The only thing I've disagreed with is the extra piece of interpretation you added to it. Or did the BBC report include the bit saying "you have to have a formal arrangement with the new school"?

I strongly suspect it didn't. I strongly suspect that "the relationship has to be formaly with a new one in place first that is the point" are your own words. For one thing, that's at the start of your post and you start talking about the BBC report 3 paragraphs further down. I've entirely agreed with and accepted everything that appears in your post from that point onwards.

[ 05. September 2014, 16:21: Message edited by: orfeo ]
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by orfeo:
the very fact that a court order was necessary to achieve that result rather suggests that the legal situation was different before the court order!

It is precisely because the term consent (on the part of the hospital) has been used from the outset that I'm concerned. It illustrates a mindset that very possibly extends beyond the actual legal situation - if so, it tips the balance unlawfully in favour of the authorities.
 
Posted by Doublethink (# 1984) on :
 
You do all realise it would have been cheaper and easier for the NHS to promote the family going private in another country ?

There is absolutely no gain, financial or otherwise, for the NHS in insisting on keeping and treating the child. They acted out of genuine concern, else why bother - it is not like there are not others waiting for treatment or the professionals involved are somehow rewarded for hanging in there.

The hospital's own statement points out the battery charger was left on the ward, the parents had no training on the maintainance of the nasogastric tube, and the child was at risk of infection.

The child was at risk whilst he was traveling. In a proper transfer he would probably have travelled by ambulance with suction available.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by Eutychus:
quote:
Originally posted by orfeo:
the very fact that a court order was necessary to achieve that result rather suggests that the legal situation was different before the court order!

It is precisely because the term consent (on the part of the hospital) has been used from the outset that I'm concerned. It illustrates a mindset that very possibly extends beyond the actual legal situation - if so, it tips the balance unlawfully in favour of the authorities.
The term 'consent' may be a way of referring to the usual process of discharge from hospital which requires medical staff to assess the patient's suitability for discharge and provide a 'discharge letter' which will be copied to the patient's GP. If doctors decide a patient is not fit for discharge but the patient insists on leaving then they are asked to sign a form to the effect that they are leaving against medical advice.

In the case of a very sick child who was openly being taken away without having been discharged the hospital would be able to take immediate action to prevent the child's removal. They could contact police who have power to prevent a child being removed from hospital:

quote:
Under section 46 of the Children Act 1989, where a police officer has reasonable cause to believe that a child would otherwise be likely to suffer significant harm, s/he may:

remove the child to suitable accommodation and keep him or her there; or
take reasonable steps to ensure that the child’s removal from any hospital, or other place in which the child is then being accommodated is prevented.

child protection powers

In the circumstances if Ashya had been openly removed, even with the provision for feeding etc that his parents had made then it is highly likely the police would have been asked to intervene.
 
Posted by orfeo (# 13878) on :
 
The police. Not the hospital.

See, half the reason I go on about precision with powers is that there's a difference. Somewhere, pages ago, you'll find a reference from me to the idea that hospital staff are not police.

Okay, so they can call police. We all can. THAT DOESNT MEAN THAT WHEN WE CALL POLICE, THEY JUST DO WHAT WE TELL THEM TO DO.

It's the paternalistic, doctors are gods, everyone has to do what the doctor tells them to do mindset that helped create this mess. Not only are the parents not obliged to follow orders delivered by doctors, the police aren't obliged to follow orders delivered by doctors either.
 
Posted by justlooking (# 12079) on :
 
latest news

The court has decided Ashya can be taken to Prague for treatment. The wardship order will be removed when he is admitted to the Prague hospital.
 
Posted by orfeo (# 13878) on :
 
You might also find it instructive to read all the conditions and qualifications on that page, and more importantly in the legislation that it links to. Starting with the clear statements about informing the parents, that the police officer doesn't gain parental responsibility, and indeed the general lack of powers of the hospital itself.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
latest news

The court has decided Ashya can be taken to Prague for treatment. The wardship order will be removed when he is admitted to the Prague hospital.

What? But that's what the dangerous suspected criminals wanted!
 
Posted by cliffdweller (# 13338) on :
 
quote:
Originally posted by orfeo:
You might also find it instructive to read all the conditions and qualifications on that page, and more importantly in the legislation that it links to. Starting with the clear statements about informing the parents, that the police officer doesn't gain parental responsibility, and indeed the general lack of powers of the hospital itself.

quote:
Originally posted by orfeo:
quote:
Originally posted by justlooking:
latest news

The court has decided Ashya can be taken to Prague for treatment. The wardship order will be removed when he is admitted to the Prague hospital.

What? But that's what the dangerous suspected criminals wanted!
All of which goes to prove the point others have been trying to make all along: that there was no grand conspiracy here to deprive the parents of their rights, no jackbooted government overlords. Just good people on both sides trying to do what's best for a small, sick boy, complicated most likely by poor communication on both sides due to stress, arrogance, or mistaken assumptions. All happening within some very carefully balanced legal confines which balance the interests of all involved. The result is often messy, as was the case here, but again, hardly the slippery slope to 1984.
 
Posted by JoannaP (# 4493) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by justlooking:
latest news

The court has decided Ashya can be taken to Prague for treatment. The wardship order will be removed when he is admitted to the Prague hospital.

What? But that's what the dangerous suspected criminals wanted!
And it is possible that their actions delayed the treatment.

According to The Guardian, the hospital did apply for NHS funding for Ashya to get Proton Beam Therapy but it was turned down; as most of his brain has to be irradiated, there is no benefit in something that can be precisely targeted.
 
Posted by orfeo (# 13878) on :
 
I rather think that what it proves is that the parents weren't nuts for raising proton therapy as a treatment option in the first place. A few days ago the hospital was making public pronouncements about why there was no point to proton therapy.

Or have we forgotten that part?

[ 06. September 2014, 00:02: Message edited by: orfeo ]
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by orfeo:
You might also find it instructive to read all the conditions and qualifications on that page, and more importantly in the legislation that it links to. Starting with the clear statements about informing the parents, that the police officer doesn't gain parental responsibility, and indeed the general lack of powers of the hospital itself.

I think you need to read the page carefully.

quote:
In such circumstances, the police should inform the child (if he or she appears competent to understand) and take such steps as are reasonably practicable to ascertain the child’s wishes and feelings.

Nothing on this page about informing parents.

quote:

An emergency protection order gives authority to remove a child, and places the child under the protection of the applicant.

duties and powers of the police under the Children Act 1989

This page has a detailed section on keeping the child informed and ascertaining the child's wishes and feelings. There is a brief section on informing the parents and other adults. No that the thing on either page suggests a 'general lack of powers' of the hospital.

Parental Responsibility
quote:
43. If a constable removes a child under section 46 emergency powers, the child is deemed to be under police protection but neither the Designated Officer nor the Initiating Officer has parental responsibility for the child (see section 46(9)). However, the Designated Officer is responsible for doing what in all the circumstances of the case is reasonable to safeguard or promote the child's welfare, having regard in particular to the length of the period during which the child will be under police protection. In practical terms, this may mean just the provision of food and shelter etc. In an emergency medical situation, the doctor would act in the patient's best interest without express consent, as technically the officer would be unable to consent on the child's behalf. Other non-urgent areas that a person with parental responsibility has to decide upon (bearing in mind the limited time-span of police protection) fall outside the officer's responsibility.

The child protection laws would have prevented Ashya's parents from effecting his removal from hospital without the agreement of medical staff. Doctors do not need to give orders or instructions to the police - the police have all the authority they need to take action, including arresting parents. It's highly unlikely in the case of a sick child that the police would have done anything other than prevent his removal from hospital.

What the parents wanted was to have the wardship order removed and to take Ashya to Prague. However, the court has agreed to his transfer to Prague as a ward of court and the wardship will be ended only when he is admitted to the hospital. The Prague hospital will no doubt have its own child protection policy.

[ 06. September 2014, 00:08: Message edited by: justlooking ]
 
Posted by orfeo (# 13878) on :
 
And in fact the Guardian article confirms that the doctors in Southampton are still against the treatment.

Oh my goodness. What a dreadful judgement. Won't somebody listen to the doctors??
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
Nothing on this page about informing parents.

I said read the Act. Did you read the Act, or are you still relying on a summary supplied by someone else?

"This page" is not the law of the land. "This page", though, HAS LINKS to the law of the land. Instead of quoting me a paraphrase of section 46, how about you actually read section 46?

[ 06. September 2014, 00:07: Message edited by: orfeo ]
 
Posted by orfeo (# 13878) on :
 
Oh look, I'll even set a couple of choice bits for you.

quote:
(4)As soon as is reasonably practicable after taking a child into police protection, the constable concerned shall take such steps as are reasonably practicable to inform—

(a)the child’s parents;

(b)every person who is not a parent of his but who has parental responsibility for him; and

(c)any other person with whom the child was living immediately before being taken into police protection,

of the steps that he has taken under this section with respect to the child, the reasons for taking them and the further steps that may be taken with respect to him under this section.

...

(9)While a child is being kept in police protection—

(a)neither the constable concerned nor the designated officer shall have parental responsibility for him; but

(b)the designated officer shall do what is reasonable in all the circumstances of the case for the purpose of safeguarding or promoting the child’s welfare (having regard in particular to the length of the period during which the child will be so protected).

(10)Where a child has been taken into police protection, the designated officer shall allow—

(a)the child’s parents;

(b)any person who is not a parent of the child but who has parental responsibility for him;

(c)any person with whom the child was living immediately before he was taken into police protection;

(d)any person in whose favour a contact order is in force with respect to the child;

(e)any person who is allowed to have contact with the child by virtue of an order under section 34; and

(f)any person acting on behalf of any of those persons,

to have such contact (if any) with the child as, in the opinion of the designated officer, is both reasonable and in the child’s best interests.


 
Posted by cliffdweller (# 13338) on :
 
quote:
Originally posted by orfeo:
I rather think that what it proves is that the parents weren't nuts for raising proton therapy as a treatment option in the first place. A few days ago the hospital was making public pronouncements about why there was no point to proton therapy.

Or have we forgotten that part?

No, haven't forgotten-- but it doesn't change my point, nor does it prove the point you appear to be trying to make.
 
Posted by justlooking (# 12079) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by justlooking:
Nothing on this page about informing parents.

I said read the Act. Did you read the Act, or are you still relying on a summary supplied by someone else?

"This page" is not the law of the land. "This page", though, HAS LINKS to the law of the land. Instead of quoting me a paraphrase of section 46, how about you actually read section 46?

This is the Act - Section 46 from which the information from the police guidance notes is taken. You read it. It shows clearly that the law of the land aims to protect children, if it is necessary, from the actions of their parents.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by justlooking:
quote:
Originally posted by orfeo:
quote:
Originally posted by justlooking:
Nothing on this page about informing parents.

I said read the Act. Did you read the Act, or are you still relying on a summary supplied by someone else?

"This page" is not the law of the land. "This page", though, HAS LINKS to the law of the land. Instead of quoting me a paraphrase of section 46, how about you actually read section 46?

This is the Act - Section 46 from which the information from the police guidance notes is taken. You read it. It shows clearly that the law of the land aims to protect children, if it is necessary, from the actions of their parents.
I didn't say otherwise. I said that it required informing the parents, and that it didn't take away parental responsibility from the parents. I also told YOU to read it when you said "nothing there about informing the parents", so it really isn't necessary to provide me a link. I've already read it, before you.

It also has nothing to do with issuing arrest warrants. It's amazing how much time people spend on every other issue other than the one I've actually expressed concern about. That piece of legislation explicitly encourages contact between parent and child, not hauling parents away.

[ 06. September 2014, 00:26: Message edited by: orfeo ]
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by cliffdweller:
quote:
Originally posted by orfeo:
I rather think that what it proves is that the parents weren't nuts for raising proton therapy as a treatment option in the first place. A few days ago the hospital was making public pronouncements about why there was no point to proton therapy.

Or have we forgotten that part?

No, haven't forgotten-- but it doesn't change my point, nor does it prove the point you appear to be trying to make.
So, the parents WERE nuts for raising proton therapy as a treatment?

What does that make the judge for agreeing to it, over the Southampton doctors' continued objections?
 
Posted by orfeo (# 13878) on :
 
Oh, and justlooking, in response to you I should comment on the bold highlighting of "in an emergency medical situation" as some kind of response to me referring to the hospital's "general lack of powers".

Can you not see you are agreeing with me? If I say GENERAL, how is pointing to one, specific situation where the hospital empowered to act a counterargument? Did you not process what I said before about parental control being the default position, WITH SPECIFIC CARVE-OUTS?

I didn't say "in an emergency medical situation", everyone just has to sit back and watch the child die. It's well established that "in an emergency medical situation", the normal rules about consent don't apply. A hospital doesn't have to wait for an unconscious adult patient to wake up and ask "would you like us to save you?".

In other words, there's no question in any circumstance that medical staff are allowed to act in an emergency medical situation. It's got nothing to do with whether there's a police guard or a court order, it's got everything to do with an emergency meaning there's no time to lose.

So, that's emergencies covered then. Meanwhile, there's a boy sitting in a hospital bed in Spain, and still none of the medical people looking after him seem terribly perturbed that he won't get to Prague until Monday and that he hasn't had any chemotherapy or radiotherapy in the last week. So why are you even referring to emergencies?

If the police had been called, a police officer would have been authorised to decide for himself that he needed to ensure the child wasn't taken away. This would not have meant arresting the parents (although it might if they caused enough trouble). This would not take control of medical decisions away from the parents. And it would not, in any way have authorised the hospital to start their preferred treatment over the objection of the parents.

[ 06. September 2014, 00:43: Message edited by: orfeo ]
 
Posted by cliffdweller (# 13338) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by cliffdweller:
quote:
Originally posted by orfeo:
I rather think that what it proves is that the parents weren't nuts for raising proton therapy as a treatment option in the first place. A few days ago the hospital was making public pronouncements about why there was no point to proton therapy.

Or have we forgotten that part?

No, haven't forgotten-- but it doesn't change my point, nor does it prove the point you appear to be trying to make.
So, the parents WERE nuts for raising proton therapy as a treatment?

What does that make the judge for agreeing to it, over the Southampton doctors' continued objections?

I don't believe anyone here has argued that the parents were nuts.
 
Posted by orfeo (# 13878) on :
 
Just criminally dangerous, then.
 
Posted by cliffdweller (# 13338) on :
 
quote:
Originally posted by orfeo:
Just criminally dangerous, then.

I haven't seen anyone argue that either.

Foolish perhaps. Poor communicators, possibly (as several have suggested) due to the stress of having a sick child. Those two unfortunate things led to an unfortunate string of events, as happens sometimes even when everyone has the best of intentions. But fortunately it seems there was a good process in place-- one that supports both the hospital's concerns & those of the parents, and was able to sort thru all the messiness and misunderstandings to end with what is hopefully a good decision in terms of the best interest of the child.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by cliffdweller:
quote:
Originally posted by orfeo:
Just criminally dangerous, then.

I haven't seen anyone argue that either.

Anyone who has argued an arrest warrant was a good idea has argued exactly that. Either that, or they have a confused idea about what arrest warrants are for.

Someone else might have suggested a 'conspiracy', as you referred to, but it wasn't me. What I've suggested is stupid heavy-handedness, and I'm still suggesting it.

[ 06. September 2014, 01:04: Message edited by: orfeo ]
 
Posted by no prophet (# 15560) on :
 
Proton therapy evidence base review providing support.

quote:
Current data do not provide sufficient evidence to recommend PBT in lung cancer, head and neck cancer, GI malignancies, and pediatric non-CNS malignancies.
Which suggests that central nervous system tumours can be treated with this.

The opposite conclusions from a review.

quote:
a systematic review of published peer-reviewed literature reported previously and updated here is devoid of any clinical data demonstrating benefit in terms of survival, tumor control, or toxicity in comparison with best conventional treatment for any of the tumors so far treated including skull base and ocular tumors, prostate cancer and childhood malignancies.
This article goes on to state "proton therapy, should not be employed on the basis of belief alone and requires testing to avoid inappropriate use of potential detriment to future patients."

I suspect that the the reasons for disparity in the review articles - there are many more - is that particular types of tumour are probably not treated with it, and others are, and they do not know how to identify which is which yet. I suspect, heart rending as it is, that the conclusion to not provide this therapy would be considered to be reasonable in this case after sifting through about 7 or 8 of these reviews.
 
Posted by orfeo (# 13878) on :
 
I think this Guardian article is a pretty good summary of the whole sorry saga.

The dispute. The discussion, at least, of court orders. The overreaction. The admission by everybody but the hospital that errors were made.

It sets out the basic legal principle, seemingly challenged by many Shipmates, that parents decide medical treatment. It tells you when that general principle can be overridden.

I've recently noticed elsewhere that what the police initially did was issue a call for information. Which is nice, because somewhere along the line I suggested exactly that was an appropriate response.

The end result of this, as things currently stand, is that the treatment that doctors in Southampton seem to have tried to insist upon is not going to happen. The treatment that Ashya's parents said they wanted is going to happen. That is exactly as it should be. There was absolutely no reason why an arrest warrant had to be issued to arrive at that result.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by no prophet:
I suspect, heart rending as it is, that the conclusion to not provide this therapy would be considered to be reasonable in this case after sifting through about 7 or 8 of these reviews.

Excellent. Because no-one is forcing Southampton doctors to provide this therapy against their will.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by cliffdweller:
The basis for the arrest warrant was not what was known, but rather what was unknown. It seems to me that in this case the law as it's been described here operated exactly as it was supposed to-- put the brakes on when there was a reasonable cause for concern, took the brakes off once those fears were relieved.

I'll remind you of this when it's unknown whether or not you've committed a crime.

No, the protection order was on the basis of what was unknown. The protection order could legitimately be founded on some concerns for child safety.

You don't issues arrest warrants as a means of enforcing a civil order!! You issue arrest warrants for criminal offences.
 
Posted by orfeo (# 13878) on :
 
Another article that resonates with me, because people have been citing various laws that are aimed at situations where parents are a threat to their child as if that makes any sense for a family that brought their sick child in for treatment and stayed at his bedside.
 
Posted by no prophet (# 15560) on :
 
Yes, I think the hosp/doc/funding agency decision stops at the point they won't fund or provide. We had a case in Canada that provides an interesting parallel a few years back. In that case the parents rejected conventional medical treatment, wanting Mexican alternative and nonevidence based care plus faith healing. There was a court case, but given up when the cancer was assessed as too advanced to proceed, in that case with amputation.

It seems to me that one issue to determine is whether proposed parental treatment meets a standard for reasonable care. The proton treatment probably really doesn't. But would the doctors' proposed plan have a reasonable chance for success? I don't know if it can be really known.

The breakdown in parent-doc relationship appears to be key. But it does happen. It would also be interesting to know if the SH docs had consulted around.
 
Posted by orfeo (# 13878) on :
 
Sorry, but I don't see how it's possible to say the proton therapy doesn't meet a standard of reasonable care. The highest the argument of Southampton doctors has ever been is "it'll cost more, and it won't be any better".

If it's not their money, then the cost is no longer their business. If it's not any better, then it's just as good as their idea.

If they actually had any basis for saying that it would be worse then I'm sure they would have said so. We've now even had a court hearing with a judge allowing the proton therapy treatment. No-one, anywhere, has popped up to say that it's a quack treatment.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by orfeo:
You don't issues arrest warrants as a means of enforcing a civil order!! You issue arrest warrants for criminal offences.

This is not true in the UK in all cases. You may want to look at how the mental health act works - and how recall to hospital works in the case of a community treatment order.

(To be fair, we were surprised when we discovered that NHS staff were expected to apply for a warrant.)
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by justlooking:
The term 'consent' may be a way of referring to the usual process of discharge from hospital which requires medical staff to assess the patient's suitability for discharge and provide a 'discharge letter' which will be copied to the patient's GP. If doctors decide a patient is not fit for discharge but the patient insists on leaving then they are asked to sign a form to the effect that they are leaving against medical advice.

Yes, and "against medical advice" is exactly how the French press reported it from day one.

I'm not arguing that the hospital did not have grounds to contact the police. I'm arguing that the persistent use of the wrong word, which properly used is the preserve of the patient or next of kin, is a deliberate attempt on the part of the institution to attribute to itself, in the public mind, powers it simply does not have.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Doublethink:
quote:
Originally posted by orfeo:
You don't issues arrest warrants as a means of enforcing a civil order!! You issue arrest warrants for criminal offences.

This is not true in the UK in all cases. You may want to look at how the mental health act works - and how recall to hospital works in the case of a community treatment order.

(To be fair, we were surprised when we discovered that NHS staff were expected to apply for a warrant.)

I'm looking at the Mental Health Act, and all that I can find about arresting people is in a part that is specifically about people involved in criminal proceedings.

If you are talking about powers to detain people, I fully accept that there are such powers in the Mental Health Act. But I cannot see anything that says these powers are exercised on an arrest warrant. Arrest warrants land you in jail not in hospital - in this case, a jail near Madrid.

Most of what I can find in that Act is about "an application for admission".

[ 06. September 2014, 06:22: Message edited by: orfeo ]
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by orfeo:
Another article that resonates with me, because people have been citing various laws that are aimed at situations where parents are a threat to their child as if that makes any sense for a family that brought their sick child in for treatment and stayed at his bedside.

There is a difference between whether (hypothetical) parents want to harm their child, and whether (hypothetical) parents will harm their child.

A crime is committed if you wilfully harm your child, it *may* not be committed if you accidentally harm child.

In both cases, health & social care staff would be obliged to intervene if they had reason to believe there was a likelihood of significant harm to the child.

Neglect by failure to meet a child's basic needs or failure to secure appropriate medical care *may* be a crime if it can be proved beyond reasonable doubt that the parents inaction/action was beyond what a reasonable person would do.

A child may be placed on the at risk register, or even - following a court process - removed from the custody of its parents, on the basis of neglect proved to the level of the balance of probabilities. Such a process may conclude, without criminal charges ever being laid against anyone.

Arrest is a risk management process used in the course of investigation (and certain civil situations) it is not either charge or conviction.

The CPS will press charges only if it believes a crime has been committed, a prosecution is likely to result in conviction, and that such a prosecution would be in the public interest. All three conditions have to be met.

In the Aysha King case, any concerns about neglect were not about him having proton beam therapy in another hospital (even if that treatment is felt to be without additional benefit) - they were about his state and risks whilst not being in hospital (for a period when his whereabouts were unknown) for a period of unknown duration.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Doublethink:
quote:
Originally posted by orfeo:
You don't issues arrest warrants as a means of enforcing a civil order!! You issue arrest warrants for criminal offences.

This is not true in the UK in all cases. You may want to look at how the mental health act works - and how recall to hospital works in the case of a community treatment order.

(To be fair, we were surprised when we discovered that NHS staff were expected to apply for a warrant.)

I'm looking at the Mental Health Act, and all that I can find about arresting people is in a part that is specifically about people involved in criminal proceedings.

If you are talking about powers to detain people, I fully accept that there are such powers in the Mental Health Act. But I cannot see anything that says these powers are exercised on an arrest warrant. Arrest warrants land you in jail not in hospital - in this case, a jail near Madrid.

Most of what I can find in that Act is about "an application for admission".

Police can arrest you under section 136, to take you to a place of safety. "Sectioning" someone requires a warrant (AHPs have warrant cards). If you are recalled to hospital after the breach of the terms of a community treatment order, NHS staff have to apply for a warrant.

Whilst nowadays most hospitals have 136 suites, people can be detained to a police cell using 136 and for many years that was common. It would still happen if there were no space in the 136 suite.

It is not the case that arrest leads to you normally being placed in prison, you can be held for questioning in a police station and then released, you may or may not be held in police cells for a period. You can then just be released, or you might be released on police bail.

Being remanded into custody (ie prison) requires a court hearing as is a separate process from arrest.

[ 06. September 2014, 06:32: Message edited by: Doublethink ]
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Doublethink:
Arrest is a risk management process used in the course of investigation (and certain civil situations) it is not either charge or conviction.

You are going to have find for me something concrete that says it's permissible to say "you're under arrest" for anything other than a criminal investigation.

Risk management process? The right against unlawful imprisonment is one of the most fundamental rights in the entire system of English law (and hence most English-speaking countries). The Kings are suing for false imprisonment. I wouldn't dismiss their chances of success.
 
Posted by Doublethink (# 1984) on :
 
Yes, a risk management process - in the same way remand is a risk management process.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Doublethink:
quote:
Originally posted by orfeo:
quote:
Originally posted by Doublethink:
quote:
Originally posted by orfeo:
You don't issues arrest warrants as a means of enforcing a civil order!! You issue arrest warrants for criminal offences.

This is not true in the UK in all cases. You may want to look at how the mental health act works - and how recall to hospital works in the case of a community treatment order.

(To be fair, we were surprised when we discovered that NHS staff were expected to apply for a warrant.)

I'm looking at the Mental Health Act, and all that I can find about arresting people is in a part that is specifically about people involved in criminal proceedings.

If you are talking about powers to detain people, I fully accept that there are such powers in the Mental Health Act. But I cannot see anything that says these powers are exercised on an arrest warrant. Arrest warrants land you in jail not in hospital - in this case, a jail near Madrid.

Most of what I can find in that Act is about "an application for admission".

Police can arrest you under section 136, to take you to a place of safety. "Sectioning" someone requires a warrant (AHPs have warrant cards). If you are recalled to hospital after the breach of the terms of a community treatment order, NHS staff have to apply for a warrant.
Section 136: "If a constable finds in a place to which the public have access a person who appears to him to be suffering from mental disorder and to be in immediate need of care or control, the constable may, if he thinks it necessary to do so in the interests of that person or for the protection of other persons, remove that person to a place of safety within the meaning of section 135 above."

That is not an arrest.

Can I emphasise that again: THAT IS NOT AN ARREST. Arrest is one form of detention. Don't throw the word around for every form of detention.

Seriously, if mental health professionals are using words like "warrant" and "arrest" in relation to their patients, this explains a lot about the mentality of the doctors of Southampton.

[ 06. September 2014, 06:36: Message edited by: orfeo ]
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by Doublethink:
Yes, a risk management process - in the same way remand is a risk management process.

Oh wow. I'll have to take you on a visit round my jail some time and let you listen to some of the stories of people in there, awaiting trial (and thus presumed innocent), sometimes for years, and let you try that piece of semantics (Newspeak?) on them.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Doublethink:
Arrest is a risk management process used in the course of investigation (and certain civil situations) it is not either charge or conviction.

You are going to have find for me something concrete that says it's permissible to say "you're under arrest" for anything other than a criminal investigation.

Risk management process? The right against unlawful imprisonment is one of the most fundamental rights in the entire system of English law (and hence most English-speaking countries). The Kings are suing for false imprisonment. I wouldn't dismiss their chances of success.

Here is the metropolitan police guidance :

quote:
Whilst Section 136 does not use the term arrest, it is a preserved power of arrest under PACE and reasonable force may be used. Section 28 PACE requires an arrested person to be told that they are under arrest and the grounds for the arrest. Whilst a person detained under Section 136 is entitled to know that their liberty is being temporarily restricted, formally telling them that they are ‘under arrest’ may be counter-productive.

Therefore, the word arrest should be avoided, and instead the police officer should use tact and discretion in communicating to the person that they will have to come with police because of the officer’s concern for their well being, and that they have no choice in the matter. There is no requirement to caution a person detained under s.136 and this should not be done.


 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Eutychus:
quote:
Originally posted by Doublethink:
Yes, a risk management process - in the same way remand is a risk management process.

Oh wow. I'll have to take you on a visit round my jail some time and let you listen to some of the stories of people in there, awaiting trial (and thus presumed innocent), sometimes for years, and let you try that piece of semantics (Newspeak?) on them.
Well what do you think remand is for then ? How is it legally justified ?

Risk of violence or reoffence and risk of flight basically. That doesn't mean those decisions are always right.

[ 06. September 2014, 06:46: Message edited by: Doublethink ]
 
Posted by orfeo (# 13878) on :
 
Exactly. The Metropolitan Police guidance sounds perfectly sensible.

Now, contrast that to having your name splashed across the media as being subject to an arrest warrant. And being taken to jail.

You might also take note of where a person detained under the Mental Health Act is required to be taken. I'll give you a clue: it's not a high-security prison, which is what happened to the Kings.

It's exactly the same issue as Eutychus has raised about this use of the word 'consent'. You don't use the word 'arrest' unless you're dealing with a suspected crime. An arrest warrant was issued for the Kings. Criminal prosecutors and criminal courts were involved. They were put in jail.

To say that this is somehow part of a civil process does my head in. The civil process was the order making Ashya a ward of the court. That civil process has continued long after the arrest stuff has been dropped. It's simply not part of the same legal process.

[ 06. September 2014, 06:50: Message edited by: orfeo ]
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
Police can arrest you under section 136, to take you to a place of safety. "Sectioning" someone requires a warrant (AHPs have warrant cards). If you are recalled to hospital after the breach of the terms of a community treatment order, NHS staff have to apply for a warrant.

Section 136 does not provide for arrest warrants. What it provides for are warrants to search for and remove patients. There is a huge difference.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by orfeo:
Exactly.

Now, contrast that to having your name splashed across the media as being subject to an arrest warrant. And being taken to jail.

You might also take note of where a person detained under the Mental Health Act is required to be taken. I'll give you a clue: it's not a high-security prison, which is what happened to the Kings.

You seem to be confusing the arrest, with remand. The latter was a court decision made afterwards - I have no idea why a Spanish court chose to put them in a high security prison. That is in no way inherent in an arrest warrant.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Gracie:
quote:
Originally posted by Doublethink:
Police can arrest you under section 136, to take you to a place of safety. "Sectioning" someone requires a warrant (AHPs have warrant cards). If you are recalled to hospital after the breach of the terms of a community treatment order, NHS staff have to apply for a warrant.

Section 136 does not provide for arrest warrants. What it provides for are warrants to search for and remove patients. There is a huge difference.
Did you read the met guidance ? It is an arrest under the Police And Criminal Evidence Act.

I have seen it cause problems later, when some moronic police officer included the comments in the custody book as discretionary information on a Criminal Records Bureau check (formal complaints were made but with little effect).
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by Doublethink:
You seem to be confusing the arrest, with remand. The latter was a court decision made afterwards - I have no idea why a Spanish court chose to put them in a high security prison. That is in no way inherent in an arrest warrant.

Where would you take an arrested person, then?
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:

You seem to be confusing the arrest, with remand. The latter was a court decision made afterwards - I have no idea why a Spanish court chose to put them in a high security prison. That is in no way inherent in an arrest warrant.

If the police in a given country arrest someone on the basis of an arrest warrant at the request of another state, the only place they can hold them is in a prison following a pretty short and highly regulated period in police remand. The Spanish police basically had no other option.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Gracie:
quote:
Originally posted by Doublethink:
Police can arrest you under section 136, to take you to a place of safety. "Sectioning" someone requires a warrant (AHPs have warrant cards). If you are recalled to hospital after the breach of the terms of a community treatment order, NHS staff have to apply for a warrant.

Section 136 does not provide for arrest warrants. What it provides for are warrants to search for and remove patients. There is a huge difference.
Also, people the police think might be patients. Like arrest generally, it is not the same thing as having established is
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Gracie:
quote:
Originally posted by Doublethink:

You seem to be confusing the arrest, with remand. The latter was a court decision made afterwards - I have no idea why a Spanish court chose to put them in a high security prison. That is in no way inherent in an arrest warrant.

If the police in a given country arrest someone on the basis of an arrest warrant at the request of another state, the only place they can hold them is in a prison following a pretty short and highly regulated period in police remand. The Spanish police basically had no other option.
If they felt at the hearing that they were not a flight risk they could have bailed them to a specific address, and they certainly weren't required to put them in a high security facility.
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by Doublethink:
Well what do you think remand is for then ? How is it legally justified ?

Risk of violence or reoffence and risk of flight basically. That doesn't mean those decisions are always right.

Of course remand is part of a risk assessment process. But in my view, using the term here conceals and depersonalises what actually happens, completely unnecessarily.

How long before people are "detained as part of a risk assessment plan" because the state thinks they are being irresponsible in some way?

And by the way, no arrest could be performed in this case until there was a warrant issued by the CPS on the basis of a criminal charge, in this case child neglect.

I pretty much agree with that latest Guardian article linked to. I think the hospital vastly misrepresented the danger, convinced the police that massive action was required, the police rushed to the CPS who feverishly thumbed through the law book looking for the nearest charge that might possibly stick to have an excuse to issue the EAW. Which they originally justified as being "a way to talk to the parents".

It was an extremely blunt instrument and terms of how the family might have reacted (in view of how the hospital depicted them), perhaps not the best outcome of a risk assessment. I had visions of a mass suicide on the part of the hunted family as a result of the disproportionate response until I saw the first video from them.

[ 06. September 2014, 06:58: Message edited by: Eutychus ]
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by orfeo:
quote:
Originally posted by Doublethink:
You seem to be confusing the arrest, with remand. The latter was a court decision made afterwards - I have no idea why a Spanish court chose to put them in a high security prison. That is in no way inherent in an arrest warrant.

Where would you take an arrested person, then?
The court could have bailed them to a hotel in Malaga if it wished to do so. As they had a police guard for Aysha at the hospital, I am unclear why they didn't - in the circumstances the one thing you could be reasonably certain of, was that there parents were not going to leave without their son.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Eutychus:
quote:
Originally posted by Doublethink:
Well what do you think remand is for then ? How is it legally justified ?

Risk of violence or reoffence and risk of flight basically. That doesn't mean those decisions are always right.

Of course remand is part of a risk assessment process. But in my view, using the term here conceals and depersonalises what actually happens, completely unnecessarily.

How long before people are "detained as part of a risk assessment plan" because the state thinks they are being irresponsible in some way?

And by the way, no arrest could be performed in this case until there was a warrant issued by the CPS on the basis of a criminal charge, in this case child neglect.

I pretty much agree with that latest Guardian article linked to. I think the hospital vastly misrepresented the danger, convinced the police that massive action was required, the police rushed to the CPS who feverishly thumbed through the law book looking for the nearest charge that might possibly stick to have an excuse to issue the EAW. Which they originally justified as being "a way to talk to the parents".

It was an extremely blunt instrument and terms of how the family might have reacted (in view of how the hospital depicted them), perhaps not the best outcome of a risk assessment. I had visions of a mass suicide on the part of the hunted family as a result of the disproportionate response until I saw the first video from them.

Do you not think the choking hazard was an acute risk ?
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
Did you read the met guidance ? It is an arrest under the Police And Criminal Evidence Act.

I hadn't read that post when I posted mine. I read Section 136 itself, which nowhere makes any reference to arrest. The met guidance it seems to me to be translating section 136 into police language to help the officers understand what they should be doing in their own language. It is not a legal document. It does not cover everything. Legally Section 136 is not making provision for arrest.
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by Doublethink:
The court could have bailed them to a hotel in Malaga if it wished to do so.

[Killing me]

Advice: do not get arrested in continental Europe in a country with an inquisitorial system of justice if you are not a citizen of the country in question. Your first port of call, in all probability, is going to be jail. Possibly for a long time pre-trial.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
If they felt at the hearing that they were not a flight risk they could have bailed them to a specific address, and they certainly weren't required to put them in a high security facility.

Again bail is something that is granted to people who have been charged with an offence.

On that specific point, if Spain is anything like France, bail would have been pretty much an absolute impossibility. They would have had to have proved existing residence at a local address. A hotel or similar accommodation would not be accepted for these purposes.
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by Doublethink:
Do you not think the choking hazard was an acute risk ?

Possibly. But I'm sure that if the child had choked in the hospital and medical staff had failed to save it, they would be throwing their hands up in horror at the idea that they might face criminal charges (well, no, they'd be putting out bland press releases).

I'm not saying the family made the right decision. I'm saying that the means brought to bear were disproportionate and could have been counter-productive. And on the basis of the hospital's language ("consent") and other available evidence (of course more can emerge, there's a lot we don't know), most of the blame for that disproportionality lies with the hospital.
 
Posted by Doublethink (# 1984) on :
 
Legally, it is an arrest.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
Also, people the police think might be patients. Like arrest generally, it is not the same thing as having established is

Yes of course - but the point is patients or potential patients not offenders or potential offenders.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Eutychus:
quote:
Originally posted by Doublethink:
Do you not think the choking hazard was an acute risk ?

Possibly. But I'm sure that if the child had choked in the hospital and medical staff had failed to save it, they would be throwing their hands up in horror at the idea that they might face criminal charges (well, no, they'd be putting out bland press releases).
.

Yes, but, the choking hazard was increased and the ability to manage it was decreased.

And medical staff can be charged with neglect, if for example, they failed to check the tube was fitted properly and he drowned from the food going into his lungs.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Gracie:
quote:
Originally posted by Doublethink:
Also, people the police think might be patients. Like arrest generally, it is not the same thing as having established is

Yes of course - but the point is patients or potential patients not offenders or potential offenders.
The reason I raised this in the first place was to point out the police use arrest for none offenders.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
]The court could have bailed them to a hotel in Malaga if it wished to do so. As they had a police guard for Aysha at the hospital, I am unclear why they didn't - in the circumstances the one thing you could be reasonably certain of, was that there parents were not going to leave without their son.

The court was in Madrid. They would not bail them to an address in Malaga, even their own address. They would have needed proof of residency in Madrid.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Eutychus:
quote:
Originally posted by Doublethink:
The court could have bailed them to a hotel in Malaga if it wished to do so.

[Killing me]

Advice: do not get arrested in continental Europe in a country with an inquisitorial system of justice if you are not a citizen of the country in question. Your first port of call, in all probability, is going to be jail. Possibly for a long time pre-trial.

So they can't do it or they don't chose to ?
 
Posted by Doublethink (# 1984) on :
 
According to this, they could have chosen to bail.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
Legally, it is an arrest.

The book you have linked to is not law. It is a book talking about the law. A quick search suggests that "detention under section 136" might "constitute arrest for PACE purposes". That is not the same as saying that it is legally an arrest.

I believe that it is this kind of confusion that leads at least in part to the kind of events we are looking at here.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
The reason I raised this in the first place was to point out the police use arrest for none offenders.

For people who subsequently prove to be non-offenders yes. Not just for random members of the public. There has to be grounds for suspicion. Otherwise they would have to pay out far too much in compensation for wrongful arrest!
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
According to this, they could have chosen to bail.

Of course there would be a hearing, if the individuals requested bail. The likelihood of this being granted for reasons already explained is minimal.
 
Posted by Doublethink (# 1984) on :
 
*bangs head against wall*

I was trying to demonstrate to orfeo that arrest is used in civil matters in the UK, sometimes.

PACE is a law, it interacts with other laws.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Gracie:
quote:
Originally posted by Doublethink:
According to this, they could have chosen to bail.

Of course there would be a hearing, if the individuals requested bail. The likelihood of this being granted for reasons already explained is minimal.
In other words, it was a choice the court made, that was not inherent in the issuing an arrest warrant. These were exceptional circumstances, they could have done something exceptional - they chose not to.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
In other words, it was a choice the court made, that was not inherent in the issuing an arrest warrant. These were exceptional circumstances, they could have done something exceptional - they chose not to.

I really don't think blame can be laid on the Spanish legal system for this. They did not initiate the process.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
*bangs head against wall*

I was trying to demonstrate to orfeo that arrest is used in civil matters in the UK, sometimes.

PACE is a law, it interacts with other laws.

And the word arrest is used only as an approximation - it is not the proper word to use in these cases.

PACE uses the word arrest because it is the "Police and Criminal Evidence Act".
 
Posted by Doublethink (# 1984) on :
 
PACE defines what arrest is.

I am not sure there is any value in pursuing this tangent any further.
 
Posted by Doublethink (# 1984) on :
 
In other news, BBC Breakfast reported that Aysha will go to the main hospital in Prague, for chemotherapy, after that he will receive proton therapy. He does not stop being a ward of court till after he gets to the proton therapy centre - so presumably they are trying to ensure he receives chemotherapy.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by Gracie:
quote:
Originally posted by Doublethink:
If they felt at the hearing that they were not a flight risk they could have bailed them to a specific address, and they certainly weren't required to put them in a high security facility.

Again bail is something that is granted to people who have been charged with an offence.

On that specific point, if Spain is anything like France, bail would have been pretty much an absolute impossibility. They would have had to have proved existing residence at a local address. A hotel or similar accommodation would not be accepted for these purposes.

IRRC don't they already have a residence in Spain ? They were intending to sell it.

[ 06. September 2014, 08:26: Message edited by: Doublethink ]
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Doublethink:
IRRC don't they already have a residence in Spain ? They were intending to sell it.

They have a residence in Malaga, not in Madrid.
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Gracie:
quote:
Originally posted by Doublethink:
IRRC don't they already have a residence in Spain ? They were intending to sell it.

They have a residence in Malaga, not in Madrid.
Sorry that's not right. Their residence is not in Malaga either. They travelled on to Malaga knowing that there was a good children's hospital there, having discovered their holiday home surrounded by police. In any case too far from Madrid for the judge there to consider it a local address.
 
Posted by Doublethink (# 1984) on :
 
Don't know about Spain, but in the uk you can be released on bail, without a specific requirement to live in any given place, just report into a specific police desk at specific intervals.
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by Doublethink:
Don't know about Spain, but in the uk you can be released on bail, without a specific requirement to live in any given place, just report into a specific police desk at specific intervals.

My knowledge is of the French criminal justice system not the Spanish one, but I would imagine they are similar.

In France, while in theory a relase on bail is possible, this will decrease to approximately zero if you are a foreign national even if you are a long-term resident in France, because the judge will deem you a flight risk by virtue of your nationality. I spend not inconsiderable amounts of time explaining this to confused and shell-shocked foreign inmates on remand at the prison I'm chaplain at.

As I say, try not to get arrested, still less charged over here.
 
Posted by Doublethink (# 1984) on :
 
Yeah, I imagine you are less of flight risk if your seriously ill child is under police guard in a local hospital though.

Returning to the point that placing the parents in a maximum security prison for days was not an inherent consequence of seeking to arrest them. That was choice made in Spain by the local judge.

[ 06. September 2014, 13:34: Message edited by: Doublethink ]
 
Posted by itsarumdo (# 18174) on :
 
Maybe they take the European Arrest Warrant seriously - assuming that it won't be issued by police in any other country unless the situation is very serious? [Roll Eyes]
 
Posted by Doublethink (# 1984) on :
 
Yes, but, they (the Spanish authorities) had the child under guard in a hospital - that changes the flight risk - you don't need a degree in human psychology to work that out. The judge did not need to make some massive leap of imagination.

They could no longer be actively neglecting the child if they didn't have custody, they couldn't take the child and leave if the child was guarded, and if it was believed that they acted - however misguidedly - out of a desperate desire to help their child and be with him - they were unlikely to bugger off leaving him in Malaga.

[ 06. September 2014, 14:07: Message edited by: Doublethink ]
 
Posted by cliffdweller (# 13338) on :
 
quote:
Originally posted by Doublethink:
]If they felt at the hearing that they were not a flight risk they could have bailed them to a specific address, and they certainly weren't required to put them in a high security facility.

But of course in this particular case, "are they a flight risk?" is sorta begging the question, isn't it? If the concerns had turned out to be accurate/true, they very much would have been a flight risk. It is only because we now know they were not accurate/true that we know they are not a flight risk.
 
Posted by Doublethink (# 1984) on :
 
Not really, see my post above.
 
Posted by cliffdweller (# 13338) on :
 
quote:
Originally posted by Doublethink:
Not really, see my post above.

Dang Pacific Standard Time. I'm always jumping into the conversation that's been going on for hours, trying to catch up before I've heard all the comments. Then by the time I've finished reading all the comments it's too late to delete/edit. Sorry.

[ 06. September 2014, 14:45: Message edited by: cliffdweller ]
 
Posted by Eutychus (# 3081) on :
 
quote:
Originally posted by Doublethink:
Yeah, I imagine you are less of flight risk if your seriously ill child is under police guard in a local hospital though.

Returning to the point that placing the parents in a maximum security prison for days was not an inherent consequence of seeking to arrest them. That was choice made in Spain by the local judge.

Have you ever had to try and actually explain something to an investigating magistrate after being arrested and charged? In my experience they will usually think "foreign = flight risk out of my jurisdiction = better safe than sorry = put them in prison while I investigate more". Their mind is made up.
 
Posted by BroJames (# 9636) on :
 
quote:
Originally posted by Doublethink:
PACE defines what arrest is.

I am not sure there is any value in pursuing this tangent any further.

More accurately, removal to a place of safety under s136 of the MHA is not one of the powers abolished by the Police and Criminal Evidence Act 1984. Section 26 states:
quote:
26 Repeal of statutory powers of arrest without warrant or order.

(1)Subject to subsection (2) below, so much of any Act (including a local Act) passed before this Act as enables a constable—
(a)to arrest a person for an offence without a warrant; or
(b)to arrest a person otherwise than for an offence without a warrant or an order of a court,shall cease to have effect.
(2)Nothing in subsection (1) above affects the enactments specified in Schedule 2 to this Act. [The schedule is headed 'Preserved Powers of Arrest', although not all the powers preserved are powers to arrest per se]

It's rather over interpreting it to say that PACE defines that removal as an arrest. Code of practice C (PDF) to PACE distinguishes between criminal arrest and mental health detention thus:
quote:
1.10 Subject to paragraph 1.12, this Code applies to people in custody at police stations in England and Wales, whether or not they have been arrested, and to those removed to a police station as a place of safety under the Mental Health Act 1983, sections 135 and 136, as a last resort (see paragraph 3.16).

 
Posted by itsarumdo (# 18174) on :
 
But the MHA doesn't affect anyone who is only receiving treatment for physical conditions?

If we are all under the powers of the MHA as soon as we enter hospital of treatment, heaven help us.
 
Posted by no prophet (# 15560) on :
 
quote:
Originally posted by orfeo:
Sorry, but I don't see how it's possible to say the proton therapy doesn't meet a standard of reasonable care. The highest the argument of Southampton doctors has ever been is "it'll cost more, and it won't be any better".

If it's not their money, then the cost is no longer their business. If it's not any better, then it's just as good as their idea.

If they actually had any basis for saying that it would be worse then I'm sure they would have said so. We've now even had a court hearing with a judge allowing the proton therapy treatment. No-one, anywhere, has popped up to say that it's a quack treatment.

"Quack treatment" is overstated. Consider, if the proton treatment is ineffective, i.e., the data do not support its use, then using it is not sensible. I don't think the data support its use. The key issue is whether the doctors actually can offer some treatment that is better than an ineffective and expensive treatment (possibly placebo) and have reasonable data to show that their approach is more likely to be effective. In that situation, I see them as completely justified in asserting their course of treatment. If this is merely a disagreement about two ineffective modes of treatment, a preference and a belief basis only on the parental and physician sides, then the docs are justified in saying no to the funding and letting the parents pursue whatever they wish.

A judge allowing proton therapy is not the same as saying it is effective. Judges may or may not know science, they make decisions based on information presented to them, and are good at appraising argumentation, which is not at all what science it.

Treatments need to meet a science base, not a persuasive or belief basis, and a court is not the place to determine science. -- I review funding requests for a public insurer for novel treatments, and it matters not that a court (or often in our case a politician) believes something will work. Like "medical marijuana". You have to go with data. We had the interesting situation of a court ordering that a patient could have a non-evidence based treatment funded, but no-one would provide it, in that case surgery. This was the only reasonable decision medical people could make.
 
Posted by no prophet (# 15560) on :
 
Re arrest.

We have those in criminal proceedings in Canada. But arrest can also be made if a person is likely to harm themselves or someone else under the Mental Health Act. Police do arrest and escort to hospital under restraint for involuntary examination, and the person can be help for 15 days and then extended if certfied. Further, the person can be placed for medical or psychiartric reasons on a CTO (community treatment order) that requires them to attend for treatment of be arrested and again escorted.

With children, is is called "apprehension". We also have court orders that restrain conduct in certain matters "restraining orders". And we have have in Canadian Criminal Code, section 810 orders which provide for equivalent to parole for people who've not committed offences but might.

Although my information is Canadian, it appears that the UK proceeds in very similar ways, using different named processes.

All of these can be misused, and there is ultimately recourse to courts, but that's not at all how it goes. These are supposed to be cooperative efforts in legitimate situations of difficulty. In the SH situation, the key issue is the nature of relationship and its breakdown between parents and hospital.

[ 06. September 2014, 17:24: Message edited by: no prophet ]
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by itsarumdo:
But the MHA doesn't affect anyone who is only receiving treatment for physical conditions?

If we are all under the powers of the MHA as soon as we enter hospital of treatment, heaven help us.

Yes, I was responding to Orfeo stating that the police only arrest in criminal cases - not asserting that the MHA applies to physical health.
 
Posted by orfeo (# 13878) on :
 
quote:
Originally posted by BroJames:
quote:
Originally posted by Doublethink:
PACE defines what arrest is.

I am not sure there is any value in pursuing this tangent any further.

More accurately, removal to a place of safety under s136 of the MHA is not one of the powers abolished by the Police and Criminal Evidence Act 1984. Section 26 states:
quote:
26 Repeal of statutory powers of arrest without warrant or order.

(1)Subject to subsection (2) below, so much of any Act (including a local Act) passed before this Act as enables a constable—
(a)to arrest a person for an offence without a warrant; or
(b)to arrest a person otherwise than for an offence without a warrant or an order of a court,shall cease to have effect.
(2)Nothing in subsection (1) above affects the enactments specified in Schedule 2 to this Act. [The schedule is headed 'Preserved Powers of Arrest', although not all the powers preserved are powers to arrest per se]

It's rather over interpreting it to say that PACE defines that removal as an arrest. Code of practice C (PDF) to PACE distinguishes between criminal arrest and mental health detention thus:
quote:
1.10 Subject to paragraph 1.12, this Code applies to people in custody at police stations in England and Wales, whether or not they have been arrested, and to those removed to a police station as a place of safety under the Mental Health Act 1983, sections 135 and 136, as a last resort (see paragraph 3.16).

Thank You. I was thinking of doing this research myself, but hadn't got around to it yet.

Why am I not surprised. My spidey senses were tingling in exactly this way, that the other Act said something like "this does not cover the Mental Health Act powers", and this is treated by people as "oh look, it says something about the Mental Health Act powers".

[ 06. September 2014, 22:48: Message edited by: orfeo ]
 
Posted by orfeo (# 13878) on :
 
ADDENDUM: For the precise reason that nothing in the Mental Health Act needs another Act to help it operate.
 
Posted by orfeo (# 13878) on :
 
And if the police actually believe that the PACE Act does apply, then not telling a person they were under arrest would be flat out unlawful: section 28. A piece of Metropolitan Police advice saying 'best not to tell them' is hardly a substitute for the law of the land.

Section 26 clearly says that it is repealing various other Acts that provide arrest for offences. Almost everything in the PACE Act is about how to handle matters relating to offences. In other words, criminal matters.

To take a single word of a single heading of a single Schedule that's basically a list of things the PACE Act is not covering, including things that are clearly not offences and so which subsection 26(1) wouldn't override anyway, as establishing that something in another Act is an arrest is just foolish. Subsection 26(2) exists from an abundance of caution, that is all.
 
Posted by Doublethink (# 1984) on :
 
And I will refer you to this legal text book again.

The reasons it actually matters that it is technically an arrest, are the legal safeguards around an arrest and because by buggering up people's DBS checks it undermines their employability which is in nobody's long term interest.

I note people who believe this is an arrest include the metropolitan police, the care quality commission, the major mental health charities who advocate for service-users such as Sane, MIND and ReThink, every mental health professional I've met including those with specialist training on the Mental Health Act, and a number of service-users who have been quite upset about this fact. (Which is why many people, including the CQC and its predecessor organisation, want the law changed so it is not an arrest.)

And here someone's explanation of why a caution is not necessarily given.
 
Posted by BroJames (# 9636) on :
 
The Police and Criminal Evidence Act (PACE) is quite careful to distinguish between arrest (i.e the act of apprehension) and a consequence which usually flows from it, namely detention. In common parlance (even in legal textbooks) this distinction is often not needful, and is not observed.

In most respects, any detention is treated under PACE as if it were an arrest, and Code of Practice C applies, though the code itself is careful to distinguish between arrest with its criminal connotations and detention under the Mental Health Act, as is, e.g., this jointly produced report.

Neither arrests nor MHA detentions show up on a standard DBS Disclosure, but either may show up on an Enhanced Disclosure which may show
quote:
any additional information held by local police that’s reasonably considered relevant to the workforce being applied for

 
Posted by BroJames (# 9636) on :
 
Tsk hit Post instead of Preview.

I was going to say that I note the in their report Monitoring the Mental Health Act in 2012/13 the CQC say the
quote:
power, under section 136 of the Act, is technically a form of arrest
(their only use of the word 'arrest' in the report). They would be more accurate to say that the power to detain is treated as an arrest under PACE.

The whole area is a linguistic/semantic minefield with common usage (which doesn't always distinguish between (e.g.) arrest and detention) differing at times from technical legal usage which makes some very fine distinctions.

[ 07. September 2014, 16:23: Message edited by: BroJames ]
 
Posted by orfeo (# 13878) on :
 
The list of things in that Schedule of the PACE Act isn't confined to section 136 of the Mental Health Act.

The complete list of Mental Health Act provisions mentioned:

section 18 - taking a patient who has been absent without leave - can be done by an approved mental health professional, a hospital staff member, a constable or a person authorised by the managers of the hospital.

subsection 35(10) - criminally accused person absconding from hospital when there for a mental assessment - arrest by a constable. Actually uses the word 'arrest'.

subsection 36(8) - remand of accused person in hospital, cross-references to the previous one so it's the same power.

subsection 38(7) - convicted person absconding from hospital - arrest by a constable. Again, a criminal matter and uses the word 'arrest'.

subsection 136(1) - constable detaining a mentally ill person in a public place and taking them to a place of safety.

section 138 - retaking a patient escaped from custody.


There is proof positive in these sections that the Mental Health Act uses the word 'arrest' when dealing with someone who is either accused or convicted of a criminal offence, and does not use the word 'arrest' when dealing with someone who is detained purely on grounds of mental health.

The drafters of the Act were quite capable of using the word 'arrest' when they wanted to, so I'd recommend that the police and mental health professionals stop reading the word into the sections where it wasn't used.

[ 08. September 2014, 03:19: Message edited by: orfeo ]
 
Posted by Doublethink (# 1984) on :
 
I note that the NHS have now been put in the position of paying for Aysha King's treatment.
 
Posted by Doublethink (# 1984) on :
 
quote:
Originally posted by orfeo:
Sorry, but I don't see how it's possible to say the proton therapy doesn't meet a standard of reasonable care. The highest the argument of Southampton doctors has ever been is "it'll cost more, and it won't be any better".

If it's not their money, then the cost is no longer their business. If it's not any better, then it's just as good as their idea.

It was fairly predictable that in this situation that NHS would end up having to pay. Because, if the family do not in fact have the money - what are you going to do ? Disrupt the treatment course and drastically reduce the child's chance of survival (because a course of radiotherapy - proton or otherwise - has not been completed in a timely fashion.) ?
 
Posted by North East Quine (# 13049) on :
 
I thought a public appeal had raised enough money to pay for most of the treatment, with a private donor meeting the balance?
 
Posted by Doublethink (# 1984) on :
 
Well, that raises an interesting question in itself. But I am confident if the NHS has comitted itself to pay, then it will pay.

I suspect the money raised will go to the Kids n Cancer charity. I note they hadn't actually got enough money with that appeal - which may be part of the issue.

[ 29. September 2014, 09:27: Message edited by: Doublethink ]
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by North East Quine:
I thought a public appeal had raised enough money to pay for most of the treatment, with a private donor meeting the balance?

Yes, I haven't read anything to suggest that the NHS has been obliged to fund the treatment but rather that it has agreed and that the money donated for the treatment will be used for other children by Kids’n’CancerUK.

The information that is now being published seems to confirm my initial understanding, that the issue was that the NHS only took survival rates into consideration, whereas the Kings' concerns have always been side effects and quality of life in addition to chances of survival.
 
Posted by North East Quine (# 13049) on :
 
I read the BBC story as meaning that the treatment met the NHS guidelines, and hence they were liable to pay. If it meets the guidelines now, it would have met the guidelines at the time Ashya was removed from Southampton Hospital.

But I can see that there is more than one way to read this story.

[ 29. September 2014, 09:40: Message edited by: North East Quine ]
 
Posted by Doublethink (# 1984) on :
 
No. The tumour has been removed. The radiotherapy is to prevent it coming back. Because in this condition if it does, it will almost certainly be lethal.

To do this, they will irradiate most of the brain and part of the spine. It is doing this that will cause side effects.

Doing it with proton beams doesn't change that. Which is why the case was not approved for funding for this in the first place.

Where proton beam therapy would have an advantage, would be if you only needed to irradiate precisely a small area - for example for the removal of a small tumour.

To prevent the return of a tumour, the child needs a complete course to do the irradiation within a fixed time. In other words, now it has been started it should not be stopped.

Analogy: A doctor might think antibiotic b, is no more effective and side effect free than antibiotic a - despite being three times the cost - but once you've started it, you should definitely complete the course rather than stop half way through because you have run out of money.

[ 29. September 2014, 19:12: Message edited by: Doublethink ]
 
Posted by Gracie (# 3870) on :
 
From what I've read, all of the money needed to complete the treatment has already been raised. There is no risk of them not having enough money. That is not rhe reason for the NHS's change of mind.

Mr and Mrs King were told that their son would most certainly have "special needs" for the rest of his life with conventional radiotherapy. The doctors in Prague say that he has a 70 to 80% chance of making a full recovery with proton therapy.

Your appraisal of the situation may be different. But I can see why these parents chose to trust the people they trust.
 
Posted by Doublethink (# 1984) on :
 
I think you may be mistaken in believing that "full recovery" means no special needs. (I wish otherwise.)

In the same way that "medically fit for discharge" does not equal "well".

One reason for this is that, owing to having a tumour surgically removed, this child already has brain damage. Now his brain will repair itself to an extent, most quickly in the first two years post-operatively, but it is still a major neurological insult.

[ 29. September 2014, 19:33: Message edited by: Doublethink ]
 
Posted by Gracie (# 3870) on :
 
I'm talking about what the parents have heard and understood.
 
Posted by itsarumdo (# 18174) on :
 
WOW! 360 posts

Lets just hope none of us ever has to make a decision that ends up being dissected ad infinitum in public.
 
Posted by Jane R (# 331) on :
 
Gracie:
quote:
I'm talking about what the parents have heard and understood.
I think you are probably right, but as Doublethink has pointed out Asha will probably have special needs anyway.

In that kind of situation I'd also want the best medical care possible for my child. But I hope I wouldn't dismiss a specialist's opinion in favour of some random cure I'd found on the Internet just because the specialist wasn't telling me what I wanted to hear.

And I say this as someone who DID find a cure for her child's medical problem from the Internet...
 
Posted by Gracie (# 3870) on :
 
quote:
Originally posted by Jane R:
I think you are probably right, but as Doublethink has pointed out Asha will probably have special needs anyway.

That may well be the case. There is however still the question of degree. From what I've read Mr King did more than random research. I would have thought that if you're motivated it's possible to do quite extensive research into comparative results, those comparative results including not just survival but the condition of the patient after survival.
 
Posted by Jane R (# 331) on :
 
Well, I hope you're right. But ISTM that Doublethink is on the money here - the reason for the treatment is to stop more tumours growing, not to shrink an existing one, so you can't focus on a precise area.

And once again: proton beam therapy IS radiotherapy. There will be side effects, however tightly focused the beam may be.
 
Posted by Gracie (# 3870) on :
 
Again I repeat it is a question of degree.
 


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